Search Results - "Hudson, Kathy L"

The 21st Century Cures Act — A View from the NIH by Hudson, Kathy L, Collins, Francis S

“…The Cures Act that President Obama has signed into law will provide the National Institutes of Health with critical tools and resources to advance biomedical…”
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A Survey of U.S Adults' Opinions about Conduct of a Nationwide Precision Medicine Initiative® Cohort Study of Genes and Environment by Kaufman, David J, Baker, Rebecca, Milner, Lauren C, Devaney, Stephanie, Hudson, Kathy L

“…A survey of a population-based sample of U.S adults was conducted to measure their attitudes about, and inform the design of the Precision Medicine…”
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Public Opinion about the Importance of Privacy in Biobank Research by Kaufman, David J., Murphy-Bollinger, Juli, Scott, Joan, Hudson, Kathy L.

“…Concerns about privacy may deter people from participating in genetic research. Recruitment and retention of biobank participants requires understanding the…”
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Genetic testing of embryos: practices and perspectives of US in vitro fertilization clinics by Baruch, Susannah, J.D, Kaufman, David, Ph.D, Hudson, Kathy L., Ph.D

“…Objective To better understand the current practices of IVF clinics regarding preimplantation genetic diagnosis (PGD) and explore the attitudes and opinions of…”
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Ten simple rules for open human health research by Bafeta, Aïda, Bobe, Jason, Clucas, Jon, Gonsalves, Pattie Pramila, Gruson-Daniel, Célya, Hudson, Kathy L, Klein, Arno, Krishnakumar, Anirudh, McCollister-Slipp, Anna, Lindner, Ariel B, Misevic, Dusan, Naslund, John A, Nebeker, Camille, Nikolaidis, Aki, Pasquetto, Irene, Sanchez, Gabriela, Schapira, Matthieu, Scheininger, Tohar, Schoeller, Félix, Sólon Heinsfeld, Anibal, Taddei, François

“…About the Authors: Aïda Bafeta Affiliation: Center for Research and Interdisciplinarity (CRI), Université de Paris, INSERM U1284, Paris, France ORCID logo…”
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Genomics, Health Care, and Society by Hudson, Kathy L

“…Advances in genomic approaches have affected biomedical research, clinical practice, and areas outside medicine. This article reviews societal issues raised by…”
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Toward a New Era of Trust and Transparency in Clinical Trials by Hudson, Kathy L, Lauer, Michael S, Collins, Francis S

“…Clinical trials are the most publicly visible component of the biomedical research enterprise, from the potential human application of novel laboratory…”
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Sharing and Reporting the Results of Clinical Trials by Hudson, Kathy L, Collins, Francis S

“…The principle of data sharing dates to the dawn of scientific discovery--it is how researchers from different disciplines and countries form collaborations,…”
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Bringing the Common Rule into the 21st Century by Hudson, Kathy L, Collins, Francis S

“…Proposed revisions to the rules governing the ethical conduct of research involving humans aim to enhance respect and safeguards for research participants and…”
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Undermining Genetic Privacy? Employee Wellness Programs and the Law by Hudson, Kathy L, Pollitz, Karen

“…A bill in the House of Representatives would substantially change legal protections related to the collection and treatment of genetic and other personal…”
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PCORnet: turning a dream into reality by Collins, Francis S, Hudson, Kathy L, Briggs, Josephine P, Lauer, Michael S

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The BRAIN Initiative: developing technology to catalyse neuroscience discovery by Jorgenson, Lyric A., Newsome, William T., Anderson, David J., Bargmann, Cornelia I., Brown, Emery N., Deisseroth, Karl, Donoghue, John P., Hudson, Kathy L., Ling, Geoffrey S. F., MacLeish, Peter R., Marder, Eve, Normann, Richard A., Sanes, Joshua R., Schnitzer, Mark J., Sejnowski, Terrence J., Tank, David W., Tsien, Roger Y., Ugurbil, Kamil, Wingfield, John C.

“…The evolution of the field of neuroscience has been propelled by the advent of novel technological capabilities, and the pace at which these capabilities are…”
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Keeping Pace with the Times — The Genetic Information Nondiscrimination Act of 2008 by Hudson, Kathy L, Holohan, M.K, Collins, Francis S

“…On May 21, President George Bush signed the Genetic Information Nondiscrimination Act (GINA). Kathy Hudson, M.K. Holohan, and Dr. Francis Collins write that at…”
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Biospecimen policy: Family matters by Hudson, Kathy L, Collins, Francis S

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In Support of SUPPORT — A View from the NIH by Hudson, Kathy L, Guttmacher, Alan E, Collins, Francis S

“…Debate over informed consent in SUPPORT (a study meant to identify oxygen-saturation levels for premature infants that minimize the risk of retinopathy) could…”
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Prohibiting Genetic Discrimination by Hudson, Kathy L

“…This year, the reintroduced Genetic Information Nondiscrimination Act has been winding through three House committees and one Senate committee. Kathy Hudson…”
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Preimplantation genetic diagnosis: public policy and public attitudes by Hudson, Kathy L

“…This paper summarizes the regulatory framework surrounding preimplantation genetic diagnosis (PGD) in the United States. In addition, the author reports…”
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Genetic testing oversight by Hudson, Kathy L

“…A major impact of sequencing the human genome has been the ability to detect disease and the risk of disease through genetic testing. However, no one in the US…”
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Genomics, Health Care, and Society by Hudson, Kathy L

“…Genetic tests are growing in number and in clinical relevance as a result of rapid advances in genomic technologies. The widespread availability of genomic…”
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Ethics. The ISSCR guidelines for human embryonic stem cell research by Daley, George Q, Ahrlund Richter, Lars, Auerbach, Jonathan M, Benvenisty, Nissim, Charo, R Alta, Chen, Grace, Deng, Hong-Kui, Goldstein, Lawrence S, Hudson, Kathy L, Hyun, Insoo, Junn, Sung Chull, Love, Jane, Lee, Eng Hin, McLaren, Anne, Mummery, Christine L, Nakatsuji, Norio, Racowsky, Catherine, Rooke, Heather, Rossant, Janet, Schöler, Hans R, Solbakk, Jan Helge, Taylor, Patrick, Trounson, Alan O, Weissman, Irving L, Wilmut, Ian, Yu, John, Zoloth, Laurie

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