Search Results - "Keenan, Karen Forrest"

The BSR-PsA: study protocol for the British Society for Rheumatology psoriatic arthritis register by Jones, Gareth T, Macfarlane, Gary J, Forrest Keenan, Karen, McNamee, Paul, Neilson, Aileen R, Siebert, Stefan, Burden, A David, Kay, Lesley, Helliwell, Philip S

“…Psoriatic arthritis (PsA) presents a unique clinical challenge. Affecting joints, skin, nails, and other organs, it is associated with various comorbidities…”
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How Do Partners Find out About the Risk of Huntington’s Disease in Couple Relationships? by Keenan, Karen Forrest, Simpson, Sheila A., Miedzybrodzka, Zosia, Alexander, David A., Semper, June

“…Whilst a growing body of work has explored family communication about Huntington’s disease and how at-risk individuals learn about their risk, the experience…”
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Fluctuating salience in those living with genetic risk of motor neuron disease: A qualitative interview study by Howard, Jade, Mazanderani, Fadhila, Keenan, Karen Forrest, Turner, Martin R., Locock, Louise

“…Background Motor neuron disease (MND) (also known as amyotrophic lateral sclerosis) is a life‐limiting neurodegenerative condition. In up to 20% of people with…”
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Experiences of predictive genetic testing in inherited motor neuron disease: Findings from a qualitative interview study by Howard, Jade, Forrest Keenan, Karen, Mazanderani, Fadhila, Turner, Martin R, Locock, Louise

“…Predictive genetic testing is increasingly available for individuals with a heightened risk of motor neuron disease (MND). However, little is known about how…”
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Parents’ views of genetic testing and treatment of familial hypercholesterolemia in children: a qualitative study by Keenan, Karen Forrest, Finnie, Robert M., Simpson, William G., McKee, Lorna, Dean, John, Miedzybrodzka, Zosia

“…Familial hypercholesterolemia (FH) is a serious inherited disorder, which greatly increases individuals’ risk of cardiovascular disease (CVD) in adult life…”
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How young people find out about their family history of Huntington's disease by Forrest Keenan, Karen, van Teijlingen, Edwin, McKee, Lorna, Miedzybrodzka, Zosia, Simpson, Sheila A.

“…Family communication about adult-onset hereditary illness can be problematic, leaving some relatives inadequately informed or ignorant of their risk. Although…”
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The analysis of qualitative research data in family planning and reproductive health care by Forrest Keenan, Karen, van Teijlingen, Edwin, Pitchforth, Emma

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Parenting a child with clubfoot: A qualitative study by Pietrucin-Materek, Marta, van Teijlingen, Edwin R., Barker, Simon, Forrest Keenan, Karen, Miedzybrodzka, Zosia

“…Congenital Talipes Equinovarus (clubfoot) is a condition affecting about one per thousand live births in Europe. Diagnosis of CTEV usually occurs through…”
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'It's their blood not mine': Who's responsible for (not) telling relatives about genetic risk? by Keenan, Karen Forrest, Simpson, Sheila A., Wilson, Brenda J., Van Teijlingen, Edwin R., Mckee, Lorna, Haites, Neva, Matthews, Eric

“…With advances in the 'new genetics', an increasing number of people will have access to genetic information and predictive or susceptibility testing. Genetic…”
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The quality of qualitative research in family planning and reproductive health care by Forrest Keenan, Karen, van Teijlingen, Edwin

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K11 How to help young people through the HD clinic: professionals’ views and experiences of facilitating parent/child communication by Miedzybrodzka, Zosia, Keenan, Karen Forrest, McKee, Lorna

“…BackgroundUK guidelines advise genetics professionals to support and encourage family communication about genetic risk. However, parents can experience a lack…”
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Writing up and presenting qualitative research in family planning and reproductive health care by Pitchforth, Emma, Porter, Maureen, van Teijlingen, Edwin, Forrest Keenan, Karen

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The effect of COVID-19 public health restrictions on the health of people with musculoskeletal conditions and symptoms: the CONTAIN study by Macfarlane, Gary J, Hollick, Rosemary J, Morton, LaKrista, Heddle, Maureen, Bachmair, Eva-Maria, Anderson, R Stuart, Whibley, Daniel, Keenan, Karen Forrest, Murchie, Peter, Stelfox, Kevin, Beasley, Marcus J, Jones, Gareth T

“…Objective To quantify the change in quality of life, disease-specific indicators, health and lifestyle before and during the COVID-19 pandemic among people…”
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Carole H Browner, H Mabel Prelora: Neurogenetic diagnoses: the power of hope, and the limits of today's medicine by Keenan, Karen Forrest, Cilliers, Deirdre

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Range of qualitative research by Guest, Greg

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Does breast cancer genetic counselling meet women's expectations? A qualitative study by Grant, Aileen M., Teijlingen, Edwin R. van, Forrest-Keenan, Karen, Torrance, Nicola, Wilson, Brenda J., Haites, Neva E.

“…A high demand exists in the United Kingdom for breast cancer genetic counselling. Due to the disease's high incidence, many women who received such counselling…”
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Carole H Browner, H Mabel Prelora: Neurogenetic diagnoses: the power of hope, and the limits of today’s medicine: Routledge, 2010, HB, 137 pages, £80. ISBN 978-0-415-56365-9 by Keenan, Karen Forrest, Cilliers, Deirdre

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