Search Results - "Lalara, Gayangwa"
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Staying Strong Toolbox: Co-design of a physical activity and lifestyle program for Aboriginal families with Machado-Joseph disease in the Top End of Australia
Published in PloS one (05-02-2021)“…Physical activity has positive health implications for individuals living with neurodegenerative diseases. The success of physical activity programs,…”
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'Staying strong on the inside and outside' to keep walking and moving around: Perspectives from Aboriginal people with Machado Joseph Disease and their families from the Groote Eylandt Archipelago, Australia
Published in PloS one (11-03-2019)“…Machado Joseph Disease (MJD) (spinocerebellar ataxia 3) is a hereditary neurodegenerative disease causing progressive ataxia and loss of mobility. It is the…”
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Feasibility and impact of physical activity and lifestyle program for Aboriginal families with Machado-Joseph disease in the Top End of Australia
Published in Rural and remote health (01-06-2024)“…Introduction: Physical activity and lifestyle programs are scarce for people with hereditary ataxias and neurodegenerative diseases. Aboriginal families in the…”
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Sleep disorders among Aboriginal Australians with Machado-Joseph Disease: Quantitative results from a multiple methods study to assess the experience of people living with the disease and their caregivers
Published in Neurobiology of sleep and circadian rhythms (01-05-2022)“…Machado-Joseph Disease (MJD), or Spinocerebellar Ataxia Type 3 (SCA3), is a genetic disorder that causes progressive muscle weakness, loss of motor control,…”
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What is the best way to keep walking and moving around for individuals with Machado-Joseph disease? A scoping review through the lens of Aboriginal families with Machado-Joseph disease in the Top End of Australia
Published in BMJ open (01-09-2019)“…ObjectivesMachado-Joseph disease (MJD) is the most common spinocerebellar ataxia worldwide. Prevalence is highest in affected remote Aboriginal communities of…”
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Journal Article