Search Results - "Johnson, Miriam J"
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Towards an expert consensus to delineate a clinical syndrome of chronic breathlessness
Published in The European respiratory journal (01-05-2017)“…Breathlessness that persists despite treatment for the underlying conditions is debilitating. Identifying this discrete entity as a clinical syndrome should…”
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Minimal clinically important differences in average, best, worst and current intensity and unpleasantness of chronic breathlessness
Published in The European respiratory journal (01-08-2020)“…Chronic breathlessness has devastating consequences. The minimal clinically important difference (MCID) for current intensity has been estimated as 9 mm on a…”
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Navigating the Cultural Landscape Through Publishing Brands: A Theoretical, Gendered Perspective
Published in Publishing research quarterly (01-06-2023)“…In the consumer’s cultural landscape everything is gendered, including publishers. Some publishers lean into the gendered elements of their brand personality…”
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Managing the supportive care needs of those affected by COVID-19
Published in The European respiratory journal (01-04-2020)“…Globally, the number of people affected by coronavirus disease 2019 (COVID-19) is rapidly increasing. In most (>80%), the illness is relatively mild and can be…”
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Symptom prevalence of patients with fibrotic interstitial lung disease: a systematic literature review
Published in BMC pulmonary medicine (22-05-2018)“…Those affected by advanced fibrotic interstitial lung diseases have limited treatment options and in the terminal stages, the focus of care is on symptom…”
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Once-Daily Opioids for Chronic Dyspnea: A Dose Increment and Pharmacovigilance Study
Published in Journal of pain and symptom management (01-09-2011)“…Abstract Context Randomized controlled trials can answer questions of efficacy, but long-term pharmacovigilance studies generate complementary safety data…”
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Cancer patients’ experiences of the diagnosis and treatment of incidental pulmonary embolism (a qualitative study)
Published in PloS one (25-10-2022)“…Background The diagnosis of symptomatic cancer-associated thrombosis often causes distress and alarm for patients, especially for those unaware of the risk, or…”
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Improving the quality of life of people with advanced respiratory disease and severe breathlessness
Published in Breathe (Lausanne, Switzerland) (01-09-2019)“…Advanced respiratory disease imposes a greater symptom burden than many cancers but not does have comparable recognition of the need for supportive and…”
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Contributions of a hand-held fan to self-management of chronic breathlessness
Published in The European respiratory journal (01-08-2017)“…This study explored the benefits of a hand-held fan as perceived by patients with chronic breathlessness and their carers.A secondary multimethod analysis was…”
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The handheld fan for chronic breathlessness: Clinicians' experiences and views of implementation in clinical practice
Published in PloS one (28-11-2023)“…The handheld fan ('fan') is useful for chronic breathlessness management, however little is known about clinicians' implementation of the fan in clinical…”
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Clinically Important Differences in the Intensity of Chronic Refractory Breathlessness
Published in Journal of pain and symptom management (01-12-2013)“…Abstract Context Clinically important differences in chronic refractory breathlessness are ill defined but important in clinical practice and trial design…”
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Opioids for breathlessness: a narrative review
Published in BMJ supportive & palliative care (01-09-2020)“…Chronic breathlessness is a disabling and distressing condition for which there is a growing evidence base for a range of interventions. Non-pharmacological…”
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Benefits of specialist palliative care by identifying active ingredients of service composition, structure, and delivery model: A systematic review with meta-analysis and meta-regression
Published in PLoS medicine (02-08-2024)“…Specialist palliative care (SPC) services address the needs of people with advanced illness. Meta-analyses to date have been challenged by heterogeneity in SPC…”
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Correction: Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol
Published in PloS one (12-02-2024)“…[This corrects the article DOI: 10.1371/journal.pone.0291525.]…”
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Exploring pathways to optimise care in malignant bowel obstruction (EPOC): Protocol for a three-phase critical realist approach to theory-led intervention development for shared decision-making
Published in PloS one (01-01-2024)“…Malignant bowel obstruction is a distressing complication of cancer, causing pain, nausea and vomiting, and often has a poor prognosis. Severe and rapidly…”
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Supported: Supporting, enabling, and sustaining homecare workers to deliver end-of-life care: A qualitative study protocol
Published in PloS one (13-12-2023)“…Homecare workers provide essential care at home for people at end-of-life but are often poorly trained and supported. To explore the experiences and needs of…”
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Respiratory adverse effects of opioids for breathlessness: a systematic review and meta-analysis
Published in The European respiratory journal (01-11-2017)“…Previous studies have shown that opioids can reduce chronic breathlessness in advanced disease. However, physicians remain reluctant to prescribe opioids for…”
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Development of a Core Outcome Set for the research and assessment of inoperable malignant bowel obstruction
Published in PloS one (22-08-2023)“…Malignant bowel obstruction is experienced by 15% of people with advanced cancer, preventing them from eating and drinking and causing pain, nausea and…”
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Opioids for chronic refractory breathlessness: patient predictors of beneficial response
Published in The European respiratory journal (01-09-2013)“…Chronic refractory breathlessness is common and distressing in advanced disease. Despite level I evidence to support the use of opioids for this symptom, not…”
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Phase II, double blind, placebo controlled, multi-site study to evaluate the safety, feasibility and desirability of conducting a phase III study of anamorelin for anorexia in people with small cell lung cancer: A study protocol (LUANA trial)
Published in PloS one (17-05-2023)“…Anorexia is experienced by most people with lung cancer during the course of their disease and treatment. Anorexia reduces response to chemotherapy and the…”
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