"Development in well-being and social function among Danish hemophilia patients with HIV: a three-wave panel study spanning 24 years"

Between 1975 and 1985 a total of 91 Danish patients with moderate and severe hemophilia (PWH) was infected with HIV constituting a major scandal in the Danish health care system. This study describes the burden of HIV infection among Danish PWH by evaluating changes from 1988 to 2012 in well-being,...

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Bibliographic Details
Published in:	BMC public health Vol. 19; no. 1; p. 1714
Main Authors:	Ingvorsen, Emilie B, Schnohr, Christina, Andersen, Terkel, Lehrmann, Lars, Funding, Eva, Poulsen, Lone H, Holm, Karen B, Laursen, Alex L, Gerstoft, Jan, Bjorner, Jakob B
Format:	Journal Article
Language:	English
Published:	England BioMed Central Ltd 19-12-2019 BioMed Central BMC
Subjects:	Adolescent Adult Age Aged Aged, 80 and over Analysis Blood products Child Child, Preschool Correlation analysis Denmark - epidemiology Disease Employment Female Health aspects Hemophilia Hemophilia A - epidemiology Hemophilia A - psychology Hemophilia A - therapy Hepatitis HIV HIV infections HIV Infections - epidemiology HIV Infections - psychology HIV patients HIV tests Human immunodeficiency virus Humans Infant Infant, Newborn Infection Infections Longitudinal studies Male Medical research Mental Health - statistics & numerical data Middle Aged Mortality Patients Polls & surveys Psychological aspects Public health Quality of life Questionnaires Regression analysis Response rates Scandals Signs and symptoms Social aspects Social Behavior Social conditions Social Stigma Society Stigma Studies Surveys Surveys and Questionnaires Trends Variables Well-being Young Adult Denmark Well-being HIV Employment Stigma Social conditions Hemophilia
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Summary:	Between 1975 and 1985 a total of 91 Danish patients with moderate and severe hemophilia (PWH) was infected with HIV constituting a major scandal in the Danish health care system. This study describes the burden of HIV infection among Danish PWH by evaluating changes from 1988 to 2012 in well-being, social function, experiencing stigma and openness about disease among Danish HIV PWH. Three anonymous surveys were conducted in 1988, 2001 and 2012 targeting all Danish patients with moderate to severe hemophilia. Survey responses were received from 53, 21 and 18 HIV PWH respectively. A matched comparison sample of HIV PWH was identified for each survey-year, using propensity score matching. Differences for each survey-year and trends over time were analyzed using ordinal logistic regression. In 1988, HIV PWH had more psychosomatic symptoms than HIV PWH, but in 2001 life satisfaction was higher among HIV PWH than among HIV PWH. Tests of differences in trend over time showed larger improvements in life satisfaction among HIV PWH than HIV PWH, while HIV PWH showed an increase in educational level compared to HIV PWH. Analysis restricted to HIV PWH showed an increase in perceived stigmatization. Differences between Danish HIV and HIV PWH regarding well-being and psychosomatic symptoms seem to have evened out between 1988 and 2012. However, results suggest that HIV PWH still experience stigmatization and lower levels of education.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	1471-2458 1471-2458
DOI:	10.1186/s12889-019-8062-9