Search Results - "Massey, Libby"

Aboriginal families living with MJD in remote Australia: questions of access and equity by Massey, Libby, Gilroy, John, Kowal, Emma, Doolan, Denise, Clough, Alan

“…Managing genetic disease using medically assisted reproductive technology is increasingly promoted as a feasible option, given revolutionary advances in…”
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A community-based co-designed genetic health service model for Aboriginal Australians by Elsum, Imogen, Massey, Libby, McEwan, Callum, LaGrappe, Desiree, Kowal, Emma, Savarirayan, Ravi, Baynam, Gareth, Jenkins, Misty, Garvey, Gail, Kelaher, Margaret

“…Background Aboriginal and Torres Strait Islander people experience a greater burden of disease and die younger than non-Indigenous Australians, with Aboriginal…”
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Investigating disparity in access to Australian clinical genetic health services for Aboriginal and Torres Strait Islander people by Luke, Joanne, Dalach, Philippa, Tuer, Lindsay, Savarirayan, Ravi, Ferdinand, Angeline, McGaughran, Julie, Kowal, Emma, Massey, Libby, Garvey, Gail, Dawkins, Hugh, Jenkins, Misty, Paradies, Yin, Pearson, Glenn, Stutterd, Chloe A., Baynam, Gareth, Kelaher, Margaret

“…Globally, there is a recognised need that all populations should be able to access the benefits of genomics and precision medicine. However, achieving this…”
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"This is my boy's health! Talk straight to me!" perspectives on accessible and culturally safe care among Aboriginal and Torres Strait Islander patients of clinical genetics services by Dalach, Philippa, Savarirayan, Ravi, Baynam, Gareth, McGaughran, Julie, Kowal, Emma, Massey, Libby, Jenkins, Misty, Paradies, Yin, Kelaher, Margaret

“…Aboriginal and Torres Strait Islander people do not enjoy equal access to specialist health services that adequately meet their needs. Clinical genetics…”
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'Staying strong on the inside and outside' to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia by Carr, Jennifer J, Lalara, Joyce, Lalara, Gayangwa, O'Hare, Gloria, Massey, Libby, Kenny, Nick, Pope, Kate E, Clough, Alan R, Lowell, Anne, Barker, Ruth N

“…Machado Joseph Disease (MJD) (spinocerebellar ataxia 3) is a hereditary neurodegenerative disease causing progressive ataxia and loss of mobility. It is the…”
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Culturally competent communication in Indigenous disability assessment: a qualitative study by Ferdinand, Angeline, Massey, Libby, Cullen, Jennifer, Temple, Jeromey, Meiselbach, Kristy, Paradies, Yin, Baynam, Gareth, Savarirayan, Ravi, Kelaher, Margaret

“…Indigenous people tend to exhibit a higher burden of disability than their non-Indigenous counterparts, and are often underserved by disability services…”
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Rehabilitation for ataxia study: protocol for a randomised controlled trial of an outpatient and supported home-based physiotherapy programme for people with hereditary cerebellar ataxia by Milne, Sarah C, Corben, Louise A, Roberts, Melissa, Szmulewicz, David, Burns, J, Grobler, Anneke C, Williams, Shannon, Chua, Jillian, Liang, Christina, Lamont, Phillipa J, Grootendorst, Alison C, Massey, Libby, Sue, Carolyn, Dalziel, Kim, LaGrappe, Desiree, Willis, Liz, Freijah, Aleka, Gerken, Paul, Delatycki, Martin B

“…IntroductionEmerging evidence indicates that rehabilitation can improve ataxia, mobility and independence in everyday activities in individuals with hereditary…”
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Sleep disorders among Aboriginal Australians with Machado-Joseph Disease: Quantitative results from a multiple methods study to assess the experience of people living with the disease and their caregivers by LaGrappe, Desireé, Massey, Libby, Kruavit, Anuk, Howarth, Timothy, Lalara, Gayangwa, Daniels, Bronwyn, Wunungmurra, Julie Gungunbuy, Flavell, Kimberley, Barker, Ruth, Flavell, Howard, Heraganahally, Subash S.

“…Machado-Joseph Disease (MJD), or Spinocerebellar Ataxia Type 3 (SCA3), is a genetic disorder that causes progressive muscle weakness, loss of motor control,…”
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Will the National Disability Insurance Scheme Improve the Lives of those Most in Need? Effective Service Delivery for People with Acquired Brain Injury and other Disabilities in Remote Aboriginal and Torres Strait Islander Communities by Stephens, Anne, Cullen, Jennifer, Massey, Libby, Bohanna, India

“…Aims of the National Disability Insurance Scheme (NDIS) - remote and regional areas of Australia lags behind more densely populated centres - Aboriginal and…”
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Goal‐Directed Rehabilitation Versus Standard Care for Individuals with Hereditary Cerebellar Ataxia: A Multicenter, Single‐Blind, Randomized Controlled Superiority Trial by Milne, Sarah C, Roberts, Melissa, Williams, Shannon, Chua, Jillian, Grootendorst, Alison C, Agostinelli, Genevieve, Grobler, Anneke C, Ross, Hannah L, Robinson, Amy, Grove, Kristen, Modderman, Gabrielle, Price, Annabel, Thomson, Megan, Massey, Libby, Liang, Christina, Kumar, Kishore R, Dalziel, Kim, Burns, Joshua, Sue, Carolyn M, Pathirana, Pubudu N, Horne, Malcolm, Gelfard, Nikki, Curd, Helen, Szmulewicz, David, Corben, Louise A, Delatycki, Martin B

“…Objective Rehabilitation is thought to reduce ataxia severity in individuals with hereditary cerebellar ataxia (HCA). This multicenter, randomized controlled…”
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Interrater Reliability of the Scale for the Assessment and Rating of Ataxia, Berg Balance Scale, and Functional Independence Measure Motor Domain in Individuals With Hereditary Cerebellar Ataxia by Milne, Sarah C., Roberts, Melissa, Ross, Hannah L., Robinson, Amy, Grove, Kristen, Modderman, Gabrielle, Williams, Shannon, Chua, Jillian, Grootendorst, Alison C., Massey, Libby, Szmulewicz, David J., Delatycki, Martin B., Corben, Louise A.

“…To determine the interrater reliability of the Scale for the Assessment and Rating of Ataxia (SARA), Berg Balance Scale (BBS), and motor domain of the FIM…”
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Augmentative and alternative communication for Aboriginal Australians: Developing core vocabulary for Yolŋu speakers by Amery, Rebecca, Wunungmurra, Julie Gungungbuy, Raghavendra, Parimala, Bukuḻatjpi, Gurimaŋu, Dikul Baker, Rachel, Gumbula, Farrah, Barker, Ruth, Theodoros, Deborah, Amery, Howard, Massey, Libby, Lowell, Anne

“…Yolŋu, Aboriginal people from Arnhem Land, Australia are at risk of Machado-Joseph disease, with progressive loss of speech. Yolŋu are interested in developing…”
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Designing augmentative and alternative communication systems with Aboriginal Australians: vocabulary representation, layout, and access by Amery, Rebecca, Wunungmurra, Julie Gungungbuy, Bukuḻatjpi, Gurimaŋu, Dikul Baker, Rachel, Gumbula, Farrah, Yunupingu, Elah, Raghavendra, Parimala, Barker, Ruth, Theodoros, Deborah, Amery, Howard, Massey, Libby, Lowell, Anne

“…Yolŋu (Aboriginal Australians of northeast Arnhem Land) are interested in developing augmentative and alternative communication (AAC) systems in their own…”
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Augmentative and Alternative Communication for Aboriginal Australians: Developing Core Vocabulary for Yol?u Speakers by Amery, Rebecca, Wunungmurra, Julie Gungungbuy, Raghavendra, Parimala, Buku?atjpi, Gurima?u, Dikul Baker, Rachel, Gumbula, Farrah, Barker, Ruth, Theodoros, Deborah, Amery, Howard, Massey, Libby, Lowell, Anne

“…Yol?u, Aboriginal people from Arnhem Land, Australia are at risk of Machado-Joseph disease, with progressive loss of speech. Yol?u are interested in developing…”
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Yolŋu with Machado-Joseph disease: Exploring communication strengths and needs by Amery, Rebecca, Wunungmurra, Julie G., Gondarra, Joanne, Gumbula, Farrah, Raghavendra, Parimala, Barker, Ruth, Theodoros, Deborah, Amery, Howard, Massey, Libby, Lowell, Anne

“…Purpose: Yolŋu are Aboriginal Australians from northeast Arnhem Land in the Northern Territory (NT). Machado-Joseph disease (MJD) prevalence in the NT…”
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Indigenous Genetics and Rare Diseases: Harmony, Diversity and Equity by Baynam, Gareth, Molster, Caron, Bauskis, Alicia, Kowal, Emma, Savarirayan, Ravi, Kelaher, Margaret, Easteal, Simon, Massey, Libby, Garvey, Gail, Goldblatt, Jack, Pachter, Nicholas, Weeramanthri, Tarun S, Dawkins, Hugh J S

“…Advances in our understanding of genetic and rare diseases are changing the face of healthcare. Crucially, the global community must implement these advances…”
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