Search Results - "LIPSTEIN, Ellen A"

Real Life Clinic Visits Do Not Match the Ideals of Shared Decision Making by Lipstein, Ellen A., MD, MPH, Dodds, Cassandra M., MA, Britto, Maria T., MD, MPH

“…Objective To use observation to understand how decisions about higher-risk treatments, such as biologics, are made in pediatric chronic conditions. Methods…”
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“I'm the One Taking It”: Adolescent Participation in Chronic Disease Treatment Decisions by Lipstein, Ellen A., M.D., M.P.H, Muething, Kelly A, Dodds, Cassandra M., M.A, Britto, Maria T., M.D., M.P.H

“…Abstract Purpose To understand adolescents' roles and preferences in chronic disease treatment decisions, using biologic therapy decisions as an example…”
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Pilot trial of iBDecide: Evaluating an online tool to facilitate shared decision making for adolescents and young adults with ulcerative colitis by Matula, Kelly A., Minar, Philip, Daraiseh, Nancy M., Lin, Li, Recker, Marlee, Lipstein, Ellen A.

“…Introduction This pilot, randomized controlled trial aimed to evaluate the usability, among adolescents and young adults (AYAs) with ulcerative colitis (UC),…”
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1400 Miles by Lipstein, Ellen A., MD, MPH

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Physicians' Perceptions of Shared Decision Making in Chronic Disease and Its Barriers and Facilitators by Dodds, Cassandra M., MA, Britto, Maria T., MD, MPH, Denson, Lee A., MD, Lovell, Daniel J., MD, MPH, Saeed, Shehzad, MD, Lipstein, Ellen A., MD, MPH

“…This study assessed pediatric physicians' use of shared decision making (SDM) in 2 chronic conditions. Most physicians indicated that parent and adolescent…”
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Developing methods to identify resilience and improve communication about diagnosis in pediatric primary care by Rasooly, Irit R, Marshall, Trisha L, Cifra, Christina L, Catchpole, Ken, Kuzma, Nicholas C, Brady, Patrick W, Melton, Katherine, Khan, Alisa, Chien, Alyna T, Lipstein, Ellen A, Landrigan, Christopher P, Walsh, Kathleen E

“…Communication underlies every stage of the diagnostic process. The Dialog Study aims to characterize the pediatric diagnostic journey, focusing on…”
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Design and implementation of a decision aid for juvenile idiopathic arthritis medication choices by Brinkman, William B, Lipstein, Ellen A, Taylor, Janalee, Schoettker, Pamela J, Naylor, Katherine, Jones, Karla, Vora, Sheetal S, Mims, Catherine C, Roth-Wojcicki, Elizabeth, Gottlieb, Beth, Griffin, Nancy, Lannon, Carole, Morgan, Esi

“…Randomized trials have demonstrated the efficacy of patient decision aids to facilitate shared decision making in clinical situations with multiple medically…”
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Intergenerational Decision Making: The Role of Family Relationships in Medical Decision Making by Lin, Jody L., Lipstein, Ellen A., Wittenberg, Eve, Tay, Djin, Lundstrom, Robert, Lundstrom, Gari Lyn, Sediqzadah, Saadia, Wright, Davene R.

“…A symposium held at the 42nd annual Society for Medical Decision Making conference on October 26, 2020, focused on intergenerational decision making. The…”
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Shared Decision Making in Gastroenterology: Challenges and Opportunities by Fox, Jean C., Lipstein, Ellen A.

“…This article reviews the current uses of shared decision making in gastroenterology and discusses additional areas of opportunity for shared decision making,…”
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The Gray Zone: Adolescent and Young Adult Decision Support Needs for Ulcerative Colitis by Meisman, Andrea, Daraiseh, Nancy M., Minar, Phil, Saxe, Marlee, Lipstein, Ellen A.

“…Purpose. To understand the medical decision support needs specific to adolescents and young adults (AYAs) with ulcerative colitis (UC) and inform development…”
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Developing video education materials for the return of genomic test results to parents and adolescents by Lynch, John A., Idleburg, Michaela J., Butsch Kovacic, Melinda, Childers-Buschle, Kristin E., Dufendach, Kevin R., Lipstein, Ellen A., McGowan, Michelle L., Myers, Melanie F., Prows, Cynthia A.

“…To describe the development, implementation, and revision of a video to provide information about genomic testing and the return of genomic research results to…”
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Shared decision making in IBD: A novel approach to trial consent and timing by Schuler, Christine L, Dodds, Cassandra, Hommel, Kevin A, Ittenbach, Richard F, Denson, Lee A, Lipstein, Ellen A

“…AbstractBackgroundShared decision making (SDM) between families and physicians may facilitate informed, timely decisions to proceed with biologic therapy in…”
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Shared Decision Making and Choice for Elective Surgical Care: A Systematic Review by Boss, Emily F., Mehta, Nishchay, Nagarajan, Neeraja, Links, Anne, Benke, James R., Berger, Zackary, Espinel, Ali, Meier, Jeremy, Lipstein, Ellen A.

“…Objective Shared decision making (SDM), an integrative patient-provider communication process emphasizing discussion of scientific evidence and patient/family…”
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What Is Known about Parents’ Treatment Decisions? A Narrative Review of Pediatric Decision Making by Lipstein, Ellen A., Brinkman, William B., Britto, Maria T.

“…Background. With the increasing complexity of decisions in pediatric medicine, there is a growing need to understand the pediatric decision-making process…”
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“I Couldn’t See a Downside”: Decision-Making About Gender-Affirming Hormone Therapy by Daley, Thomas, Grossoehme, Daniel, McGuire, Jenifer K., Corathers, Sarah, Conard, Lee Ann, Lipstein, Ellen A.

“…The aim of the article was to understand adolescents' and parents' decision-making process related to gender-affirming hormone therapy (GAHT). We conducted…”
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Decision Support Needs for Transgender and Gender-Diverse Youth and Families: A Patient-Centered Needs Assessment by Mazzola, Amanda, Vaughn, Lisa M., Chelvakumar, Gayathri, Conard, Lee Ann E., Fortenberry, Dennis J., Voss, Raina V., Lipstein, Ellen A.

“…Due to the intertwining of medical and social decision-making, new approaches to shared decision-making are likely needed for supporting decisions related to…”
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Evolution of Pediatric Chronic Disease Treatment Decisions: A Qualitative, Longitudinal View of Parents’ Decision-Making Process by Lipstein, Ellen A., Britto, Maria T.

“…Background. In the context of pediatric chronic conditions, patients and families are called upon repeatedly to make treatment decisions. However, little is…”
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Balancing survival and suffering: factors influencing parental decision making after periviable consultation by Raynal, Eric A., Pallotto, Isabella K., Brady, Jennifer M., Cortezzo, DonnaMaria E., Lipstein, Ellen A.

“…The objective of this study was to identify factors birthing parents consider related to potential resuscitation of a periviable infant.OBJECTIVEThe objective…”
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Pediatric Caregiver Version of the Shared Decision Making Process Scale: Validity and Reliability for ADHD Treatment Decisions by Valentine, KD, Lipstein, Ellen A., Vo, Ha, Cosenza, Carol, Barry, Michael J., Sepucha, Karen

“…Shared decision making (SDM) is recommended for common pediatric conditions; however, there are limited data on measures of SDM in pediatrics. This study…”
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Integrating shared decision making into trial consent: A nested, cluster-randomized trial by Lipstein, Ellen A., Breslin, Maggie, Dodds, Cassandra M., Kappelman, Michael D., Ollberding, Nicholas J., Margolis, Peter, Xu, Yingying, Brinkman, William B.

“…•Shared decision making can be integrated into trial consent.•Shared decision making tools can assist research staff in the consent process.•Many potential…”
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