Search Results - "JUENGST, ERIC T."

Anticipating the ethical, legal, and social implications of human genome research: An ongoing experiment by Juengst, Eric T.

“…Dr. Victor McKusick was a founding member of the joint NIH‐DOE working group that designed the federal effort to address the ethical, legal, and social…”
Get full text

Transparency, trust, and community welfare: towards a precision public health ethics framework for the genomics era by Juengst, Eric T, Van Rie, Annelies

“…Infectious disease control is experiencing a paradigm shift, as pathogen sequencing technologies and digital applications are increasingly implemented for…”
Get full text

Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives by Woolley, J Patrick, McGowan, Michelle L, Teare, Harriet J A, Coathup, Victoria, Fishman, Jennifer R, Settersten, Jr, Richard A, Sterckx, Sigrid, Kaye, Jane, Juengst, Eric T

“…The language of "participant-driven research," "crowdsourcing" and "citizen science" is increasingly being used to encourage the public to become involved in…”
Get full text

Research ethics recommendations for whole-genome research: consensus statement by Caulfield, Timothy, McGuire, Amy L, Cho, Mildred, Buchanan, Janet A, Burgess, Michael M, Danilczyk, Ursula, Diaz, Christina M, Fryer-Edwards, Kelly, Green, Shane K, Hodosh, Marc A, Juengst, Eric T, Kaye, Jane, Kedes, Laurence, Knoppers, Bartha Maria, Lemmens, Trudo, Meslin, Eric M, Murphy, Juli, Nussbaum, Robert L, Otlowski, Margaret, Pullman, Daryl, Ray, Peter N, Sugarman, Jeremy, Timmons, Michael

“…[...]all known genetic predispositions will be available and, depending on the data sharing policy, accessible to a wide range of researchers and, possibly,…”
Get full text

Gatekeepers or intermediaries? The role of clinicians in commercial genomic testing by McGowan, Michelle L, Fishman, Jennifer R, Settersten, Jr, Richard A, Lambrix, Marcie A, Juengst, Eric T

“…Many commentators on "direct-to-consumer" genetic risk information have raised concerns that giving results to individuals with insufficient knowledge and…”
Get full text

Personalized Genomic Medicine and the Rhetoric of Empowerment by Juengst, Eric T., Flatt, Michael A., Settersten Jr, Richard A.

“…A decade after the completion of the Human Genome Project, the widespread appeal of personalized genomic medicine's vision and potential virtues for health…”
Get full text

Integrating genomics into clinical oncology: Ethical and social challenges from proponents of personalized medicine by McGowan, Michelle L., Ph.D, Settersten, Richard A., Ph.D, Juengst, Eric T., Ph.D, Fishman, Jennifer R., Ph.D

“…Abstract Introduction The use of molecular tools to individualize health care, predict appropriate therapies, and prevent adverse health outcomes has gained…”
Get full text

ELSI 2.0 for Genomics and Society by Kaye, Jane, Meslin, Eric M., Knoppers, Bartha M., Juengst, Eric T., Deschênes, Mylène, Cambon-Thomsen, Anne, Chalmers, Donald, De Vries, Jantina, Edwards, Kelly, Hoppe, Nils, Kent, Alastair, Adebamowo, Clement, Marshall, Patricia, Kato, Kazuto

“…We need an international infrastructure for the ethical, legal, and social implications of genomic research. Anticipating and addressing the ethical, legal,…”
Get full text

Crowdsourcing the Moral Limits of Human Gene Editing? by JUENGST, ERIC T.

“…In 2015, a flourish of “alarums and excursions” by the scientific community propelled CRISPR/Cas9 and other new gene‐editing techniques into public attention…”
Get full text

The Promise and Reality of Public Engagement in the Governance of Human Genome Editing Research by Conley, John M., Cadigan, R. Jean, Davis, Arlene M., Juengst, Eric T., Kuczynski, Kriste, Major, Rami, Stancil, Hayley, Villa-Palomino, Julio, Waltz, Margaret, Henderson, Gail E.

“…This paper analyses the activities of five organizations shaping the debate over the global governance of genome editing in order to assess current approaches…”
Get full text

Big data, open science and the brain: lessons learned from genomics by Choudhury, Suparna, Fishman, Jennifer R, McGowan, Michelle L, Juengst, Eric T

“…The BRAIN Initiative aims to break new ground in the scale and speed of data collection in neuroscience, requiring tools to handle data in the magnitude of…”
Get full text

Serving epigenetics before its time by Juengst, Eric T, Fishman, Jennifer R, McGowan, Michelle L, Settersten, Richard A

“…Society prizes the rapid translation of basic biological science into ways to prevent human illness. However, the premature rush to take murine epigenetic…”
Get full text

Scientists' Views on Scientific Self-Governance for Human Genome Editing Research by Cadigan, R Jean, Waltz, Margaret, Henderson, Gail E, Conley, John M, Davis, Arlene M, Major, Rami, Juengst, Eric T

“…As research on human gene editing has grown, a variety of prominent international organizations are considering how best to govern such research. But what role…”
Get more information

Why Does the Shift from "Personalized Medicine" to "Precision Health" and "Wellness Genomics" Matter? by Juengst, Eric T, McGowan, Michelle L

“…Efforts to conceptualize the application of human genomics to health care have displayed an evolving set of translational research goals. Under , the aim was…”
Get more information

Precisely Where Are We Going? Charting the New Terrain of Precision Prevention by Meagher, Karen M, McGowan, Michelle L, Settersten, Richard A, Fishman, Jennifer R, Juengst, Eric T

“…In addition to genetic data, precision medicine research gathers information about three factors that modulate gene expression: lifestyles, environments, and…”
Get full text

Human heritable genome editing and its governance: views of scientists and governance professionals by Cadigan, R. Jean, Waltz, Margaret, Conley, John M., Major, Rami M., Branch, Elizabeth K., Juengst, Eric T., Flatt, Michael A.

“…Heritable human genome editing has garnered significant attention in scholarly and lay media, yet questions remain about whether, when, and how heritable…”
Get full text

A semiquantitative metric for evaluating clinical actionability of incidental or secondary findings from genome-scale sequencing by Berg, Jonathan S., Foreman, Ann Katherine M., O'Daniel, Julianne M., Booker, Jessica K., Boshe, Lacey, Carey, Timothy, Crooks, Kristy R., Jensen, Brian C., Juengst, Eric T., Lee, Kristy, Nelson, Daniel K., Powell, Bradford C., Powell, Cynthia M., Roche, Myra I., Skrzynia, Cecile, Strande, Natasha T., Weck, Karen E., Wilhelmsen, Kirk C., Evans, James P.

“…As genome-scale sequencing is increasingly applied in clinical scenarios, a wide variety of genomic findings will be discovered as secondary or incidental…”
Get full text

Sharing with Strangers: Governance Models for Borderless Genomic Research in a Territorial World by Juengst, Eric T, Meslin, Eric M

“…One of the practices that has defined the ethos of genomic research to date is a commitment to open and rapid sharing of genomic data and resources. As genomic…”
Get more information

GINA and Preemployment Criminal Background Checks by CALLIER, SHAWNEEQUA L., HUSS, JOHN, JUENGST, ERIC T.

“…Groups vulnerable to discrimination should not be the only parties subject to continual searches that could link them to crime scenes, especially where…”
Get full text

Public participation in human genome editing research governance: what do scientists think? by Waltz, Margaret, Flatt, Michael A., Juengst, Eric T., Conley, John M., Cadigan, R. Jean

“…Within the numerous policy and governance recommendations for human genome editing research, anticipatory public engagement seems universally agreed upon as a…”
Get full text