Search Results - "Hobby, Kenneth"

A qualitative study of perceptions of meaningful change in spinal muscular atrophy by McGraw, Sarah, Qian, Ying, Henne, Jeff, Jarecki, Jill, Hobby, Kenneth, Yeh, Wei-Shi

“…This qualitative study examined how individuals with Spinal Muscular Atrophy (SMA), their caregivers, and clinicians defined meaningful change, primarily in…”
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An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA members by Belter, Lisa, Cook, Suzanne F, Crawford, Thomas O, Jarecki, Jill, Jones, Cynthia C, Kissel, John T, Schroth, Mary, Hobby, Kenneth

“…The Cure SMA database is one of the largest patient reported databases for people affected with SMA. The purpose of this study was to examine a subset of…”
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Understanding the experiences and needs of individuals with Spinal Muscular Atrophy and their parents: a qualitative study by Qian, Ying, McGraw, Sarah, Henne, Jeff, Jarecki, Jill, Hobby, Kenneth, Yeh, Wei-Shi

“…The clinical features of SMA, which range along a spectrum of severity, are relatively well described. In contrast, the literature on how individuals with SMA…”
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Results from the Cure SMA Newly Diagnosed Survey by Belter, Lisa, Hobby, Kenneth, Cruz, Rosangel, Jarecki, Jill, Jones, Cynthia C, Reyna-Merida, Sandra

“…Purpose Purpose Since 1996, Cure SMA, an organization providing information to individuals diagnosed with spinal muscular atrophy (SMA) and their families has…”
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Results from the Cure SMA Newly Diagnosed Survey (P4.456) by Belter, Lisa, Cruz, Rosangel, Jarecki, Jill, Jones, Cynthia, Reyna, Sandra, Hobby, Kenneth

“…Abstract only…”
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Carrier testing for spinal muscular atrophy by Gitlin, Jonathan M, Fischbeck, Kenneth, Crawford, Thomas O., Cwik, Valerie, Fleischman, Alan, Gonye, Karla, Heine, Deborah, Hobby, Kenneth, Kaufmann, Petra, Keiles, Steven, MacKenzie, Alex, Musci, Thomas, Prior, Thomas, Lloyd-Puryear, Michele, Sugarman, Elaine A., Terry, Sharon F., Urv, Tiina, Wang, Ching, Watson, Michael, Yaron, Yuval, Frosst, Phyllis, Howell, R. Rodney

“…Spinal muscular atrophy is the most common fatal hereditary disease among newborns and infants. There is as yet no effective treatment. Although a carrier test…”
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THE EFFECT OF SIMULTANEOUS AND SUCCESSIVE WORD PROCESSING STRATEGIES ON THE READING RECOGNITION, SPELLING, AND SUCCESSIVE COGNITIVE PROCESSING OF ELEMENTARY SCHOOL LEARNING DISABLED STUDENTS DEFICIENT IN SUCCESSIVE COGNITIVE PROCESSING by HOBBY, KENNETH LESTER

“…Scope and Method of the Study. This study examined the effects of three types of teaching strategies on five dependent variables. The three types of teaching…”
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