Search Results - "Mayhew, A.G."

S.P.6 Exploratory Rasch analysis of the EK2 scale used in a population of Duchenne muscular dystrophy (DMD) by Mayhew, A.G, Eagle, M, Steffenson, B

“…Abstract The Egen Klassifikation scale was designed to measure functional ability in non-ambulant DMD. It examined activities and abilities such as transfers,…”
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P.5.4 Clinical outcome measures for dysferlinopathy: An exploration of reliability and suitability of novel functional rating scales by Eagle, M, Mayhew, A.G, Bettinson, K, James, M.K, Von Rekowski, B, Bushby, K

“…As part of an international study assessing a wide range of outcome measures in dysferlinopathy a subset was taken from one site (Newcastle, UK) to assess the…”
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P.2.5 Performance of Upper Limb Scale for use in Duchenne muscular dystrophy – An iterative process to establish its suitability for clinical trials by Mayhew, A.G, Eagle, M, Mazzone, E, Main, M, Ash, M, James, M.K, Vandenhauwe, M, Klingels, K, Duong, T, Florence, J, Decostre, V, Mercuri, E, Bushby, K

“…In 2012 a group of international physiotherapists specializing in neuromuscular assessments devised a ClinRO to assess upper limb performance (PUL) for use in…”
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S.P.5 Trial readiness: Clinical interpretability of change scores of the North Star Ambulatory Assessment in Duchenne muscular dystropy by Mayhew, A.G, Eagle, M, Scott, E, Bushby, K.M.D, Adnan, M, Muntoni, F, Cano, S.J

“…Abstract The North Star Ambulatory Assessment (NSAA) is a clinician-rated measure of ambulation in Duchenne muscular dystrophy (DMD). A key role of the NSAA is…”
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P2.23 Exploratory Rasch analysis of adapted North Star ambulatory assessment in LGMD 2I by Mayhew, A.G, Eagle, M, Willis, T.A, Straub, V

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M.P.1.07 The Smartnet Clinical Network – Creation of a national standardised assessment tool and natural history database for spinal muscular atrophy by Mayhew, A.G, Scott, E, Muntoni, F, Manzur, A

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S.P.9 Development of an upper limb functional scale in dystrophinopathies by Duong, T, Eagle, M, Mayhew, A.G, Mazzone, E, Florence, J, James, M, Main, M, Ash, M, Klingels, K, Van den Hauwe, M, Decostre, V

“…Abstract Development of appropriate outcome measures that are able to measure both deterioration and therapeutic effectiveness across the spectrum of severity…”
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Parenting the premature infant: balancing vulnerability and quality of life by Eiser, C., Eiser, J. R., Mayhew, A.G., Gibson, A.T.

“…Background:  Relationships between child quality of life (QOL), maternal well‐being and parenting were explored in a questionnaire study. Method:  Mothers of…”
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