Search Results - "Mackley, Jonathan"

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  1. 1

    “Will she live a long happy life?” Parents' concerns for their children with Fontan circulation by du Plessis, Karin, Peters, Rebecca, King, Ingrid, Robertson, Kirsty, Mackley, Jonathan, Maree, Rachel, Stanley, Tracy, Pickford, Louise, Rose, Brian, Orchard, Matthew, Stewart, Helen, d'Udekem, Yves

    “…Families of children at the worst end of the congenital heart disease endure a significant burden which is often not clearly delineated in the clinical…”
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    Journal Article
  2. 2

    Towards improving the lived experience of adult congenital heart patients: suggestions for health care practitioners by Mackley, Jonathan, Ng, Alexandrea, Menahem, Samuel

    Published in Cardiology in the young (01-03-2024)
    “…What steps may clinicians looking after adult congenital heart patients take to improve the care they provide? An adult with complex congenital heart disease…”
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    Journal Article
  3. 3

    “How long will I continue to be normal?” Adults with a Fontan circulation's greatest concerns by du Plessis, Karin, Peters, Rebecca, King, Ingrid, Robertson, Kirsty, Mackley, Jonathan, Maree, Rachel, Stanley, Tracy, Pickford, Louise, Rose, Brian, Orchard, Matthew, Stewart, Helen, d'Udekem, Yves

    Published in International journal of cardiology (01-06-2018)
    “…Little is known about adults living with a Fontan circulation's concerns outside the scope of their clinical outcomes. We examined adults with a Fontan…”
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    Journal Article