Outcome after referral for pediatric transplantation

Although heart, heart-lung, or lung transplantation is performed in more than 200 children annually, the number of patients referred for such procedures is considerably greater, and little is known about the outcome of those referrals. To determine the outcome of pediatric transplant referrals we re...

Full description

Saved in:

Bibliographic Details
Published in:	The Journal of heart and lung transplantation Vol. 12; no. 5; p. 766
Main Authors:	Steinberger, J, Haines, H C, Shumway, S J, Bolman, 3rd, R M, Rocchini, A P, Braunlin, E A
Format:	Journal Article
Language:	English
Published:	United States 01-09-1993
Subjects:	Adolescent Adult Cause of Death Child Child, Preschool Female Heart Diseases - diagnosis Heart Diseases - therapy Heart Transplantation - statistics & numerical data Heart-Lung Transplantation - statistics & numerical data Humans Infant Infant, Newborn Lung Diseases - diagnosis Lung Diseases - therapy Lung Transplantation - statistics & numerical data Male Minnesota - epidemiology Referral and Consultation - statistics & numerical data Survival Rate Treatment Outcome Waiting Lists Minnesota
Online Access:	Get more information
Tags:	Add Tag No Tags, Be the first to tag this record!

Description
Summary:	Although heart, heart-lung, or lung transplantation is performed in more than 200 children annually, the number of patients referred for such procedures is considerably greater, and little is known about the outcome of those referrals. To determine the outcome of pediatric transplant referrals we reviewed the follow-up of 31 patients evaluated at our institution for heart (24), heart-lung (three), or lung (four) transplantations between January 1991 and September 1992. Indications included hypoplastic left heart syndrome (seven patients), cardiomyopathy or myocarditis (seven patients), and postoperative congenital heart disease (10 patients) for heart transplantation; Eisenmenger's syndrome (three patients) for heart-lung transplantation; and primary pulmonary hypertension (two patients), broncho pulmonary dysplasia, and cystic fibrosis for lung transplantation. Only 14 of 31 referred patients were listed for transplantation; the remaining 17 patients either improved when medical therapy was maximized (nine patients), died within days of referral (three patients), refused (two patients), chose alternate surgery (one patient), were medically unacceptable (one patient), or are currently undecided (one patient). To date 7 of 14 patients listed have undergone successful heart transplantation; the remaining seven patients either improved and did not require transplantation (two patients), refused (one patient), died waiting (one patient), are currently awaiting a donor (one patient), or underwent Norwood procedure because of donor unavailability (two patients). Thus including patients who died before listing, only 14 of 31 referrals (45%) were deemed in need of a transplant.
ISSN:	1053-2498