Patients’ Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer

Patients’ Perspectives on What Makes a Better Care Experience While Undergoing Treatment for Oropharyngeal Dysphagia Secondary to Head and Neck Cancer

Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients’ perspectives on what makes a better care experience while u...

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Bibliographic Details
Published in:Dysphagia Vol. 35; no. 4; pp. 702 - 716
Main Authors: Checklin, Martin, Bain, Jessica, Bath, Lucy, Lethbridge, Kate
Format: Journal Article
Language:English
Published: New York Springer US 01-08-2020
Springer
Springer Nature B.V
Subjects:
Care and treatment
Deglutition disorders
Dysphagia
Gastroenterology
Head & neck cancer
Head and neck cancer
Hepatology
Imaging
Medical research
Medicine
Medicine & Public Health
Medicine, Experimental
Motivation
Original Article
Otorhinolaryngology
Patients
Radiology
Rehabilitation
Australia
Deglutition and deglutition disorders
Head and neck cancer
Oncology
Dysphagia
Rehabilitation
Patients’ perspectives
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Summary:Patients’ perceptions on what makes a better care experience for head and neck cancer (HNca) have not been widely sought. Patients’ perceptions can play a crucial role in shaping quality care and client involvement. To investigate patients’ perspectives on what makes a better care experience while undergoing rehabilitation for oropharyngeal dysphagia secondary to HNca. Qualitative data were collected in the form of semi-structured interviews from eight patients after they had undergone rehabilitation for HNca. The data were thematically analysed by two researchers independently. Six themes, plus subthemes, were identified. These themes were Supportive network is essential; Reassurance from staff professionalism; Access to service; Using own motivation and resilience; Receiving the right information and Ongoing shock and adjustment. Results are discussed in context of the literature and clinical implications and future research are recommended. Collation of patients’ perspectives is valuable to increase insight into what makes a better rehabilitative journey for patients with HNca. Rehabilitation that is holistic, specialised and patient-specific is highly valued by patients with HNca.
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ISSN:0179-051X
1432-0460
DOI:10.1007/s00455-019-10077-y