Search Results - "Law, J. Kiely"

Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry by Daniels, Amy M., Rosenberg, Rebecca E., Anderson, Connie, Law, J. Kiely, Marvin, Alison R., Law, Paul A.

“…Growing interest in autism spectrum disorder (ASD) research requires increasingly large samples to uncover epidemiologic trends; such a large dataset is…”
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Elopement Patterns and Caregiver Strategies by Andersen, Allan M., Law, J. Kiely, Marvin, Alison R., Lipkin, Paul H.

“…The Interactive Autism Network (IAN) administered a survey to caregivers of children with Autism Spectrum Disorder (ASD) on their interventions for elopement…”
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Sex differences in employment and supports for adults with autism spectrum disorder by Taylor, Julie Lounds, Smith DaWalt, Leann, Marvin, Alison R, Law, J Kiely, Lipkin, Paul

“…This study explored sex differences in employment, reasons for unemployment, benefits, and supports among a large, international sample of adults with autism…”
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Psychotropic Medication Use Among Children With Autism Spectrum Disorders Enrolled in a National Registry, 2007–2008 by Rosenberg, Rebecca E., Mandell, David S., Farmer, Janet E., Law, J. Kiely, Marvin, Alison R., Law, Paul A.

“…Patterns of current psychotropic medication use among 5,181 children with autism spectrum disorders (ASD) enrolled in a Web-based registry were examined…”
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Early Pandemic Experiences of Autistic Adults: Predictors of Psychological Distress by Bal, Vanessa H., Wilkinson, Ellen, White, L. Casey, Law, J. Kiely, Feliciano, Pamela, Chung, Wendy K.

“…The COVID‐19 pandemic has disrupted lives around the world. Autistic adults are at higher risk for co‐occurring medical and psychiatric conditions and may be…”
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Accuracy of phenotyping of autistic children based on internet implemented parent report by Lee, Hane, Marvin, Alison R., Watson, Tamara, Piggot, Judith, Law, J. Kiely, Law, Paul A., Constantino, John N., Nelson, Stanley F.

“…While strong familial evidence supports a substantial genetic contribution to the etiology of autism spectrum disorders (ASD), specific genetic abnormalities…”
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Effectiveness of multimodal participant recruitment in SPARK, a large, online longitudinal research study of autism by Daniels, Amy M, Law, J Kiely, Green Snyder, LeeAnne, Diehl, Katharine, Goin-Kochel, Robin P, Feliciano, Pamela, Chung, Wendy K

“…SPARK launched in 2016 to build a US cohort of autistic individuals and their family members. Enrollment includes online consent to share data and optional…”
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Evidence-based recruitment strategies for clinical research: Study personnel's and research participants' perceptions about successful methods of outreach for a U.S. Autism-Research Cohort by Goin-Kochel, Robin P, Lozano, Ivana, Duhon, Gabrielle, Marzano, Gabriela, Daniels, Amy, Law, J Kiely, Diehl, Katharine, Green Snyder, LeeAnne, Feliciano, Pamela, Chung, Wendy K

“…Under enrollment of participants in clinical research is costly and delays study completion to impact public health. Given that research personnel make…”
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Trends in Autism Spectrum Disorder Diagnoses: 1994–2007 by Rosenberg, Rebecca E., Daniels, Amy M., Law, J. Kiely, Law, Paul A., Kaufmann, Walter E.

“…We analyzed predictors of parent-reported initial diagnosis (autistic disorder [AD], pervasive developmental disorder-not otherwise specified [PDD-NOS],…”
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Early Antibiotics and Childhood Obesity: Do Future Risks Matter to Parents and Physicians? by Lipstein, Ellen A., Block, Jason P., Dodds, Cassandra, Forrest, Christopher B., Heerman, William J., Law, J. Kiely, Lunsford, Douglas, Winkler, Paula, Finkelstein, Jonathan A.

“…To understand how parents and physicians make decisions regarding antibiotics and whether a potential associated risk of obesity would alter decisions, we…”
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Re-Consenting Pediatric Research Participants as Legal Adulthood Approaches: Lessons from the SPARK Autism Study by Anderson, Connie, Iampieri, Alan, Franklin, Leah, Daniels, Amy, Diehl, Katharine, Law, J. Kiely

“…To explore issues surrounding re-consenting youth in longitudinal studies as they reach legal adulthood interviews were conducted with 46 parents plus 13…”
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Anxiety and Mood Disorder in Children With Autism Spectrum Disorder and ADHD by Gordon-Lipkin, Eliza, Marvin, Alison R, Law, J Kiely, Lipkin, Paul H

“…Autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD) frequently co-occur. Understanding the endophenotype of children with both…”
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Occurrence and Family Impact of Elopement in Children With Autism Spectrum Disorders by ANDERSON, Connie, LAW, J. Kiely, DANIELS, Amy, RICE, Catherine, MANDELL, David S, HAGOPIAN, Louis, LAW, Paul A

“…Anecdotal reports suggest that elopement behavior in children with autism spectrum disorders (ASDs) increases risk of injury or death and places a major burden…”
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Characteristics and concordance of autism spectrum disorders among 277 twin pairs by Rosenberg, Rebecca E, Law, J Kiely, Yenokyan, Gayane, McGready, John, Kaufmann, Walter E, Law, Paul A

“…To examine patterns of autism spectrum disorder (ASD) inheritance and other features in twin pairs by zygosity, sex, and specific ASD diagnosis…”
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Availability of Services and Caregiver Burden: Supporting Individuals With Neurogenetic Conditions During the COVID-19 Pandemic by Kowanda, Michelle, Cartner, Lindsey, Kentros, Catherine, Geltzeiler, Alexa R., Singer, Kaitlyn E., Weaver, W. Curtis, Lehman, Christopher D., Smith, Simone, Smith, Rebecca Sheedy, Walsh, Lauren Kasparson, Diehl, Katharine, Nagpal, Natalie, Brooks, Elizabeth, Mebane, Caroline M., Wilson, Ashley L., Marvin, Alison R., White, L. Casey, Law, J. Kiely, Jensen, William, Daniels, Amy M., Tjernagel, Jennifer, Snyder, LeeAnne Green, Taylor, Cora M., Chung, Wendy K.

“…Because of the COVID-19 pandemic, in-person services for individuals with neurodevelopmental disabilities were disrupted globally, resulting in a transition to…”
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Improving Behavior Challenges and Quality of Life in the Autism Learning Health Network by Anixt, Julia S, Murray, Donna S, Coury, Daniel L, Kuhlthau, Karen A, Eskra, Diane, Seide, Janet, Kelly, Amy, Hess, Amy, Lipkin, Paul H, Law, J Kiely, Fedele, Angie, Lannon, Carole

“…To summarize baseline data and lessons learned from the Autism Learning Health Network, designed to improve care and outcomes for children with autism spectrum…”
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The Relationship Between the Medical Home and Unmet Needs for Children with Autism Spectrum Disorders by Farmer, Janet E., Clark, Mary J., Mayfield, Wayne A., Cheak-Zamora, Nancy, Marvin, Alison R., Law, J. Kiely, Law, Paul A.

“…The purpose of this study was to examine the relationship between having access to a medical home and unmet needs for specialty care services for children with…”
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Analysis of Social Communication Questionnaire (SCQ) Screening for Children Less Than Age 4 by Marvin, Alison R., Marvin, Daniel J., Lipkin, Paul H., Law, J. Kiely

“…Purpose of Review The Social Communication Questionnaire (SCQ) is a screener for Autism spectrum disorder (ASD) validated for age 4.0 +. There is a clinical…”
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Large Databases for Pediatric Research on Children with Autism Spectrum Disorder by Kuhlthau, Karen A, Bailey, L Charles, Baer, Briella L, Coury, Daniel L, Law, J Kiely, Murray, Donna S, Razzaghi, Hanieh, Forrest, Christopher B, Lipkin, Paul H

“…This article reviews the data available in 3 large databases for use in conducting studies of children with autism spectrum disorder (ASD). The article…”
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Stability of Initial Autism Spectrum Disorder Diagnoses in Community Settings by Daniels, Amy M., Rosenberg, Rebecca E., Law, J. Kiely, Lord, Catherine, Kaufmann, Walter E., Law, Paul A.

“…The study’s objectives were to assess diagnostic stability of initial autism spectrum disorder (ASD) diagnoses in community settings and identify factors…”
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