Perception towards palliative care among patients with pulmonary hypertension in malaysia: a correlation with disease status

Perception towards palliative care among patients with pulmonary hypertension in malaysia: a correlation with disease status

This study aimed to describe the perception of Malaysian patients with pulmonary hypertension towards palliative care and their receptivity towards palliative care. This was a cross-sectional, single-centre study conducted via questionnaire. Patients aged 18 years old and above, who were diagnosed w...

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Bibliographic Details
Published in:Cardiology in the young Vol. 34; no. 4; p. 900
Main Authors: Tye, Sue Kiat, Razali, Norazlina Susila, Ahmad Shauqi, Shakila Amira, Azeman, Nor Athirah, Basran, Nurul Fazira, Liew, Janet Huey Jing, Leong, Ming Chern
Format: Journal Article
Language:English
Published: England 01-04-2024
Subjects:
Adolescent
Adult
Cross-Sectional Studies
Female
Humans
Hypertension, Pulmonary - diagnosis
Malaysia
Middle Aged
Natriuretic Peptide, Brain
Palliative Care
Peptide Fragments
Perception
Young Adult
Malaysia
terminal disease
heart failure
palliative care
Pulmonary hypertension
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Summary:This study aimed to describe the perception of Malaysian patients with pulmonary hypertension towards palliative care and their receptivity towards palliative care. This was a cross-sectional, single-centre study conducted via questionnaire. Patients aged 18 years old and above, who were diagnosed with non-curable pulmonary hypertension were recruited and given the assessment tool - perceptions of palliative care instrument electronically. The severity of pulmonary hypertension was measured using WHO class, N-terminal pro B-type natriuretic peptide and the 6-minute walking test distance. A total of 84 patients [mean age: 35 ±11 years, female: 83.3%, median N-terminal pro B-type natriuretic peptide: 491 pg/ml (interquartile range: 155,1317.8), median 6-minute walking test distance: 420m (interquartile range: 368.5, 480m)] completed the questionnaires. Patients with a higher WHO functional class and negative feelings (r = 0.333, p = 0.004), and cognitive reaction to palliative care: hopeless (r = 0.340, p = 0.003), supported (r = 0.258, p = 0.028), disrupted (r = 0.262, p = 0.025), and perception of burden (r = 0.239, p = 0.041) are more receptive to palliative care. WHO class, N-terminal pro B-type natriuretic peptide, and 6-minute walking test distance were not associated with higher readiness for palliative care. In logistic regression analyses, patients with positive feelings (β = 2.240, p = < 0.05), and practical needs (β = 1.346, p = < 0.05), were more receptive to palliative care. Disease severity did not directly influence patients' readiness for palliative care. Patients with a positive outlook were more receptive to palliative care.
ISSN:1467-1107
DOI:10.1017/S1047951123003773