Search Results - "Köpke, S"

Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – A cluster- randomised controlled trial and mixed methods process evaluation by Rahn, A.C., Peper, J., Köpke, S., Antony, G., Liethmann, K., Vettorazzi, E., Heesen, C., Berghoff, Martin, Diem, Ricarda, Faiss, Jürgen H., Klotz, Luisa, Ehrlich, Sven, Lorrain, Michael, Mäurer, Mathias, Schmidt, Stephan, Windhagen, Susanne, Zettl, Uwe K.

“…To evaluate a nurse-led decision coaching programme aiming to redistribute health professionals’ tasks to support immunotherapy decision-making in people with…”
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Adherence coaching is not shared-decision making by Heesen, C, Köpke, S, Rahn, AC

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Patient and caregiver involvement in the formulation of guideline questions: findings from the European Academy of Neurology guideline on palliative care of people with severe multiple sclerosis by Köpke, S., Giordano, A., Veronese, S., Christin Rahn, A., Kleiter, I., Basedow‐Rajwich, B., Fornari, A., Battaglia, M. A., Drulovic, J., Kooij, L., Koops, J., Mens, J., Meza Murillo, E. R., Milanov, I., Milo, R., Patti, F., Pekmezovic, T., Sastre‐Garriga, J., Vosburgh, J., Voltz, R., Bay, J., Oliver, D. J., Solari, A.

“…Background and purpose Patient and public involvement in clinical practice guideline development is recommended to increase guideline trustworthiness and…”
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EAN guideline on palliative care of people with severe, progressive multiple sclerosis by Solari, A., Giordano, A., Sastre‐Garriga, J., Köpke, S., Rahn, A. C., Kleiter, I., Aleksovska, K., Battaglia, M. A., Bay, J., Copetti, M., Drulovic, J., Kooij, L., Mens, J., Meza Murillo, E. R., Milanov, I., Milo, R., Pekmezovic, T., Vosburgh, J., Silber, E., Veronese, S., Patti, F., Voltz, R., Oliver, D.

“…Background and purpose Patients with severe, progressive multiple sclerosis (MS) have complex physical and psychosocial needs, typically over several years…”
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Nurse-led immunotreatment DEcision Coaching In people with Multiple Sclerosis (DECIMS) – Feasibility testing, pilot randomised controlled trial and mixed methods process evaluation by Rahn, A.C., Köpke, S., Backhus, I., Kasper, J., Anger, K., Untiedt, B., Alegiani, A., Kleiter, I., Mühlhauser, I., Heesen, C.

“…Treatment decision-making is complex for people with multiple sclerosis. Profound information on available options is virtually not possible in regular…”
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Risk Knowledge in Relapsing Multiple Sclerosis (RIKNO 1.0)--Development of an Outcome Instrument for Educational Interventions by Heesen, C, Kasper, J, Fischer, K, Köpke, S, Rahn, A, Backhus, I, Poettgen, J, Vahter, L, Drulovic, J, Van Nunen, A, Beckmann, Y, Liethmann, K, Giordano, A, Fulcher, G, Solari, A

“…Adequate risk knowledge of patients is a prerequisite for shared decision making but few attempts have been made to develop assessment tools. Multiple…”
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Informed shared decision making about immunotherapy for patients with multiple sclerosis (ISDIMS): a randomized controlled trial by Kasper, J., Köpke, S., Mühlhauser, I., Nübling, M., Heesen, C.

“…Background and purpose:  To evaluate the effects of an evidence‐based patient decision aid (DA) on multiple sclerosis (MS) immunotherapy. Methods:  Two hundred…”
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Decision-making about corticosteroids in relapses of multiple sclerosis – development of a questionnaire based on the theory of planned behaviour by Haker, M, Heesen, C, Wenzel, L, Köpke, S, Rahn, AC, Kasper, J

“…•In relapses of multiple sclerosis corticosteroids are a common therapy.•The questionnaire investigates the decision-making on corticosteroids.•The theory of…”
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Development and evaluation of evidence-based patient information handbooks about multiple sclerosis immunotherapies by Schneider, A., Fasshauer, E., Scheiderbauer, J., Warnke, C., Köpke, S., Kasper, J., Toussaint, M., Temmes, H., Hemmer, B., Schiffmann, I., Rahn, A.C., Heesen, C.

“…Multiple sclerosis treatment options are increasing. Evidence-based patient information (EBPI) are therefore crucial to enable patient involvement in decision…”
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Patient education programme on immunotherapy in multiple sclerosis (PEPIMS): a controlled rater-blinded study by Köpke, S, Kasper, J, Flachenecker, P, Meißner, H, Brandt, A, Hauptmann, B, Bender, G, Backhus, I, Rahn, AC, Pöttgen, J, Vettorazzi, E, Heesen, C

“…Objective: To investigate the effectiveness of a multi-component evidence-based education programme on disease modifying therapies in multiple sclerosis…”
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Implementation study of the 2021 German guideline for diagnosis and treatment of multiple sclerosis by Mokry, C, Warnke, C, Gehring, K, Hegen, H, Salmen, A, Kraemer, M, Kleiter, I, Fasshauer, E, Scheiderbauer, J, Lühmann, D, Köpke, S, Berthele, A, Heesen, C

“…•first implementation study of a clinical practice guideline in MS.•early aggressive treatment and treatment stop as major areas of controversy.•overall…”
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Designing trials for pressure ulcer risk assessment research: Methodological challenges by Balzer, K., Köpke, S., Lühmann, D., Haastert, B., Kottner, J., Meyer, G.

“…For decades various pressure ulcer risk assessment scales (PURAS) have been developed and implemented into nursing practice despite uncertainty whether use of…”
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Long-term treatment risks in multiple sclerosis: risk knowledge and risk perception in a large cohort of mitoxantrone-treated patients by Hofmann, A, Stellmann, JP, Kasper, J, Ufer, F, Elias, WG, Pauly, I, Repenthin, J, Rosenkranz, T, Weber, T, Köpke, S, Heesen, C

“…Background: Balancing treatment benefits and risks is part of a shared decision-making process before initiating any treatment in multiple sclerosis (MS)…”
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Shared decision making and selfmanagement in multiple sclerosis – a consequence of evidence by Heesen, Christoph, Köpke, S., Richter, T., Kasper, J.

“…Shared decision making is increasingly recognised as the ideal model of patient-physician communication especially in chronic diseases with partially effective…”
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What should a person with relapsing-remitting multiple sclerosis know? – Focus group and survey data of a risk knowledge questionnaire (RIKNO 2.0) by Heesen, C., Pöttgen, J., Rahn, A.C., Liethmann, K., Kasper, J., Vahter, L., Drulovic, J., Van Nunen, A., Wilkie, D., Beckmann, Y., Paul, F., Köpke, S., Giordano, A., Solari, A.

“…Risk knowledge is relevant to make informed decisions in multiple sclerosis (MS). The risk knowledge questionnaire for relapsing-remitting MS (RIKNO 1.0) was…”
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Suspected multiple sclerosis – what to do? Evaluation of a patient information leaflet by Heesen, C, Schäffler, N, Kasper, J, Mühlhauser, I, Köpke, S

“…Background Parallel to the establishment of early treatments in multiple sclerosis (MS), new diagnostic criteria have made an earlier diagnosis possible. While…”
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Informed shared decision making in multiple sclerosis—inevitable or impossible? by Heesen, C, Kasper, J, Köpke, S, Richter, T, Segal, J, Mühlhauser, I

“…Abstract Patients and health authorities increasingly claim active roles in health care decision making processes. As immune therapies in MS are partially…”
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Evidence-based medicine for diabetes educators: a pilot study by Meyer, G., Köpke, S., Lenz, M., Kasper, J., Mühlhauser, I.

“…Aims  Health‐care professionals are increasingly asked to communicate research results to patients and consumers. Diabetes educators play a decisive role in…”
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Steroid treatment for relapses in multiple sclerosis - the evidence urges shared decision-making by Köpke, S., Heesen, C., Kasper, J., Mühlhauser, I.

“…Objectives – Therapy of acute relapses in multiple sclerosis with corticosteroids (CC) remains uncertain with respect to route, dosage and effectiveness. This…”
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Patient autonomy in multiple sclerosis — Possible goals and assessment strategies by Heesen, C, Köpke, S, Solari, A, Geiger, F, Kasper, J

“…Abstract Patient autonomy has been increasingly acknowledged as prerequisite for successful medical decision making in Western countries. In medical decisions…”
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