Search Results - "Kirch, Kurt"

Coding undiagnosed rare disease patients in health information systems: recommendations from the RD-CODE project by Angin, Céline, Mazzucato, Monica, Weber, Stefanie, Kirch, Kurt, Abdel Khalek, Waed, Ali, Houda, Maiella, Sylvie, Olry, Annie, Jannot, Anne-Sophie, Rath, Ana

“…In European Union countries, any disease affecting less than 5 people in 10,000 is considered rare. As expertise is scarce and rare diseases (RD) are complex,…”
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ORPHAcodes use for the coding of rare diseases: comparison of the accuracy and cross country comparability by Mazzucato, Monica, Pozza, Laura Visonà Dalla, Facchin, Paola, Angin, Cèline, Agius, Francis, Cavero-Carbonell, Clara, Corrochano, Virginia, Hanusova, Katerina, Kirch, Kurt, Lambert, Deborah, Lucano, Caterina, Maiella, Sylvie, Panzaru, Monica, Rusu, Cristina, Weber, Stefanie, Zurriaga, Oscar, Zvolsky, Miroslav, Rath, Ana

“…Estimates of rare disease (RD) population impact in terms of number of affected patients and accurate disease definition is hampered by their…”
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