Updating OMERACT Core Set of Domains for ANCA-associated Vasculitis: Patient Perspective Using the International Classification of Function, Disability, and Health
Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF). Items identified during 14 individual interviews were incorporated into an ICF-based question...
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| Published in: | Journal of rheumatology Vol. 46; no. 10; pp. 1415 - 1420 |
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| Main Authors: | , , , , , , , , , , , , , , , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
Canada
01-10-2019
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| Subjects: | |
| Online Access: | Get full text |
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| Summary: | Aspects of antineutrophil cytoplasmic antibodies-associated vasculitis (AAV) prioritized by patients with AAV were described using the International Classification of Function, Disability, and Health (ICF).
Items identified during 14 individual interviews were incorporated into an ICF-based questionnaire administered to participants of 2 vasculitis patient symposia: 36 in the United Kingdom and 63 in the United States.
Categories identified as at least "moderately relevant" by ≥ 5% of subjects included 44 body functions, 14 body structures, 35 activities and participation, 31 environmental factors, and 38 personal factors.
Identified categories differ from those identified by the current Outcome Measures in Rheumatology (OMERACT) core set and those prioritized by vasculitis experts. |
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| Bibliography: | ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 D Chaudhuri, MD; Resident, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada JC Robson, MBBS, PhD, MRCP; Consultant Senior Lecturer in Rheumatology,Faculty of Health and Applied Science, University of the West of England, Bristol, United Kingdom; School of Clinical Science; University of Bristol, Bristol, United Kingdom N Milman, MD, MSc, FRCPC; Assistant Professor, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada A Boonen, MD, PhD: Professor department of Medicine, Division of Rheumatology, Maastricht University Medical Centre, Maastricht, The Netherlands; Caphri Research Institute, Maastricht University, Maastricht, The Netherlands GA Wells, PhD; Professor, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa Heart Institute, Ottawa, Ontario, Canada CA McAlear, MA; Project Manager, Vasculitis Clinical Research Consortium, University of Pennsylvania, Philadelphia, PA, USA E McConville, MD; Resident, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada PF Cronholm, MD, MSCE; Associate Professor of Family Medicine and Community Health at Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA S Ashdown, patient partner, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK PA Merkel, MD, MPH; Professor, Division of Rheumatology and Department of Biostatistics, Epidemiology, and Informatics, University of Pennsylvania, Philadelphia, PA, USA. Appointments D Gebhart, patient partner, Division of Rheumatology, Department of Medicine, University of Pennsylvania, Philadelphia, PA, USA; Department of Biostatistics, Epidemiology, and Informatics, University of Pennsylvania, Philadelphia, PA, USA KS Kellom, BA; PolicyLab, Children’s Hospital of Philadelphia, 2716 South St, Philadelphia, PA 19146, USA G Tomasson, MD, PhD; Assistant Professor, Department of Epidemiology and Biostatistics, Faculty of Medicine, University of Iceland, Reykjavik Iceland J Dawson, MA, MSc, DPhil; Visiting Academic Researcher, Nuffield Department of Population Health (HSRU), University of Oxford, Oxford, UK G Lanier, patient partner, Division of Rheumatology, Department of Medicine, University of Pennsylvania, Philadelphia, PA, USA; Department of Biostatistics, Epidemiology, and Informatics, University of Pennsylvania, Philadelphia, PA, USA J Peck, patient partner, Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Oxford, UK P Tugwell, MD, FRCPC; Professor, Department of Medicine, University of Ottawa, Ottawa, Ontario, Canada |
| ISSN: | 0315-162X 1499-2752 |
| DOI: | 10.3899/jrheum.181073 |