Search Results - "Kruithof, Willeke J."
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Chronic inflammatory neuropathies and their impact on activities and participation
Published in European journal of neurology (01-07-2023)“…Background Chronic inflammatory demyelinating polyneuropathy (CIDP) and multifocal motor neuropathy (MMN) are inflammatory neuropathies that can lead to…”
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Return to work after mild-to-moderate stroke: work satisfaction and predictive factors
Published in Neuropsychological rehabilitation (21-04-2019)“…A large proportion of stroke patients are unable to return to work (RTW), although figures vary greatly. A total of 121 mild-to-moderate stroke patients, who…”
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Control in the absence of choice: A qualitative study on decision-making about gastrostomy in people with amyotrophic lateral sclerosis, caregivers, and healthcare professionals
Published in PloS one (08-09-2023)“…Background Gastrostomy is recommended in amyotrophic lateral sclerosis for long-term nutritional support, however, people with amyotrophic lateral sclerosis…”
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Associations between social support and stroke survivors’ health-related quality of life—A systematic review
Published in Patient education and counseling (01-11-2013)“…Abstract Objective Social support to stroke survivors has been recognized as an important determinant of their health-related quality of life (HRQoL), but this…”
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Discussing personalized prognosis in amyotrophic lateral sclerosis: development of a communication guide
Published in BMC neurology (14-12-2020)“…Personalized ENCALS survival prediction model reliably estimates the personalized prognosis of patients with amyotrophic lateral sclerosis. Concerns were…”
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Discussing Personalized Prognosis Empowers Patients with Amyotrophic Lateral Sclerosis to Regain Control over Their Future: A Qualitative Study
Published in Brain sciences (30-11-2021)“…The ENCALS survival prediction model offers patients with amyotrophic lateral sclerosis (ALS) the opportunity to receive a personalized prognosis of survival…”
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Positive Caregiving Experiences Are Associated with Life Satisfaction in Spouses of Stroke Survivors
Published in Journal of stroke and cerebrovascular diseases (01-11-2012)“…Background Studies into caregivers usually have been focused on negative caregiving experiences. This study is based on the hypotheses that positive caregiving…”
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Caregiver burden and emotional problems in partners of stroke patients at two months and one year post-stroke: Determinants and prediction
Published in Patient education and counseling (01-10-2016)“…Highlights • Many partners suffered from high levels of burden, anxiety and depressive symptoms. • Partners’ anxiety, but not burden and depressive symptoms,…”
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Multidisciplinary end-of-life care for a patient with amyotrophic lateral sclerosis requesting euthanasia
Published in The Lancet (British edition) (05-08-2023)“…The aim was to optimise quality of life through symptom management and psychological support. Particularly important for the patient was his ability to…”
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Telehealth as part of specialized ALS care: feasibility and user experiences with "ALS home-monitoring and coaching"
Published in Amyotrophic lateral sclerosis and frontotemporal degeneration (02-04-2020)“…Objective: To evaluate the use of telehealth as part of specialized care for patients with amyotrophic lateral sclerosis (ALS) and the user experiences of…”
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Burden, anxiety and depressive symptoms in partners - course and predictors during the first two years after stroke
Published in Topics in stroke rehabilitation (18-08-2023)“…Partners of patients with stroke are at high risk for burden, anxiety and depressive symptoms. Previous studies have reported contradictory results and did not…”
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Current practices and barriers in gastrostomy indication in amyotrophic lateral sclerosis: a survey of ALS care teams in The Netherlands
Published in Amyotrophic lateral sclerosis and frontotemporal degeneration (03-04-2022)“…To describe current practices and barriers and support needs in gastrostomy indication and decision-making amongst rehabilitation physicians of ALS care teams…”
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Using patient-reported symptoms of dyspnea for screening reduced respiratory function in patients with motor neuron diseases
Published in Journal of neurology (01-11-2020)“…Background Poor monitoring of respiratory function may lead to late initiation of non-invasive ventilation (NIV) in patients with motor neuron diseases (MND)…”
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Electrophysiology of fatigue in chronic inflammatory demyelinating polyneuropathy: Can it be useful?
Published in Clinical neurophysiology (01-12-2020)Get full text
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15
Measuring negative and positive caregiving experiences: a psychometric analysis of the Caregiver Strain Index Expanded
Published in Clinical rehabilitation (01-12-2015)“…Objective: To compare the psychometric properties of the Caregiver Strain Index Expanded with those of the original Caregiver Strain Index among partners of…”
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A validation study of the Caregiver Mastery Scale for partners of patients with acquired brain injury
Published in Clinical rehabilitation (01-04-2018)“…Objective: To validate the Caregiver Mastery Scale for partners of patients with acquired brain injury. Design: The score distributions, internal consistency…”
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Course of social support and relationships between social support and patients' depressive symptoms in the first 3 years post-stroke
Published in Journal of rehabilitation medicine (18-08-2015)“…To describe the course of social support (everyday support, support in problem situations and esteem support) from initial inpatient rehabilitation until 3…”
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