Search Results - "MILLER, Deborah M"

Components of a successful community-based exercise program for individuals with Parkinson’s disease: Results from a participant survey by Rosenfeldt, Anson B., Koop, Mandy Miller, Penko, Amanda L., Zimmerman, Eric, Miller, Deborah M., Alberts, Jay L.

“…The aim of the project was to examine the personal beliefs, motivators, and barriers in people with Parkinson’s disease (PwPD) relating to their participation…”
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Obtaining Patient Priorities in a Multiple Sclerosis Comprehensive Care Center: Beyond Patient-Reported Outcomes by Miller, Deborah M, Moss, Brandon, Rose, Susannah, Li, Hong, Schindler, David, Weber, Malory, Planchon, Sarah M, Alberts, Jay, Boissy, Adrienne, Bermel, Robert

“…Background: In order to provide patient center care, our multiple sclerosis (MS) clinic assesses patient concerns before clinical encounters, first by asking…”
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Evolution of Patient-Reported Outcomes and Their Role in Multiple Sclerosis Clinical Trials by Nowinski, Cindy J., Miller, Deborah M., Cella, David

“…Patient-reported outcomes (PROs) are playing an increasing role in multiple sclerosis (MS) research and practice, and are essential for understanding the…”
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Stopping disease-modifying therapy in relapsing and progressive multiple sclerosis by Hartung, Hans-Peter, Meuth, Sven G., Miller, Deborah M., Comi, Giancarlo

“…To assess the reasons for considering discontinuation of disease-modifying therapies (DMTs)in patients with multiple sclerosis (MS). Relevant aspects of the…”
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Processing speed test: Validation of a self-administered, iPad®-based tool for screening cognitive dysfunction in a clinic setting by Rao, Stephen M, Losinski, Genna, Mourany, Lyla, Schindler, David, Mamone, Bernadett, Reece, Christine, Kemeny, Danielle, Narayanan, Sridar, Miller, Deborah M, Bethoux, Francois, Bermel, Robert A, Rudick, Richard, Alberts, Jay

“…Background: Cognitive dysfunction is common in multiple sclerosis (MS) patients and has important consequences for daily activities, yet, unlike motor…”
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Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations by Snyder, Claire F., Aaronson, Neil K., Choucair, Ali K., Elliott, Thomas E., Greenhalgh, Joanne, Halyard, Michele Y., Hess, Rachel, Miller, Deborah M., Reeve, Bryce B., Santana, Maria

“…Purpose While clinical care is frequently directed at making patients "feel better," patients' reports on their functioning and well-being (patient-reported…”
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Assessing diagnosis disclosure and concealment in multiple sclerosis: Building a framework for moving forward by P Moss, Brandon, Miller, Deborah M

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Multiple sclerosis subgroups: Data-driven clusters based on patient-reported outcomes and a large clinical sample by De Nadai, Alessandro S, Zamora, Ryan J, Finch, Alyse, Miller, Deborah M, Ontaneda, Daniel, Gunzler, Douglas D, Briggs, Farren S

“…While standard clinical assessments provide great value for people with multiple sclerosis (PwMS), they are limited in their ability to characterize patient…”
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Mobility trajectories in multiple sclerosis: A comparative study of timed 25-foot walk and a patient-reported outcome measure by Briggs, Farren BS, Gunzler, Douglas D, Miller, Deborah M, Ontaneda, Daniel, De Nadai, Alessandro S

“…Background: Loss of mobility is common in persons with multiple sclerosis (PwMS), but little is known about this impairment from the patient’s perspective…”
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Validating Neuro-QoL short forms and targeted scales with people who have multiple sclerosis by Miller, Deborah M, Bethoux, Francois, Victorson, David, Nowinski, Cindy J, Buono, Sarah, Lai, Jin-Shei, Wortman, Katy, Burns, James L, Moy, Claudia, Cella, David

“…Background: Multiple sclerosis (MS) is a chronic, progressive, and disabling disease of the central nervous system with dramatic variations in the combination…”
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Long-term trajectories of ambulatory impairment in multiple sclerosis by Gunzler, Douglas D, De Nadai, Alessandro S, Miller, Deborah M, Ontaneda, Daniel, Briggs, Farren BS

“…Background: Ambulatory impairment is a common and complex manifestation of multiple sclerosis (MS), and longitudinal patterns are not well understood…”
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The MSOAC approach to developing performance outcomes to measure and monitor multiple sclerosis disability by LaRocca, Nicholas G, Hudson, Lynn D, Rudick, Richard, Amtmann, Dagmar, Balcer, Laura, Benedict, Ralph, Bermel, Robert, Chang, Ih, Chiaravalloti, Nancy D, Chin, Peter, Cohen, Jeffrey A, Cutter, Gary R, Davis, Mat D, DeLuca, John, Feys, Peter, Francis, Gordon, Goldman, Myla D, Hartley, Emily, Kapoor, Raj, Lublin, Fred, Lundstrom, Gary, Matthews, Paul M, Mayo, Nancy, Meibach, Richard, Miller, Deborah M, Motl, Robert W, Mowry, Ellen M, Naismith, Rob, Neville, Jon, Panagoulias, Jennifer, Panzara, Michael, Phillips, Glenn, Robbins, Ann, Sidovar, Matthew F, Smith, Kathryn E, Sperling, Bjorn, Uitdehaag, Bernard MJ, Weaver, Jerry

“…Background: The Multiple Sclerosis Outcome Assessments Consortium (MSOAC) was formed by the National MS Society to develop improved measures of multiple…”
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A Scoring Algorithm for Deriving Utility Values from the Neuro-QoL for Patients with Multiple Sclerosis by Matza, Louis S., Phillips, Glenn, Dewitt, Barry, Stewart, Katie D., Cella, David, Feeny, David, Hanmer, Janel, Miller, Deborah M., Revicki, Dennis A.

“…Introduction The Neuro-QoL is a standardized approach to assessing health-related quality of life in people with neurological conditions, including multiple…”
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Idio Scale Judgment: evaluation of a new method for estimating responder thresholds by Cook, Karon F., Kallen, Michael A., Coon, Cheryl D., Victorson, David, Miller, Deborah M.

“…Purpose To pilot the newly developed Idio Scale Judgment method for estimating the amount of score change that matters to patients (i.e., change thresholds)…”
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Multiple Sclerosis Performance Test: Technical Development and Usability by Rhodes, Jane K., Schindler, David, Rao, Stephen M., Venegas, Fernando, Bruzik, Efrosini T., Gabel, Wendy, Williams, James R., Phillips, Glenn A., Mullen, Colleen C., Freiburger, Jaime L., Mourany, Lyla, Reece, Christine, Miller, Deborah M., Bethoux, Francois, Bermel, Robert A., Krupp, Lauren B., Mowry, Ellen M., Alberts, Jay, Rudick, Richard A.

“…Introduction In the clinic, the assessment of patients with multiple sclerosis (MS) is typically qualitative and non-standardized. Objectives To describe the…”
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Clinical perspective on clinical outcome assessments in neurosarcoidosis by Moss, Brandon P, Miller, Deborah M, Culver, Daniel A

“…There are no validated clinical outcome assessments (COAs) used in neurosarcoidosis. We surveyed clinicians who treat patients with neurosarcoidosis to…”
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Quality of Life in Multiple Sclerosis: Determinants, Measurement, and Use in Clinical Practice by Miller, Deborah M., Allen, Rebecca

“…Multiple sclerosis (MS) is a complex demyelinating disease with a relatively unpredictable course. It is well established that MS has a significant impact on…”
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Implementing patient-reported outcomes assessment in clinical practice: a review of the options and considerations by Snyder, Claire F., Aaronson, Neil K., Choucair, Ali K., Elliott, Thomas E., Greenhalgh, Joanne, Halyard, Michele Y., Hess, Rachel, Miller, Deborah M., Reeve, Bryce B., Santana, Maria

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Association of socioeconomic disadvantage and neighborhood disparities with clinical outcomes in multiple sclerosis patients by Abbatemarco, Justin R., Carlson, Alise, Ontaneda, Daniel, McGinley, Marisa, Bermel, Robert A., Husak, Scott, Bruckman, David, Schold, Jesse D., Miller, Deborah M.

“…•Neighborhood-level disadvantage is associated with worsening MS disability.•Targeted interventions could lead to improved care.•Neighborhood-level…”
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Comparison of time to clinically meaningful improvement in quality of life in neurological disorders in patients treated with natalizumab versus ocrelizumab by Hersh, Carrie M, Pang, Menglan, Miller, Deborah M, McGinley, Marisa P, Hyland, Megan, Ziemssen, Tjalf, Avila, Robin L

“…To assess time to improvement in Quality of Life in Neurological Disorders (Neuro-QoL) domains for patients treated with natalizumab versus ocrelizumab…”
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