Search Results - "Mackley, Jonathan"
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“Will she live a long happy life?” Parents' concerns for their children with Fontan circulation
Published in International journal of cardiology. Heart & vasculature (01-03-2018)“…Families of children at the worst end of the congenital heart disease endure a significant burden which is often not clearly delineated in the clinical…”
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Journal Article -
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Towards improving the lived experience of adult congenital heart patients: suggestions for health care practitioners
Published in Cardiology in the young (01-03-2024)“…What steps may clinicians looking after adult congenital heart patients take to improve the care they provide? An adult with complex congenital heart disease…”
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Journal Article -
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“How long will I continue to be normal?” Adults with a Fontan circulation's greatest concerns
Published in International journal of cardiology (01-06-2018)“…Little is known about adults living with a Fontan circulation's concerns outside the scope of their clinical outcomes. We examined adults with a Fontan…”
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Journal Article