Search Results - "Kavanaugh, Melinda S."

Adapting an intervention to support young caregivers of cancer survivors: A study protocol by Njelesani, Janet, Kavanaugh, Melinda S, Hunleth, Jean

“…Of the family members providing care, in the United States over 5.4 million are young people (<18 years of age) and they are the caregivers receiving the least…”
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Unacknowledged Caregivers: A Scoping Review of Research on Caregiving Youth in the United States by Kavanaugh, Melinda S., Stamatopoulos, Vivian, Cohen, Donna, Zhang, Lixia

“…With over 43 million family caregivers living in the United States, families are the largest providers of informal care in this country. Despite the extensive…”
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Children and Adolescents Providing Care to a Parent with Huntington’s Disease: Disease Symptoms, Caregiving Tasks and Young Carer Well-Being by S Kavanaugh, Melinda

“…Background Over 30,000 people in the U.S. have Huntington’s disease (HD), a disorder with numerous complicated, long-lasting and stigmatizing symptoms…”
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Parental and child adjustment to amyotrophic lateral sclerosis: transformations, struggles and needs by Sommers-Spijkerman, Marion, Rave, Neele, Kruitwagen-van Reenen, Esther, Visser-Meily, Johanna M A, Kavanaugh, Melinda S, Beelen, Anita

“…Amyotrophic lateral sclerosis (ALS), progressive muscular atrophy (PMA) and primary lateral sclerosis (PLS), together referred to as ALS, are life-limiting…”
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How to break the news in amyotrophic lateral sclerosis/motor neuron disease: practical guidelines from experts by O'Connell, Colleen, Kavanaugh, Melinda S, Cummings, Cathy, Genge, Angela

“…In amyotrophic lateral sclerosis/motor neuron disease (ALS/MND), it is necessary to communicate difficult news during the initial diagnosis and throughout the…”
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Young Carers, The Overlooked Caregiving Population: Introduction to a Special Issue by Kavanaugh, Melinda S., Stamatopoulos, Vivian

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US data on children and youth caregivers in amyotrophic lateral sclerosis by Kavanaugh, Melinda S., Cho, Chi C., Howard, Megan, Fee, Dominic, Barkhaus, Paul E.

“…OBJECTIVEAn estimated 1.4 million young caregivers (<19 years of age) in the United States provide care to ill family members yet remain hidden from state and…”
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How Far Have We Come? An Updated Scoping Review of Young Carers in the U.S by Hendricks, Bailey A., Kavanaugh, Melinda S., Bakitas, Marie A.

“…Approximately 1.4 million young carers (aged 8–18) in the United States are providing multifaceted, extended care to adults with serious illness, in addition…”
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What, how and when do families communicate about ALS? A qualitative exploration of parents' and children's perceptions by Sommers-Spijkerman, Marion, Stukker, Anna, Kavanaugh, Melinda S, Ketelaar, Marjolijn, Visser-Meily, Johanna M A, Beelen, Anita

“…: In families with a parent diagnosed with amyotrophic lateral sclerosis (ALS), children's adaptation depends among others on how their parents communicate…”
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"It'd be nice if someone asked me how I was doing. Like, 'cause I will have an answer": exploring support needs of young carers of a parent with Huntington's disease by Kavanaugh, Melinda S., Noh, Hyunjin, Studer, Lynette

“…This study explores the support needs of an isolated and little known caregiver population: children and adolescents aged 12-20, who provide care to a parent…”
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“I Just Learned by Observation and Trial and Error”: Exploration of Young Caregiver Training and Knowledge in Families Living with Rare Neurological Disorders by Kavanaugh, Melinda S., Cho, Chi C., Howard, Megan

“…Background Caregiver skill training and support programs are traditionally offered to adult caregivers, leaving out the over 1 million children and youth who…”
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Stigma experienced by ALS/PMA patients and their caregivers: a mixed-methods study by Sommers-Spijkerman, Marion, Kavanaugh, Melinda S., Kruitwagen-Van Reenen, Esther, Zwarts-Engelbert, Aimée, Visser-Meily, Johanna M. A., Beelen, Anita

“…Previous work suggests that stigma negatively impacts quality of life in people living with amyotrophic lateral sclerosis (ALS) and progressive muscular…”
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Young carers and ALS/MND: exploratory data from families in South Africa by Kavanaugh, Melinda S., Henning, Franclo, Mochan, Andre

“…Amyotrophic lateral sclerosis/motor neuron disease (ALS/MND) remains under-resourced across much of the world, including the global south. The lack of supports…”
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“Man, This Isn’t Easy”: Exploring the Manifestation of Parentification Among Young Carers of a Parent with Huntington’s Disease by Hendricks, Bailey A., Bakitas, Marie A., Odom, J. Nicholas, Johnston, Emily E., Childs, Gwendolyn, Kavanaugh, Melinda S.

“…Background Due to the progressive deterioration of motor, cognitive, and psychological function, individuals with Huntington’s disease (HD) rely heavily on…”
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“I am no longer alone”: Evaluation of the first North American camp for youth living in families with Huntington's disease by Kavanaugh, Melinda S., Cho, Chi, Maeda, Hotaka, Swope, Chandler

“…Affecting over 30,000 people, with approximately 200,000 at risk in the United States, Huntington's disease (HD) is often called a disease of the family…”
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Skill, confidence and support: conceptual elements of a child/youth caregiver training program in amyotrophic lateral sclerosis – the YCare protocol by Kavanaugh, Melinda S, Cho, Young, Fee, Dominic, Barkhaus, Paul E

“…Pilot study of a novel caregiving training and support intervention for children and youth <19 years, who provide care for person living with amyotrophic…”
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Caregiving Youth Knowledge and Perceptions of Parental End-of-Life Wishes in Huntington's Disease by Kavanaugh, Melinda S., Noh, Hyunjin, Zhang, Lixia

“…Knowledge of patient end-of-life (EOL) wishes and discussions are vital for family caregivers, including children and youth who may be in caregiving roles…”
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Feasibility of a multidisciplinary caregiving training protocol for young caregivers in families with ALS by Kavanaugh, Melinda S., Howard, Megan, Banker-Horner, Lori

“…Feasibility of a multidisciplinary caregiving training protocol for young caregivers in families with ALS. Objectives: To assess the feasibility of a…”
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Variations and Patterns in Sleep: A Feasibility Study of Young Carers in Families with ALS by Kavanaugh, Melinda S., Johnson, Kayla T., Zawadzki, Matthew J.

“…Introduction: Children and youth under the age of 19 provide daily care for family members living with illness, including Amyotrophic Lateral Sclerosis (ALS)…”
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“This could be me”: exploring the impact of genetic risk for Huntington’s disease young caregivers by Dondanville, Danielle S., Hanson-Kahn, Andrea K., Kavanaugh, Melinda S., Siskind, Carly E., Fanos, Joanna H.

“…Huntington’s disease (HD) is a predominantly adult-onset, genetic, neurodegenerative condition. Children of affected individuals have a 50% risk of inheriting…”
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