Search Results - "Kasule, Mary"

Feeding back of individual genetic results in Botswana: mapping opportunities and challenges by Kasule, Mary, Matshaba, Mogomotsi, Wonkam, Ambroise, de Vries, Jantina

“…We explored the views of Botswana stakeholders involved in developing, implementing and applying ethical standards for return of individual study results from…”
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Do solidarity and reciprocity obligations compel African researchers to feedback individual genetic results in genomics research? by Ralefala, Dimpho, Kasule, Mary, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina

“…A key ethical question in genomics research relates to whether individual genetic research results should be disclosed to research participants and if so,…”
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Considerations of Autonomy in Guiding Decisions around the Feedback of Individual Genetic Research Results from Genomics Research: Expectations of and Preferences from Researchers in Botswana by Kasule, Mary, Matshaba, Mogomotsi, Mwaka, Erisa, Wonkam, Ambroise, de Vries, Jantina

“…Background. The Human Health and Heredity (H3Africa) Consortium continues to generate large amounts of genomic data leading to new insights into health and…”
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Participant views on practical considerations for feedback of individual genetic research results: a case study from Botswana by Ralefala, Dimpho, Kasule, Mary, Matshabane, Olivia P, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina

“…Key to discussions around feedback of individual results from genomics research are practical questions on how such results should be fed back, by who and…”
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The features and qualities of online training modules in research ethics: a case study evaluating their institutional application for the University of Botswana by Ntseane, Dolly Mogomotsi, Ali, Joseph, Hallez, Kristina, Mokgweetsi, Boikanyo, Kasule, Mary, Kass, Nancy E.

“…Research ethics remains a cornerstone of the scientific enterprise as it defines the boundaries of responsible conduct of research. Our aim was to…”
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Profile of acute poisoning in three health districts of Botswana by Kasule, Mary, Malangu, Ntambwe

“…Background: This study sought to characterise acute poisoning cases seen in three health districts of Botswana.Method: A retrospective review of patients’…”
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Mapping research ethics committees in Africa: Evidence of the growth of ethics review of health research in Africa by Mokgatla, Boitumelo, IJsselmuiden, Carel, Wassenaar, Doug, Kasule, Mary

“…Health research initiatives worldwide are growing in scope and complexity, particularly as they move into the developing world. Expanding health research…”
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Understanding cultural values, norms and beliefs that may impact participation in genome-editing related research: Perspectives of local communities in Botswana by Koloi-Keaikitse, Setlhomo, Kasule, Mary, Kwape, Irene, Jankie, Dudu, Ralefala, Dimpho, Ntseane, Dolly Mogomotsi, Mokone, Gaonyadiwe George

“…Gene-editing research is a complex science and foreign in most communities including Botswana. Adopting a qualitative deliberative framework with 109…”
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Should Feedback of Individual Results be Integrated into the Consent Process in African Genomics? Participants' Views from an HIV-TB Genomics Research Project in Botswana by Ralefala, Dimpho, Kasule, Mary, Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina

“…Background Whilst informed consent is a key component of considering whether individual genomic research results could or should be fed back to research…”
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Participants’ Preferences and Reasons for Wanting Feedback of Individual Genetic Research Results From an HIV-TB Genomic Study: A Case Study From Botswana by Ralefala, Dimpho, Kasule, Mary, Matshabane, Olivia P., Wonkam, Ambroise, Matshaba, Mogomotsi, de Vries, Jantina

“…The feedback of individual results of genomics research is an ethical issue. However, which genetic results African participants would like to receive and why,…”
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Ending the evidence gap for pregnancy, HIV and co‐infections: ethics guidance from the PHASES project by Lyerly, Anne Drapkin, Beigi, Richard, Bekker, Linda‐Gail, Chi, Benjamin H., Cohn, Susan E., Diallo, Dázon Dixon, Eron, Joseph, Faden, Ruth, Jaffe, Elana, Kashuba, Angela, Kasule, Mary, Krubiner, Carleigh, Little, Maggie, Mfustso‐Bengo, Joseph, Mofenson, Lynne, Mwapasa, Victor, Mworeko, Lillian, Myer, Landon, Penazzato, Martina, Rid, Annette, Shapiro, Roger, Singh, Jerome Amir, Sullivan, Kristen, Vicari, Marissa, Wambui, Jacque, White, Amina, Wickremsinhe, Marisha, Wolf, Leslie

“…Introduction While pregnant people have been an important focus for HIV research, critical evidence gaps remain regarding prevention, co‐infection, and safety…”
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Building research capacity in Botswana: a randomized trial comparing training methodologies in the Botswana ethics training initiative by Barchi, Francis H, Kasimatis-Singleton, Megan, Kasule, Mary, Khulumani, Pilate, Merz, Jon F

“…Little empirical data are available on the extent to which capacity-building programs in research ethics prepare trainees to apply ethical reasoning skills to…”
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Profile of acute poisoning in three health districts of Botswana : original research by Malangu, Ntambwe, Kasule, Mary

“…Background : This study sought to characterise acute poisoning cases seen in three health districts of Botswana. Method : A retrospective review of patients'…”
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Silent Voices: Current and Future Roles of African Research Ethics Committee Administrators by Kasule, Mary, Wassenaar, Douglas R., IJsselmuiden, Carel, Mokgatla, Boitumelo

“…key goal in establishing appropriate governance structures for research ethics review is to ensure that research ethics committees (RECs) operate within a…”
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