Search Results - "Hersh, Aimee O."
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Change in Health Status and Access to Care in Young Adults With Special Health Care Needs: Results From the 2007 National Survey of Adult Transition and Health
Published in Journal of adolescent health (01-04-2013)“…Abstract Background Despite over 500,000 adolescents with special health care needs transitioning to adulthood each year, limited information is available on…”
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Prevalence of tissue transglutaminase antibodies and IgA deficiency are not increased in juvenile idiopathic arthritis: a case-control study
Published in Pediatric rheumatology online journal (05-10-2023)“…Abstract Background The prevalence of Celiac Disease (CD) in Juvenile Idiopathic Arthritis (JIA) has been reported to be 0.1–7% in various small studies. As a…”
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Shared genomic segments analysis identifies MHC class I and class III molecules as genetic risk factors for juvenile idiopathic arthritis
Published in HGG advances (11-04-2024)“…Juvenile idiopathic arthritis (JIA) is a complex rheumatic disease encompassing several clinically defined subtypes of varying severity. The etiology of JIA…”
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Research priorities in childhood-onset lupus: results of a multidisciplinary prioritization exercise
Published in Pediatric rheumatology online journal (01-07-2019)“…Childhood-onset systemic erythematosus lupus (cSLE) is characterized by more severe disease, widespread organ involvement and higher mortality compared to…”
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Immunogenetics of juvenile idiopathic arthritis: A comprehensive review
Published in Journal of autoimmunity (01-11-2015)“…Abstract Juvenile idiopathic arthritis (JIA) is the most common chronic inflammatory arthropathy of childhood. Juvenile idiopathic arthritis is believed to be…”
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Final adult height of patients with childhood-onset systemic lupus erythematosus: a cross sectional analysis
Published in Pediatric rheumatology online journal (23-04-2018)“…To compare final height to mid-parental target height among adults with childhood-onset systemic lupus erythematosus (cSLE) versus adult-onset SLE (aSLE), and…”
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Provision of preventive health care in systemic lupus erythematosus: data from a large observational cohort study
Published in Arthritis research & therapy (01-01-2010)“…Cancer and infections are leading causes of mortality in systemic lupus erythematosus (SLE) after diseases of the circulatory system, and therefore preventing…”
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Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey
Published in Pediatric rheumatology online journal (06-12-2011)“…For adolescents with a diagnosis of lifelong chronic illness, mastery of self-management skills is a critical component of the transition to adult care. This…”
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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis
Published in Journal of patient-reported outcomes (04-01-2018)“…Background Children with Juvenile Idiopathic Arthritis (JIA) often have poor health-related quality of life (HRQOL) despite advances in treatment…”
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The challenges of transferring chronic illness patients to adult care: reflections from pediatric and adult rheumatology at a US academic center
Published in Pediatric rheumatology online journal (08-06-2009)“…Little is known about the transfer of care process from pediatric to adult rheumatology for patients with chronic rheumatic disease. The purpose of this study…”
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Genetics of Juvenile Idiopathic Arthritis
Published in Rheumatic diseases clinics of North America (01-08-2017)“…Juvenile idiopathic arthritis (JIA) affects approximately 1 in 1000 US children. The cause of JIA is most likely multifactorial and due to an interplay of…”
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Health‐Related Quality of Life Measures in Childhood‐Onset Systemic Lupus Erythematosus
Published in Arthritis care & research (2010) (01-10-2020)Get full text
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Pulmonary veno-occlusive disease: Two children with gradual disease progression
Published in Respiratory medicine case reports (01-01-2017)“…Abstract Pulmonary veno-occlusive disease and pulmonary capillary hemangiomatosis are rare forms of pulmonary vascular disease. We report two cases of affected…”
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Disease activity and health-care utilization among young adults with childhood-onset lupus transitioning to adult care: data from the Pediatric Lupus Outcomes Study
Published in Lupus (01-09-2020)“…Background Individuals with childhood-onset systemic lupus erythematosus (cSLE) must transfer from pediatric to adult care. The goal of this study was to…”
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Childhood‐onset disease as a predictor of mortality in an adult cohort of patients with systemic lupus erythematosus
Published in Arthritis care & research (2010) (01-08-2010)“…Objective To examine childhood‐onset disease as a predictor of mortality in a cohort of adult patients with systemic lupus erythematosus (SLE). Methods Data…”
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Immunogenetics of cutaneous lupus erythematosus
Published in Current opinion in pediatrics (01-08-2016)“…Systemic lupus erythematosus (SLE) is the prototypic autoimmune condition, often affecting multiple organ systems, including the skin. Cutaneous lupus…”
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Use of EuroLupus Cyclophosphamide Dosing for the Treatment of Lupus Nephritis in Childhood-onset Systemic Lupus Erythematosus in North America
Published in Journal of rheumatology (01-06-2022)“…Childhood-onset systemic lupus erythematosus (cSLE) has higher rates of lupus nephritis (LN) than adult-onset SLE, often requiring intensive immunosuppression…”
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Differences in Healthcare Transition Views, Practices, and Barriers Among North American Pediatric Rheumatology Clinicians From 2010 to 2018
Published in Journal of rheumatology (01-09-2021)“…Objective Since 2010, the rheumatology community has developed guidelines and tools to improve healthcare transition. In this study, we aimed to compare…”
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Phase IIa Global Study Evaluating Rituximab for the Treatment of Pediatric Patients With Granulomatosis With Polyangiitis or Microscopic Polyangiitis
Published in Arthritis & rheumatology (Hoboken, N.J.) (01-01-2022)“…Objective To assess the safety, tolerability, pharmacokinetics, and efficacy of rituximab (RTX) in pediatric patients with granulomatosis with polyangiitis…”
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