Search Results - "Hunt, Cara"
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The Lived Experience of Pediatric Gene Therapy: A Scoping Review
Published in Human gene therapy (01-12-2023)“…Little is known about patients' and families' lived experiences of participating in pediatric gene therapy (GT) clinical trials. Currently, pediatric GT…”
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Lived Experience of Patients & Caregivers in Rare Genetic Neurological Gene Therapy Clinical Trials in Children
Published in Pediatric neurology (01-11-2024)Get full text
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Somatic Gene Therapy Research in Pediatric Populations: Ethical Issues and Guidance for Operationalizing Early Phase Trials
Published in Pharmaceutical medicine (2023)“…Currently, pediatric research involving investigational gene therapies (GT, used without intending to imply a therapeutic effect) targets a broad range of…”
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Fetal Therapies and Clinical Research: Beyond Risk and Benefit
Published in American journal of bioethics (04-03-2022)Get full text
Journal Article