'Timing it Right': needs of African American adults with stroke and their caregivers across the care continuum

'Timing it Right': needs of African American adults with stroke and their caregivers across the care continuum

Objective: African Americans are disproportionately affected by stroke in the United States (US). The purpose of this study is to explore experiences, wants, and needs of African Americans with stroke and their family caregivers residing in the stroke belt across the care continuum using the 'T...

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Bibliographic Details
Published in:Ethnicity & health Vol. 27; no. 2; pp. 420 - 434
Main Authors: Burns, Suzanne Perea, Lutz, Barabara J., Magwood, Gayenell S.
Format: Journal Article
Language:English
Published: England Taylor & Francis 01-02-2022
Taylor & Francis Ltd
Subjects:
Adult
African Americans
African cultural groups
Audio data
Caregivers
Community
community integration
Community living
community medicine
Community-based programs
Continuity of Patient Care
Families & family life
Focus groups
Frame analysis
Health care delivery
Health services
health status disparities
Humans
Minority & ethnic groups
minority health
Needs
Qualitative analysis
Qualitative Research
Religion
Religious beliefs
Secondary analysis
Social Support
Stroke
Stroke - therapy
Timing
United States
United States
United States > US
minority health
health status disparities
Stroke
community medicine
community integration
continuity of patient care
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Summary:Objective: African Americans are disproportionately affected by stroke in the United States (US). The purpose of this study is to explore experiences, wants, and needs of African Americans with stroke and their family caregivers residing in the stroke belt across the care continuum using the 'Timing It Right' (TIR) framework as a conceptual guide. Design: We conducted a series of focus groups among 20 African Americans living with stroke and 19 family caregivers. Focus groups were audio-recorded and transcribed verbatim. For this secondary analysis, we coded qualitative data using the TIR framework. Results: Participants in this sample identified pre-stroke needs in addition to the TIR phases that span across the care continuum and into community living. We identified four important contextual factors and real-world conditions that operate in the background and influence the post-stroke needs of this specific population across the TIR framework: (1) religion, faith, and church, (2) healthcare delivery, (3) community, and (4) sentinel events. Conclusions: We propose a TIR model that expands upon the original TIR framework which includes factors important for consideration when developing and delivering community-based interventions among African Americans with stroke and family caregivers in the southeastern US.
ISSN:1355-7858
1465-3419
DOI:10.1080/13557858.2019.1693512