Search Results - "Kilbride, Madison"

The New Age of Patient Autonomy: Implications for the Patient-Physician Relationship by Kilbride, Madison K, Joffe, Steven

“…Kilbride and Joffe discussed the implications of the rejection of medical paternalism in favor of respect for patient autonomy on patient-physician…”
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Breaching Confidentiality in Genetic and Non-Genetic Cases: Two Problematic Distinctions by Kilbride, Madison K

“…Ethical questions about confidentiality arise when patients refuse to inform relatives who are at risk of a genetic condition. Specifically, healthcare…”
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When variants are reclassified—the importance of personalized communication by Kilbride, Madison K.

“…Thinking the e-mail was a system error, she almost didn’t learn that her genetic test result had been revised. With the advent of commercial genomic screening,…”
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Dying at home of Covid-19: Meeting the need for home-based care by Fallon, Cara Kiernan, Kilbride, Madison K.

“…Despite the increased burden of Covid-19 on older adults, ethical and public health frameworks lack adequate guidance for elderly patients who manage severe,…”
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Patient-Physician Relationship in the Age of Expanded Access to Information—Reply by Kilbride, Madison K, Joffe, Steven

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The Need to Improve the Clinical Utility of Direct-to-Consumer Genetic Tests: Either Too Narrow or Too Broad by Kilbride, Madison K, Bradbury, Angela R

“…This Viewpoint summarizes current shortcomings in direct-to-consumer genetic tests, which often lack clinical utility for consumers, and explains how tests…”
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Genetic Privacy, Disease Prevention, and the PRINCIPLE OF RESCUE by KILBRIDE, MADISON K.

“…Suppose that you have deeply personal information that you do not want to share. Further suppose that this information could help others, perhaps even saving…”
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How Should Patients and Providers Interpret the US Food and Drug Administration's Regulatory Language for Direct-to-Consumer Genetic Tests? by Kilbride, Madison K, Domchek, Susan M, Bradbury, Angela R

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Reply to Patel and McLeod by Kilbride, Madison K, Domchek, Susan M, Bradbury, Angela R

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Test-takers' perspectives on consumer genetic testing for hereditary cancer risk by Kilbride, Madison K, Kessler, Lisa Jay, Cronier, Brigitte, Park, Jacqueline J, Cacioppo, Cara N, Beem, Jordyn, Bradbury, Angela R

“…With few exceptions, research on consumer genetic testing for hereditary cancer risk has focused on tests with limited predictive value and clinical utility…”
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Ethical Implications of Direct-to-Consumer Hereditary Cancer Tests by Kilbride, Madison K, Domchek, Susan M, Bradbury, Angela R

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Longitudinal follow-up after telephone disclosure in the randomized COGENT study by Kilbride, Madison K., Egleston, Brian L., Hall, Michael J., Patrick-Miller, Linda J., Daly, Mary B., Ganschow, Pamela, Grana, Generosa, Olopade, Olufunmilayo I., Fetzer, Dominique, Brandt, Amanda, Chambers, Rachelle, Clark, Dana F., Forman, Andrea, Gaber, Rikki, Gulden, Cassandra, Horte, Janice, Long, Jessica M., Lucas, Terra, Madaan, Shreshtha, Mattie, Kristin, McKenna, Danielle, Montgomery, Susan, Nielsen, Sarah, Powers, Jacquelyn, Rainey, Kim, Rybak, Christina, Savage, Michelle, Seelaus, Christina, Stoll, Jessica, Stopfer, Jill E., Yao, Xinxin (Shirley), Domchek, Susan M., Bradbury, Angela R.

“…Purpose To better understand the longitudinal risks and benefits of telephone disclosure of genetic test results in the era of multigene panel testing. Methods…”
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Patient-Physician Relationship in the Age of Expanded Access to Information by Kilbride, Madison K., Joffe, Steven

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Patient-Physician Relationship in the Age of Expanded Access to Information/ Reply by Weinlander, Eric, Kilbride, Madison K, Joffe, Steven

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Prescription Requirements and Patient Autonomy: Considering an Over‐the‐Counter Default by Kilbride, Madison, Joffe, Steven, Lynch, Holly Fernandez

“…When new drugs are approved by the Food and Drug Administration, the default assumption is that they will be available by prescription only, safe for use…”
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Uptake of Genetic Research Results and Patient-Reported Outcomes With Return of Results Incorporating Web-Based Predisclosure Education by Kilbride, Madison, Egleston, Brian L, Chung, Wendy K, Olopade, Olufunmilayo, Maxwell, Kara N, Shah, Payal, Churpek, Jane E, Fleisher, Linda, Terry, Mary Beth, Fetzer, Dominique, Gaieski, Jill Bennett, Bulafka, Jessica, Espinal, Aileen, Karpink, Kelsey, Walser, Sarah, Singleton, Davone, Palese, Monica, Siljander, Ilona, Brandt, Amanda, Clark, Dana, Koval, Carrie, Wynn, Julia, Long, Jessica M, McKenna, Danielle, Powers, Jacquelyn, Nielsen, Sarah, Domchek, Susan M, Nathanson, Katherine L, Bradbury, Angela R

“…We developed a web-based education intervention as an alternative to predisclosure education with a genetic counselor (GC) to reduce participant burden and…”
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Ethical Issues in Genetic Testing by Kilbride, Madison

“…Genetic testing raises a host of ethical dilemmas—for the patient diagnosed with a genetic disorder, for her medical team, and even for the insurance company…”
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