Search Results - "Ketchum, Fred B."
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Communicating Alzheimer's biomarker results to cognitively unimpaired research participants: Satisfaction, utility, and impact on research attitudes
Published in Alzheimer's & dementia : translational research & clinical interventions (01-04-2024)“…Introduction Recruitment and retention pose a significant challenge to Alzheimer's disease (AD) research. Returning AD biomarker results to participants has…”
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The importance of the dyad: Participant perspectives on sharing biomarker results in Alzheimer's disease research
Published in Alzheimer's & dementia : translational research & clinical interventions (01-07-2023)“…In the asymptomatic "preclinical" phase of Alzheimer's disease (AD), abnormal biomarkers indicate risk for developing cognitive impairment. Biomarker…”
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Solomon Carter Fuller: Alzheimer's contemporary and American pioneer
Published in Alzheimer's & dementia (01-03-2022)Get full text
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Alzheimer's disease biomarkers in Black and non‐Hispanic White cohorts: A contextualized review of the evidence
Published in Alzheimer's & dementia (01-08-2022)“…Black Americans are disproportionately affected by dementia. To expand our understanding of mechanisms of this disparity, we look to Alzheimer's disease (AD)…”
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Pathways of care: a qualitative study of barriers and facilitators to engaging dementia care among underserved and minority populations in the US and Germany
Published in Aging & mental health (01-02-2023)“…To identify barriers and facilitators to the use of formal dementia services among underserved and minority groups (UMG) in the United States and Germany…”
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Commentary: Care, Choice, and the Ethical Imagination
Published in Cambridge quarterly of healthcare ethics (01-10-2017)Get full text
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What Influences the Willingness of Blacks and African Americans to Enroll in Preclinical Alzheimer's Disease Biomarker Research? A Qualitative Vignette Analysis
Published in Journal of Alzheimer's disease (01-01-2022)“…Alzheimer's disease (AD) begins with an asymptomatic "preclinical" phase, in which abnormal biomarkers indicate risk for developing cognitive impairment…”
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Concerns with the new biological research criteria for synucleinopathy
Published in Lancet neurology (01-07-2024)“…[...]what are the implications of negative SAA results? Because a substantial minority of isolated RBD cases are SLBD-negative,4 it is unknown if these cases…”
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Psychosocial implications of learning amyloid PET results in an observational cohort
Published in Alzheimer's & dementia (01-09-2024)“…INTRODUCTION Information on the psychosocial impact of Alzheimer's disease (AD) biomarker testing in adults at risk of AD is needed to inform best practices…”
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Moving beyond disclosure: Stages of care in preclinical Alzheimer's disease biomarker testing
Published in Alzheimer's & dementia (01-10-2022)“…Alzheimer's disease (AD) begins with an asymptomatic “preclinical” phase, in which abnormal biomarkers indicate risk for developing cognitive impairment…”
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Anticipated Psychological or Behavioral Reactions to Learning Alzheimer Biomarker Results: Associations With Contextual Factors
Published in Alzheimer disease and associated disorders (01-10-2023)“…As Alzheimer disease (AD) biomarker testing becomes more widely available, adults may opt to learn results. Considering potential reactions to learning…”
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Informing Disclosure: Efficacy of a Brief Educational Intervention on Research Participants' Knowledge about Alzheimer's Disease Biomarkers
Published in Journal of Alzheimer's disease (01-01-2023)“…Recommendations for communicating Alzheimer's disease (AD) biomarkers include pre-disclosure participant education and counseling, to allow individuals to make…”
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Implications of preclinical Alzheimer's disease biomarker disclosure for US policy and society
Published in Alzheimer's & dementia : diagnosis, assessment & disease monitoring (2022)“…Disclosure of Alzheimer's disease (AD) biomarkers to cognitively unimpaired adults are currently conducted only in research settings. Yet, US Food and Drug…”
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Securing Opportunities for the Disadvantaged, or Medicalization Through the Back Door?
Published in American journal of bioethics (02-06-2016)Get full text
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Cardiology clinic patient attitudes toward and potential personal utility of genetic testing: Findings from a unique multiracial clinical sample
Published in Journal of genetic counseling (01-08-2022)“…As more is understood about the hereditary nature of disease risk, the utility of genetic testing within cardiovascular medicine is increasingly being…”
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Rethinking "Cognitive" Enhancement: The Ethical Stakes of User Perspectives
Published in AJOB neuroscience (01-01-2013)“…AJOB Neuroscience Rethinking "Cognitive" Enhancement: The Ethical Stakes of User Perspectives…”
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Beyond psychological well‐being and behavior change: Participant experience and evaluation of an AD biomarker disclosure and lifestyle counseling protocol
Published in Alzheimer's & dementia (01-12-2023)“…Background Earlier detection and improved accessibility of testing means more adults may learn their Alzheimer’s biomarker results. Incorporating feedback from…”
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Concerns with the new biological research criteria for synucleinopathy
Published in Lancet neurology (01-07-2024)Get full text
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African Americans' intentions to share their Alzheimer’s preclinical biomarker results with loved ones in a hypothetical vignette: the importance of support persons
Published in Alzheimer's & dementia (01-12-2022)“…Background Literature on factors influencing the decision to enroll in Alzheimer’s biomarker research increasingly indicates that study partners are important…”
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Impact of learning amyloid PET results on test‐related distress and concern about dementia in a cognitively unimpaired observational cohort
Published in Alzheimer's & dementia (01-12-2023)“…Background As biomarker testing becomes more widely available, people will have opportunities to learn Alzheimer’s disease (AD) biomarker results. We developed…”
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