Search Results - "Lipstein, Ellen"
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Shared Decision Making and Choice for Elective Surgical Care: A Systematic Review
Published in Otolaryngology-head and neck surgery (01-03-2016)“…Objective Shared decision making (SDM), an integrative patient-provider communication process emphasizing discussion of scientific evidence and patient/family…”
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What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making
Published in Medical decision making (01-03-2012)“…Background. With the increasing complexity of decisions in pediatric medicine, there is a growing need to understand the pediatric decision-making process…”
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Real Life Clinic Visits Do Not Match the Ideals of Shared Decision Making
Published in The Journal of pediatrics (01-07-2014)“…Objective To use observation to understand how decisions about higher-risk treatments, such as biologics, are made in pediatric chronic conditions. Methods…”
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“I'm the One Taking It”: Adolescent Participation in Chronic Disease Treatment Decisions
Published in Journal of adolescent health (01-08-2013)“…Abstract Purpose To understand adolescents' roles and preferences in chronic disease treatment decisions, using biologic therapy decisions as an example…”
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“I Couldn’t See a Downside”: Decision-Making About Gender-Affirming Hormone Therapy
Published in Journal of adolescent health (01-08-2019)“…The aim of the article was to understand adolescents' and parents' decision-making process related to gender-affirming hormone therapy (GAHT). We conducted…”
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Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment
Published in Journal of adolescent health (01-03-2023)“…Due to the intertwining of medical and social decision-making, new approaches to shared decision-making are likely needed for supporting decisions related to…”
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Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis
Published in Health expectations : an international journal of public participation in health care and health policy (01-12-2022)“…Introduction This pilot, randomized controlled trial aimed to evaluate the usability, among adolescents and young adults (AYAs) with ulcerative colitis (UC),…”
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Evolution of Pediatric Chronic Disease Treatment Decisions: A Qualitative, Longitudinal View of Parents’ Decision-Making Process
Published in Medical decision making (01-08-2015)“…Background. In the context of pediatric chronic conditions, patients and families are called upon repeatedly to make treatment decisions. However, little is…”
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Balancing survival and suffering: factors influencing parental decision making after periviable consultation
Published in Journal of perinatology (09-11-2024)“…The objective of this study was to identify factors birthing parents consider related to potential resuscitation of a periviable infant.OBJECTIVEThe objective…”
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Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions
Published in Academic pediatrics (01-11-2022)“…Shared decision making (SDM) is recommended for common pediatric conditions; however, there are limited data on measures of SDM in pediatrics. This study…”
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Integrating shared decision making into trial consent: A nested, cluster-randomized trial
Published in Patient education and counseling (01-07-2021)“…•Shared decision making can be integrated into trial consent.•Shared decision making tools can assist research staff in the consent process.•Many potential…”
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Measure of Caregiver Attention-Deficit/Hyperactivity Disorder Knowledge Is Responsive to Decision Aid on Treatment for Attention-Deficit/Hyperactivity Disorder
Published in Academic pediatrics (01-04-2024)“…Adapt and test a measure of knowledge for caregivers of children with attention-deficit/hyperactivity disorder (ADHD) and evaluate the impact of the…”
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Decision making about anti-TNF therapy: A pilot trial of a shared decision-making intervention
Published in Patient education and counseling (01-05-2022)“…•Shared decision making is under used in pediatric inflammatory bowel disease care.•A disease-focused decision support intervention increases shared decision…”
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Young adults' reasoning for involving a parent in a genomic decision‐making research study
Published in Journal of genetic counseling (01-06-2024)“…Young adults have increasing genomic testing opportunities; however, little is known about how equipped they feel about making decisions to learn personal…”
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Physicians' Perceptions of Shared Decision Making in Chronic Disease and Its Barriers and Facilitators
Published in The Journal of pediatrics (01-04-2016)“…This study assessed pediatric physicians' use of shared decision making (SDM) in 2 chronic conditions. Most physicians indicated that parent and adolescent…”
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An Emerging Field of Research: Challenges in Pediatric Decision Making
Published in Medical Decision Making (01-04-2015)“…There is growing interest in pediatric decision science, spurred by policies advocating for children’s involvement in medical decision making. Challenges…”
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Shared Decision Making About Starting anti-TNFs: A Pediatric Perspective
Published in Journal of pediatric gastroenterology and nutrition (01-03-2019)“…ABSTRACTShared decision making (SDM) is central to patient-centered medicine and has the potential to improve outcomes for pediatric patients with inflammatory…”
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Patient Preferences in Diagnostic Imaging: A Scoping Review
Published in The patient : patient-centered outcomes research (01-11-2023)“…Background As new diagnostic imaging technologies are adopted, decisions surrounding diagnostic imaging become increasingly complex. As such, understanding…”
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High Levels of Decisional Conflict and Decision Regret When Making Decisions About Biologics
Published in Journal of pediatric gastroenterology and nutrition (01-12-2016)“…ABSTRACT Objectives: The aim of the study was to understand the association between parents’ perceptions of the decision process and the decision outcomes in…”
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