Search Results - "Mathias, Susan"

I‐WISh: A wish list for immune thrombocytopenia quality of life indicators becomes reality by Mathias, Susan D.

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Development of a patient-reported outcome questionnaire to assess signs and symptoms of hidradenitis suppurativa: The Hidradenitis Suppurativa Symptom Diary by Alavi, Afsaneh, Baradaran, Sarah, Mathias, Susan D., Colwell, Hilary H., Song, Michael, Hamzavi, Iltefat H., Han, Chenglong

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Relationship between sleep efficacy endpoints and measures of functional status and health‐related quality of life in participants with narcolepsy or obstructive sleep apnea treated for excessive daytime sleepiness by Weaver, Terri E., Mathias, Susan D., Crosby, Ross D., Bron, Morgan, Bujanover, Shay, Menno, Diane, Villa, Kathleen F., Drake, Christopher

“…This study examined the correlation between improvements in excessive daytime sleepiness in participants with obstructive sleep apnea or narcolepsy and changes…”
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Patient‐reported outcomes among patients with systemic mastocytosis in routine clinical practice: Results of the TouchStone SM Patient Survey by Mesa, Ruben A., Sullivan, Erin M., Dubinski, David, Carroll, Brittany, Slee, Valerie M., Jennings, Susan V., Finnerty, Celeste C., Bohannon, Linda S., Mathias, Susan D., Lahue, Betsy J., Castells, Mariana C.

“…Background Systemic mastocytosis (SM) is a rare clonal neoplasm driven by KIT D816V and other mutations. Data were collected from the patient perspective on…”
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Evaluating the minimally important difference of the urticaria activity score and other measures of disease activity in patients with chronic idiopathic urticaria by Mathias, Susan D., MPH, Crosby, Ross D., PhD, Zazzali, James L., PhD, Maurer, Marcus, MD, Saini, Sarbjit S., MD

“…Abstract Background The Urticaria Activity Score (UAS) is a widely used patient-reported outcome measure for patients with chronic idiopathic urticaria (CIU)…”
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Perceptions of patient disease burden and management approaches in systemic mastocytosis: Results of the TouchStone Healthcare Provider Survey by Mesa, Ruben A., Sullivan, Erin M., Dubinski, David, Carroll, Brittany, Slee, Valerie M., Jennings, Susan V., Finnerty, Celeste C., Bohannon, Linda S., Mathias, Susan D., Lahue, Betsy J., Castells, Mariana C.

“…Background Systemic mastocytosis (SM) is a rare clonal neoplasm driven by the KIT D816V mutation and has a broad range of debilitating symptoms. In this study,…”
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Development of the Systemic Lupus Erythematosus Steroid Questionnaire (SSQ): a novel patient-reported outcome tool to assess the impact of oral steroid treatment by Mathias, Susan D, Berry, Pamela, De Vries, Jane, Askanase, Anca, Pascoe, Katie, Colwell, Hilary H, Chang, David J

“…Oral glucocorticoids (steroids) are the mainstay of treatment for systemic lupus erythematosus (SLE), but their use is often associated with short- and…”
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A Phase 3, Randomized, Double-Blind, Placebo-Controlled Study to Determine the Effect of Romiplostim on Health-Related Quality of Life in Children with Primary Immune Thrombocytopenia and Associated Burden in Their Parents by Mathias, Susan D., Li, Xiaoyan, Eisen, Melissa, Carpenter, Nancy, Crosby, Ross D., Blanchette, Victor S.

“…Background Chronic immune thrombocytopenia (ITP) in children can negatively impact their health‐related quality of life (HRQoL) and impose a burden on their…”
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Pain Outcomes in Patients With Advanced Breast Cancer and Bone Metastases: Results From a Randomized, Double-Blind Study of Denosumab and Zoledronic Acid by CLEELAND, Charles S, BODY, Jean-Jacques, LIPTON, Allan, DE BOER, Richard, SALVAGNI, Stefania, TOSELLO OLIVEIRA, Celia, YI QIAN, QI JIANG, DANSEY, Roger, BRAUN, Ada, CHUNG, Karen, STOPECK, Alison, VON MOOS, Roger, FALLOWFIELD, Lesley, MATHIAS, Susan D, PATRICK, Donald L, CLEMONS, Mark, TONKIN, Katia, MASUDA, Norikazu

“…In this study, the authors evaluated the effect of denosumab versus zoledronic acid (ZA) on pain in patients with advanced breast cancer and bone metastases…”
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Qualitative and Psychometric Evaluation of 29-Item Patient-Reported Outcomes Measurement Information System® to Assess General Health-Related Quality of Life in Patients With Moderately to Severely Active Inflammatory Bowel Disease by Sands, Bruce E., Panés, Julian, Feagan, Brian G., Zhang, Hongyan, Vetter, Marion L., Mathias, Susan D., Huang, Kuan-Hsiang Gary, Johanns, Jewel, Germinaro, Matthew, Sahoo, Aparna, Terry, Natalie A., Han, Chenglong

“…To evaluate content validity and psychometric properties of the 29-item Patient-Reported Outcomes Measurement Information System (PROMIS-29) to determine its…”
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Long-term real-world experience with ipilimumab and non-ipilimumab therapies in advanced melanoma: the IMAGE study by Dalle, Stéphane, Mortier, Laurent, Corrie, Pippa, Lotem, Michal, Board, Ruth, Arance, Ana María, Meiss, Frank, Terheyden, Patrick, Gutzmer, Ralf, Buysse, Brian, Oh, Kelly, Brokaw, Jane, Le, T. Kim, Mathias, Susan D, Scotto, Julie, Lord-Bessen, Jennifer, Moshyk, Andriy, Kotapati, Srividya, Middleton, Mark R

“…Abstract Background Ipilimumab has shown long-term overall survival (OS) in patients with advanced melanoma in clinical trials, but robust real-world evidence…”
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Determination of thresholds for minimally important difference and clinically important response on the functional outcomes of sleep questionnaire short version in adults with narcolepsy or obstructive sleep apnea by Weaver, Terri E., Menno, Diane M., Bron, Morgan, Crosby, Ross D., Morris, Susan, Mathias, Susan D.

“…Purpose This study estimated thresholds for clinically important responses and minimally important differences for two indicators of improvement for the…”
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Disease and Treatment-Related Burden in Patients With Acromegaly Who Are Biochemically Controlled on Injectable Somatostatin Receptor Ligands by Fleseriu, Maria, Molitch, Mark, Dreval, Alexander, Biermasz, Nienke R, Gordon, Murray B, Crosby, Ross D, Ludlam, William H, Haviv, Asi, Gilgun-Sherki, Yossi, Mathias, Susan D

“…Medical treatment for acromegaly commonly involves receiving intramuscular or deep subcutaneous injections of somatostatin receptor ligands (SRLs) in most…”
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Patient reported outcome data from acromegaly patients treated with injectable somatostatin receptor ligands (SRLs) in routine clinical practice by Geer, Eliza B, Sisco, Jill, Adelman, Daphne T, Ludlam, William H, Haviv, Asi, Liu, Shuqian, Mathias, Susan D, Gelbaum, Dana, Shi, Lizheng

“…Acromegaly patients managed on Somatostatin receptor ligands (SRLs), the most common first-line pharmacotherapy for acromegaly, may still experience acromegaly…”
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Development of Focal Segmental Glomerulosclerosis Patient-Reported Outcome Measures: Symptom Diary and Symptom Impact Questionnaire by Mathias, Susan D., Vallow, Susan, Gipson, Debbie S., Thorneloe, Kevin S., Sprecher, Dennis

“…Focal segmental glomerulosclerosis (FSGS) is a kidney disease that affects patients’ functioning and well-being. This study aimed to develop patient-reported…”
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An evaluation of the Acromegaly Treatment Satisfaction Questionnaire (Acro-TSQ) in adult patients with acromegaly, including correlations with other patient-reported outcome measures: data from two large multicenter international studies by Fleseriu, Maria, Fogelfeld, Leon, Gordon, Murray B., Sisco, Jill, Crosby, Ross D., Ludlam, William H., Haviv, Asi, Mathias, Susan D.

“…Purpose The Acromegaly Treatment Satisfaction Questionnaire (Acro-TSQ) is a new patient-reported outcome (PRO) measure for patients with acromegaly receiving…”
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Observed discordance between outcomes reported by acromegaly patients and their treating endocrinology medical provider by Geer, Eliza B., Sisco, Jill, Adelman, Daphne T., Ludlam, William H., Haviv, Asi, Gelbaum, Dana, Liu, Shuqian, Mathias, Susan D., Shi, Lizheng

“…Background Acromegaly patients, even those with IGF-1 values within the normal range receiving somatostatin receptor ligands (SRLs), often suffer from…”
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Development and content validation of a sunlight exposure diary in patients with erythropoietic protoporphyria by Mathias, Susan D., Burke, Laurie, Colwell, Hilary H., Mensing, George, Savage, Will, Naik, Hetanshi

“…Background Erythropoietic protoporphyria is a rare, inherited disorder presenting in early childhood with severe, painful phototoxicity. EPP has significant…”
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Use of the metastatic breast cancer progression (MBC-P) questionnaire to assess the value of progression-free survival for women with metastatic breast cancer by Hurvitz, Sara A., Lalla, Deepa, Crosby, Ross D., Mathias, Susan D.

“…While overall survival (OS) has historically been the primary endpoint for clinical trials in oncology, progression-free survival (PFS) has gained acceptance…”
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Validity and responsiveness of the Urticaria Activity and Impact Measure: A new patient-reported tool by Maurer, Marcus, Mathias, Susan D, Crosby, Ross D, Rajput, Yamina, Zazzali, James L

“…Chronic spontaneous urticaria (CSU), also known as chronic idiopathic urticaria, may produce hives, itch, and angioedema. The Urticaria Activity and Impact…”
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