Search Results - "Hayden, Adam"
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Justice and genes Altered Inheritance Françoise Baylis Harvard University Press, 2019. 297 pp
Published in Science (American Association for the Advancement of Science) (04-10-2019)“…A new book offers an introduction to the ethical dimensions of germline gene editing With Altered Inheritance , bioethicist Françoise Baylis has authored a…”
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Knowledge, wisdom, and the brain The Neuroscientist Who Lost Her Mind : My Tale of Madness and Recovery Barbara K. Lipska with Elaine McArdle Houghton Mifflin Harcourt, 2018. 208 pp
Published in Science (American Association for the Advancement of Science) (23-03-2018)“…A neuroscientist's battle with brain cancer prompts a personal reflection on identity and the disease process In The Neuroscientist Who Lost Her Mind , Barbara…”
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Existential Care in Daily Nursing Practice: An overview of key care priorities
Published in The American journal of nursing (01-10-2023)“…Relationship-centered palliative nursing during serious illness requires existential care. Yet, multilevel systemic barriers hinder nurses’ ability to provide…”
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4
EPID-30. A TWITTER-BASED NETWORK ANALYSIS OF BRAIN TUMOR SOCIAL MEDIA (#BTSM)
Published in Neuro-oncology (Charlottesville, Va.) (11-11-2019)“…Abstract BACKGROUND The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for brain tumor patients…”
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INNV-05. SOCIAL MEDIA AND “TWEET CHAT ANALYSES” TO INFORM QOL AND PALLIATIVE CARE NEEDS IN PATIENTS WITH PRIMARY BRAIN TUMORS
Published in Neuro-oncology (Charlottesville, Va.) (11-11-2019)“…Abstract BACKGROUND Despite a standard of care protocol for the treatment of brain cancer, patients often suffer motor and cognitive deficits and chronic…”
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6
Existential Care in Daily Nursing Practice
Published in The American journal of nursing (01-10-2023)“…Relationship-centered palliative nursing during serious illness requires existential care. Yet, multilevel systemic barriers hinder nurses' ability to provide…”
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Journal Article -
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Top Ten Tips Palliative Care Clinicians Should Know About Attending to the Existential Experience
Published in Journal of palliative medicine (01-10-2024)“…Identifying and attending to the existential needs of persons with serious illness and their care partners are integral to whole-person palliative care (PC)…”
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Brain Tumor Discussions on Twitter (#BTSM): Social Network Analysis
Published in Journal of medical Internet research (08-10-2020)“…The Brain Tumor Social Media (#BTSM) Twitter hashtag was founded in February 2012 as a disease-specific hashtag for patients with brain tumor. To understand…”
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Identifying research priorities and essential elements of palliative care services for people facing malignant brain tumors: A participatory co-design approach
Published in Neuro-oncology practice (01-10-2024)“…Primary malignant brain tumors (ie, brain cancer) impact the quality of life (QoL) for patients and care partners in disease-specific ways involving cognition…”
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Stakeholder engagement in research on quality of life and palliative care for brain tumors: a qualitative analysis of #BTSM and #HPM tweet chats
Published in Neuro-oncology practice (01-12-2020)“…Abstract Background Research is needed to inform palliative care models that address the full spectrum of quality of life (QoL) needs for brain tumor patients…”
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11
Knowledge, wisdom, and the brain
Published in Science (American Association for the Advancement of Science) (23-03-2018)“…In The Neuroscientist Who Lost Her Mind, Barbara Lipska shares the story of her firsthand experience with metastatic brain cancer. In doing so, she provides…”
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