Utilization of electronic health record sex and gender demographic fields: a metadata and mixed methods analysis

Despite federally mandated collection of sex and gender demographics in the electronic health record (EHR), longitudinal assessments are lacking. We assessed sex and gender demographic field utilization using EHR metadata. Patients ≥18 years of age in the Mass General Brigham health system with a fi...

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Bibliographic Details
Published in:	Journal of the American Medical Informatics Association : JAMIA Vol. 31; no. 4; pp. 910 - 918
Main Authors:	Foer, Dinah, Rubins, David M, Nguyen, Vi, McDowell, Alex, Quint, Meg, Kellaway, Mitchell, Reisner, Sari L, Zhou, Li, Bates, David W
Format:	Journal Article
Language:	English
Published:	England 03-04-2024
Subjects:	Demography Electronic Health Records Female Gender Identity Humans Infant, Newborn Male Metadata Retrospective Studies Transgender Persons transgender persons metadata gender identity medical informatics health information interoperability
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Summary:	Despite federally mandated collection of sex and gender demographics in the electronic health record (EHR), longitudinal assessments are lacking. We assessed sex and gender demographic field utilization using EHR metadata. Patients ≥18 years of age in the Mass General Brigham health system with a first Legal Sex entry (registration requirement) between January 8, 2018 and January 1, 2022 were included in this retrospective study. Metadata for all sex and gender fields (Legal Sex, Sex Assigned at Birth [SAAB], Gender Identity) were quantified by completion rates, user types, and longitudinal change. A nested qualitative study of providers from specialties with high and low field use identified themes related to utilization. 1 576 120 patients met inclusion criteria: 100% had a Legal Sex, 20% a Gender Identity, and 19% a SAAB; 321 185 patients had field changes other than initial Legal Sex entry. About 2% of patients had a subsequent Legal Sex change, and 25% of those had ≥2 changes; 20% of patients had ≥1 update to Gender Identity and 19% to SAAB. Excluding the first Legal Sex entry, administrators made most changes (67%) across all fields, followed by patients (25%), providers (7.2%), and automated Health Level-7 (HL7) interface messages (0.7%). Provider utilization varied by subspecialty; themes related to systems barriers and personal perceptions were identified. Sex and gender demographic fields are primarily used by administrators and raise concern about data accuracy; provider use is heterogenous and lacking. Provider awareness of field availability and variable workflows may impede use. EHR metadata highlights areas for improvement of sex and gender field utilization.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	1067-5027 1527-974X 1527-974X
DOI:	10.1093/jamia/ocae016