Evaluation of activity limitation and social participation, and the effects of reconstructive surgery in people with disability due to leprosy: a prospective cohort study

Evaluation of activity limitation and social participation, and the effects of reconstructive surgery in people with disability due to leprosy: a prospective cohort study

Purpose. To assess how activity limitation and social participation of individuals with leprosy-related disability change over time, and to quantify the effect of reconstructive surgery. Method. Individuals with disability due to leprosy who accepted invitations for assessment at a leprosy clinic be...

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Bibliographic Details
Published in:Disability and rehabilitation Vol. 33; no. 8; pp. 667 - 674
Main Authors: van Veen, Natasja H. J., Hemo, Dinabandhu A., Bowers, Robert L., Pahan, David, Negrini, Jean-François, Velema, Johan P., Richardus, Jan Hendrik
Format: Journal Article
Language:English
Published: England Informa UK, Ltd 2011
Taylor & Francis
Subjects:
Activities of Daily Living
activity limitation
Adolescent
Adult
Analysis of Variance
Assessment
Clinics
Disability
Disability Evaluation
Disabled Persons - psychology
Disabled Persons - rehabilitation
Female
Follow-Up Studies
functioning
Humans
Leprosy
Leprosy - physiopathology
Leprosy - psychology
Leprosy - rehabilitation
Leprosy - surgery
Male
Middle Aged
Motor Activity
prospective follow-up study
Prospective Studies
Quality of Life - psychology
reconstructive surgery
Reconstructive Surgical Procedures
Recovery of Function
Sickness Impact Profile
Social participation
Social Participation - psychology
Socioeconomic Factors
Surgery
Young Adult
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Summary:Purpose. To assess how activity limitation and social participation of individuals with leprosy-related disability change over time, and to quantify the effect of reconstructive surgery. Method. Individuals with disability due to leprosy who accepted invitations for assessment at a leprosy clinic between March and July 2007 were interviewed using the SALSA Scale (measuring activity limitation) and the Participation Scale (assessing social participation). All participants were offered reconstructive surgery. Follow-up interviews were done 1 year after the first interview or 1 year after surgery. The main outcomes were changes in SALSA score and Participation score. We used analysis of variance to identify the effects of independent factors on mean SALSA and Participation scores. Results. We interviewed 222 participants, 15 of whom took up the offer of surgery and 207 who did not. Comparison of SALSA Scale scores at baseline and 1 year revealed that activity limitation did not significantly change over time in individuals who declined surgery; however, participants who had surgery showed a significant improvement at 1 year (p < 0.001). Social participation improved over time in both groups, but the difference was significant only in the non-surgery group (p < 0.001). Conclusions. The findings suggest that reconstructive surgery has beneficial effects on functioning. Evaluation of the need for, and effect of, surgery in larger studies is recommended.
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ISSN:0963-8288
1464-5165
DOI:10.3109/09638288.2010.506238