Search Results - "Halverson, Colin"

Lost in translation: the history of the Ebers Papyrus and Dr. Carl H. von Klein by Hartsock, Jane A, Halverson, Colin M.E

“…While the Ebers Papyrus is understood to be one of the oldest and most complete contemporaneous perspectives on Ancient Egyptian healing practices, nothing has…”
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Evolving Attitudes Toward Numeric Pain Assessment Among Patients with Hypermobile Ehlers-Danlos Syndrome: A Qualitative Interview Study by Halverson, Colin M E, Kroenke, Kurt, Penwell, Heather L, Francomano, Clair A

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A systematic literature review of individuals' perspectives on privacy and genetic information in the United States by Clayton, Ellen W, Halverson, Colin M, Sathe, Nila A, Malin, Bradley A

“…Concerns about genetic privacy affect individuals' willingness to accept genetic testing in clinical care and to participate in genomics research. To learn…”
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Patients' strategies for numeric pain assessment: a qualitative interview study of individuals with hypermobile Ehlers-Danlos Syndrome by Halverson, Colin M. E., Doyle, Tom A.

“…Chronic pain is a common feature of hypermobile Ehlers-Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood…”
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Diagnostic deserts: Community‐level barriers to appropriate genetics services by Doyle, Tom A., Conboy, Erin, Halverson, Colin M. E.

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Rare Disease, Advocacy and Justice: Intersecting Disparities in Research and Clinical Care by Halley, Meghan C., Halverson, Colin M. E., Tabor, Holly K., Goldenberg, Aaron J.

“…Rare genetic diseases collectively impact millions of individuals in the United States. These patients and their families share many challenges including…”
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Ethical conflicts in translational genetic research: lessons learned from the eMERGE-III experience by Halverson, Colin M.E., Bland, Harris T., Leppig, Kathleen A., Marasa, Maddalena, Myers, Melanie, Rasouly, Hila Milo, Wynn, Julia, Clayton, Ellen Wright

“…The Electronic Medical Records and Genomics (eMERGE) Consortium integrated biorepository-based research with electronic health records (EHR) to return results…”
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Patient interest in the development of a center for Ehlers-Danlos syndrome/hypermobility spectrum disorder in the Chicagoland region by Wagner, Wendy, Doyle, Tom A, Francomano, Clair A, Knight, Dacre R T, Halverson, Colin M E

“…The Ehlers-Danlos Syndromes (EDS) are a group of connective tissue disorders that are hereditary in nature and characterized by joint hypermobility and tissue…”
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Clinician-associated traumatization from difficult medical encounters: Results from a qualitative interview study on the Ehlers-Danlos Syndromes by Halverson, Colin M.E., Penwell, Heather L., Francomano, Clair A.

“…Patients with hypermobile Ehlers Danlos Syndrome often experience psychological distress resulting from the perceived hostility and disinterest of their…”
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Ending the pharmacogenomic gag rule: the imperative to report all results by Halverson, Colin Me, Pratt, Victoria M, Skaar, Todd C, Schwartz, Peter H

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Patient understanding of pharmacogenomic test results in clinical care by Doyle, Tom A., Schmidt, Karen K., Halverson, Colin M.E., Olivera, Jesus, Garcia, Abigail, Shugg, Tyler A., Skaar, Todd C., Schwartz, Peter H.

“…Previous research has not objectively assessed patients’ comprehension of their pharmacogenomic test results. In this study we assessed understanding of…”
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Standards and legacies: Pragmatic constraints on a uniform gene nomenclature by Halverson, Colin Michael Egenberger

“…Over the past half-century, there have been concerted efforts to standardize how clinicians and medical researchers refer to genetic material. However,…”
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Social media use by patients with hypermobile Ehlers–Danlos syndrome by Halverson, Colin M. E., Doyle, Tom A., Vershaw, Samantha

“…Background Patients with uncommon genetic conditions often face limited in‐person resources for social and informational support. Hypermobile Ehlers–Danlos…”
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Attitudes of African-American parents about biobank participation and return of results for themselves and their children by Halverson, Colin M E, Ross, Lainie Friedman

“…IntroductionBiobank-based research is growing in importance. A major controversy exists about the return of aggregate and individual research…”
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Use of complementary and alternative medicine by patients with hypermobile Ehlers-Danlos Syndrome: A qualitative study by Doyle, Tom A, Halverson, Colin M E

“…Patients with hypermobile Ehlers-Danlos Syndrome (hEDS) often make use of complementary and alternative medical (CAM) techniques to manage their chronic pain…”
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Assessing parental understanding of variant reclassification in pediatric neurology and developmental pediatrics clinics by Margolin, Amy, Helm, Benjamin M., Treat, Kayla, Prucka, Sandra K., Halverson, Colin M. E.

“…Improvements in technology used for genetic testing have yielded an increased numbers of variants that are identified, each with a potential to return…”
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Incidental findings of therapeutic misconception in biobank-based research by Halverson, Colin M.E., Ross, Lainie Friedman

“…This article explores expressions of therapeutic misconception (TM) in a deliberative-engagement project focused on the return of aggregate and individual…”
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Living Kidney Donors Who Develop Kidney Failure: Excerpts of Their Thoughts by Halverson, Colin M E, Wang, Jackie Y, Poulson, Michael, Karlin, Jennifer, Crowley-Matoka, Megan, Ross, Lainie F

“…Psychosocial data about living kidney donors have been collected for almost 5 decades now. To date, however, no study has provided any psychosocial follow-up…”
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Patients' willingness to reconsider cancer genetic testing after initially declining: Mention it again by Halverson, Colin M. E., Wessinger, Bronson C., Clayton, Ellen W., Wiesner, Georgia L.

“…Patients at risk for hereditary cancer syndromes sometimes decline clinically appropriate genetic testing. The purpose of the current study was to understand…”
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Content Analysis of Emoji and Emoticon Use in Clinical Texting Systems by Halverson, Colin M E, Donnelly, Claire E, Weiner, Michael, Lee, Joy L

“…Emoji and emoticons are quickly becoming an omnipresent feature of virtual communication. As health care systems increasingly adopt clinical texting…”
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