Search Results - "Lovley, Andrew"

Burden of hereditary transthyretin amyloidosis on quality of life by Yarlas, Aaron, Gertz, Morie A., Dasgupta, Noel R., Obici, Laura, Pollock, Michael, Ackermann, Elizabeth J., Lovley, Andrew, Kessler, Asia Sikora, Patel, Pankaj A., White, Michelle K., Guthrie, Spencer D.

“…ABSTRACT Introduction Hereditary transthyretin (hATTR) amyloidosis is a progressive, degenerative disease, with peripheral neuropathy, cardiomyopathy, and…”
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The impact of inotersen on Neuropathy Impairment Score in patients with hereditary transthyretin amyloidosis with polyneuropathy by Yarlas, Aaron, Lovley, Andrew, Brown, Duncan, Vera-Llonch, Montserrat, Khella, Sami, Karam, Chafic

“…Patients with hereditary transthyretin amyloidosis (ATTRv) frequently experience symptoms of polyneuropathy (PN) that worsen over time and impair daily…”
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Inotersen preserves or improves quality of life in hereditary transthyretin amyloidosis by Coelho, Teresa, Yarlas, Aaron, Waddington-Cruz, Marcia, White, Michelle K., Sikora Kessler, Asia, Lovley, Andrew, Pollock, Michael, Guthrie, Spencer, Ackermann, Elizabeth J., Hughes, Steven G., Karam, Chafic, Khella, Sami, Gertz, Morie, Merlini, Giampaolo, Obici, Laura, Schmidt, Hartmut H., Polydefkis, Michael, Dyck, P. James B., Brannagan III, Thomas H., Conceição, Isabel, Benson, Merrill D., Berk, John L.

“…Objective To examine the impact on quality of life (QOL) of patients with hATTR amyloidosis with polyneuropathy treated with inotersen (Tegsedi™) versus…”
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Patient-reported burden of hereditary transthyretin amyloidosis on functioning and well-being by Lovley, Andrew, Raymond, Kimberly, Guthrie, Spencer D., Pollock, Michael, Sanchorawala, Vaishali, White, Michelle K.

“…Background Hereditary transthyretin (hATTR) amyloidosis is a rare, systemic, progressive, and life-threatening disease in which transthyretin proteins misfold…”
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The Inflammatory Bowel Disease Questionnaire in Randomized Controlled Trials of Treatment for Ulcerative Colitis: Systematic Review and Meta-Analysis by Yarlas, Aaron, Maher, Stephen, Bayliss, Martha, Lovley, Andrew, Cappelleri, Joseph C, Bushmakin, Andrew G, DiBonaventura, Marco D

“…The 32-item Inflammatory Bowel Disease Questionnaire (IBDQ-32) is the most frequently used instrument to capture disease-specific quality of life in randomized…”
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Qualitative research with patients and caregivers of patients with PIK3CA related overgrowth spectrum: content validity of clinical outcome assessments by Raymond, Kimberly, Vallow, Susan, Saucier, Cory, Jackson, Kristi, White, Michelle K., Lovley, Andrew, D’Alessio, Denise

“…Background PIK3CA-Related Overgrowth Spectrum (PROS) are rare syndromes caused by a mutation in the PIK3CA gene, including fibroadipose hyperplasia or…”
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Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis by Becker, Brandon, Raymond, Kimberly, Hawkes, Carol, Foster, April Mitchell, Lovley, Andrew, Saucier, Cory, Rizio, Avery A., Bjorner, Jakob Bue, Kosinski, Mark

“…Background Patients with rheumatoid arthritis (RA) commonly experience pain despite the availability of disease-modifying treatments. Sleep disturbances are…”
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Psychometric validation of the work productivity and activity impairment questionnaire in ulcerative colitis: results from a systematic literature review by Yarlas, Aaron, Maher, Stephen M., Bayliss, Martha S., Lovley, Andrew, Cappelleri, Joseph C., DiBonaventura, Marco D.

“…Patients with ulcerative colitis, a type of inflammatory bowel disease, report negative impacts of disease symptoms on work-related outcomes, including…”
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Responder Analysis for the Modified Neuropathy Impairment Score + 7 and the Norfolk-Quality of Life-Diabetic Neuropathy Questionnaire in Patients with Hereditary Transthyretin Amyloidosis with Polyneuropathy (4973) by Yarlas, Aaron, Lovley, Andrew, Llonch, Montserrat Vera

“…Abstract only…”
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Long-Term Impact of Inotersen on Health-Related Quality-of-Life for Hereditary Transthyretin Amyloidosis with Polyneuropathy: NEURO-TTR Open-Label Extension at Two Years (4640) by Yarlas, Aaron, Lovley, Andrew, Pollock, Michael, Llonch, Montserrat Vera

“…Abstract only…”
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THE BURDEN OF CARDIOMYOPATHY ALONE VERSUS MULTI-ORGAN DISEASE ON CAREGIVERS OF PATIENTS WITH ATTR-CM: RESULTS FROM AMYLOIDOSIS RESEARCH CONSORTIUM ATTR SURVEY by Rebello, Sabrina, Hsu, Kristen, Berk, John, Alexander, Kevin Michael, Polydefkis, Michael, Lovley, Andrew, Lousada, Isabelle, Maurer, Mathew S.

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HIGHER IMPACTS OF MULTI-ORGAN INVOLVEMENT ON HEALTH-RELATED QUALITY OF LIFE FOR ATTR-CM PATIENTS: RESULTS FROM AMYLOIDOSIS RESEARCH CONSORTIUM ATTR SURVEY by Rebello, Sabrina, Hsu, Kristen, Berk, John L., Alexander, Kevin Michael, Polydefkis, Michael, Lovley, Andrew, Lousada, Isabelle, Maurer, Mathew S.

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Responder analysis for neuropathic impairment and quality-of-life assessment in patients with hereditary transthyretin amyloidosis with polyneuropathy in the NEURO-TTR study by Yarlas, Aaron, Lovley, Andrew, Brown, Duncan, Kosinski, Mark, Vera-Llonch, Montserrat

“…Objective Hereditary transthyretin amyloidosis with polyneuropathy (ATTRv-PN) is a rare disease characterized by rapid neuropathic progression. In pivotal…”
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Increase in Polyneuropathy Disability Stage Does Not Predict Neuropathic Progression in Patients with Hereditary Transthyretin Amyloidosis with Polyneuropathy Receiving Inotersen: Results from the NEURO-TTR Study (2333) by Yarlas, Aaron, Llonch, Montserrat Vera, Brown, Duncan, Lovley, Andrew, Khella, Sami, Karam, Chafic

“…Abstract only…”
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Healthcare Resource Utilization And Disease Burden In Patients With Transthyretin Amyloidosis With Cardiomyopathy: Results From The Amyloidosis Research Consortium Transthyretin Amyloidosis Burden Of Illness Study by Rebello, Sabrina, Hsu, Kristen, Berk, John, Alexander, Kevin, Polydefkis, Michael, Gibbs, Simon, Lovley, Andrew, Lousada, Isabelle, Maurer, Mathew

“…Transthyretin amyloidosis (ATTR) is a rare and often fatal disease caused by the inappropriate folding of the protein, transthyretin, which deposits in the…”
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A concept elicitation study to understand the relationship between sleep and pain in rheumatoid arthritis and axial spondyloarthritis by Raymond, Kimberly, Chen, Wen-Hung, Bracher, Marguerite, Foster, April, Lovley, Andrew, Saucier, Cory, Jackson, Kristi, McDermott, Eleanor J.

“…Purpose This qualitative study (GSK study: 213635) was designed to better understand sleep disturbance as experienced by individuals with rheumatoid arthritis…”
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FRI-258 Pruritus is frequent, burdensome, and persistent in metabolic dysfunction-associated steatohepatitis (MASH) and primary biliary cholangitis (PBC): a 6-month longitudinal study by Gungabissoon, Usha, Hunnicutt, Jake, McDermott, Eleanor, Lovley, Andrew, Frazer, Monica, LaGasse, Kaitlin, Kosinski, Mark, McCausland, Kristen, Halliday, Anna, McGirr, Ashleigh, Smith, Helen T., Hirschfield, Gideon M., Trivedi, Palak J.

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Quality of Life (QOL) in Patients with Transthyretin Amyloidosis Accompanied by Peripheral Neuropathy (PN) (P3.9-062) by Kessler, Asia Sikora, Yarlas, Aaron, Lovley, Andrew, McCausland, Kristen L., Guthrie, Spencer, Pollock, Michael, White, Michelle K.

“…Abstract only…”
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CLINICAL OUTCOME ASSESSMENT SCORES FOR PATIENTS WITH TRANSTHYRETIN AMYLOIDOSIS WITH OR WITHOUT ACCOMPANYING CARDIOMYOPATHY OR CONGESTIVE HEART FAILURE by Kessler, Asia Sikora, Yarlas, Aaron, Lovley, Andrew, McCausland, Kristen L., Guthrie, Spencer, Pollock, Michael, White, Michelle K.

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Impact of Inotersen on Subgroups of Patients with Hereditary TTR Amyloidosis: Results from a Double-Blind Placebo-Controlled Trial by Yarlas, Aaron, Merlini, Giampaolo, White, Michelle K, Sikora Kessler, Asia, Lovley, Andrew, Guthrie, Spencer D, Pollock, Michael, Gertz, Morie A.

“…Background: Hereditary transthyretin amyloidosis (hATTR) is a rare, systemic, progressive, and fatal condition in which misfolded proteins, mainly produced in…”
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