Search Results - "Guerrini, Christi"

Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique by Guerrini, Christi J, Robinson, Jill O, Petersen, Devan, McGuire, Amy L

“…On April 24, 2018, a suspect in California's notorious Golden State Killer cases was arrested after decades of eluding the police. Using a novel forensic…”
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Science and its stakeholders by Guerrini, Christi J

“…Patients’ families became research partners in a quest to understand a rare genetic disease…”
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Science and its stakeholders We the Scientists: How a Daring Team of Parents and Doctors Forged a New Path for Medicine Amy Dockser Marcus Riverhead Books, 2023. 256 pp by Guerrini, Christi J

“…Patients' families became research partners in a quest to understand a rare genetic disease…”
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Genealogy databases and the future of criminal investigation by Ram, Natalie, Guerrini, Christi J, McGuire, Amy L

“…The police can access your online family-tree research—and use it to investigate your relatives The 24 April 2018 arrest of Joseph James DeAngelo as the…”
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Direct-to-Consumer Genetic Testing: Value and Risk by Majumder, Mary A, Guerrini, Christi J, McGuire, Amy L

“…Although the explosive growth of direct-to-consumer (DTC) genetic testing has moderated, a substantial number of patients are choosing to undergo genetic…”
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Citizen science, public policy by Guerrini, Christi J, Majumder, Mary A, Lewellyn, Meaganne J, McGuire, Amy L

“…New research models may benefit from policy modifications Citizen science initiatives that support collaborations between researchers and the public are…”
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Clinically Indicated Genomic Sequencing of Children in Foster Care: Legal and Ethical issues by Smith, Hadley Stevens, Bonkowski, Emily, Hickingbotham, Madison, Pereira, Stacey, May, Thomas, Guerrini, Christi

“…There are approximately 400,000 children in foster care in the US, about half of whom have chronic health problems and about 10% of whom have complex health…”
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Self-experimentation, ethics, and regulation of vaccines by Guerrini, Christi J, Sherkow, Jacob S, Meyer, Michelle N, Zettler, Patricia J

“…DIY COVID-19 vaccines raise legal and ethical questions As the coronavirus disease 2019 (COVID-19) pandemic continues to sweep the globe, several groups have…”
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Regulating genetic biohacking by Zettler, Patricia J, Guerrini, Christi J, Sherkow, Jacob S

“…Emphasize community engagement, not perfect compliance Just as the popularization of computers in the late 1970s and early 1980s gave rise to computer hacking,…”
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Myriad take two: Can genomic databases remain secret? by Guerrini, Christi J., McGuire, Amy L., Majumder, Mary A.

“…Trade-secrecy laws clash with a right to one's health data An ongoing legal challenge to the business model of Myriad Genetics highlights how recent policy…”
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Clarify the HIPAA right of access to individuals’ research data by Guerrini, Christi J., Botkin, Jeffrey R., McGuire, Amy L.

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Credit for and Control of Research Outputs in Genomic Citizen Science by Guerrini, Christi J, Contreras, Jorge L

“…Citizen science encompasses activities with scientific objectives in which members of the public participate as more than passive research subjects from whom…”
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The rise of the ethical license by Guerrini, Christi J, Curnutte, Margaret A, Sherkow, Jacob S, Scott, Christopher T

“…The Broad Institute's recent licensing of its gene editing patent portfolio demonstrates how licenses can be used to restrict controversial applications of…”
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A best–worst scaling experiment to prioritize concern about ethical issues in citizen science reveals heterogeneity on people-level v. data-level issues by Guerrini, Christi J., Crossnohere, Norah L., Rasmussen, Lisa, Bridges, John F. P.

“…“Citizen science” refers to the participation of lay individuals in scientific studies and other activities having scientific objectives. Citizen science gives…”
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Essential, not peripheral: Addressing health care workers’ mental health concerns during the COVID‐19 pandemic by Guerrini, Christi J., Storch, Eric A., McGuire, Amy L.

“…In this Opinion, we synthesize recent evidence regarding the mental health impacts of the pandemic with an emphasis on health care workers. Departing from the…”
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Correction: Core values of genomic citizen science: results from a qualitative interview study by Guerrini, Christi J., Trejo, Meredith, Canfield, Isabel, McGuire, Amy L.

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Who’s on third? Regulation of third-party genetic interpretation services by Guerrini, Christi J., Wagner, Jennifer K., Nelson, Sarah C., Javitt, Gail H., McGuire, Amy L.

“…ABSTRACT In recent years, third-party genetic interpretation services have emerged to help individuals understand their raw genetic data obtained from…”
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Core values of genomic citizen science: results from a qualitative interview study by Guerrini, Christi J., Trejo, Meredith, Canfield, Isabel, McGuire, Amy L.

“…Genomic citizen science initiatives that promote public involvement in the study or manipulation of genetic information are flourishing. These initiatives are…”
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IGG in the trenches: Results of an in-depth interview study on the practice, politics, and future of investigative genetic genealogy by Guerrini, Christi J., Bash Brooks, Whitney, Robinson, Jill O., Fullerton, Stephanie M., Zoorob, Emily, McGuire, Amy L.

“…Investigative genetic genealogy (IGG) is a new technique for identifying criminal suspects and unidentified deceased and living persons that has sparked…”
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Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services by Guerrini, Christi J., Robinson, Jill O., Bloss, Cinnamon C., Bash Brooks, Whitney, Fullerton, Stephanie M., Kirkpatrick, Brianne, Lee, Sandra Soo-Jin, Majumder, Mary, Pereira, Stacey, Schuman, Olivia, McGuire, Amy L.

“…In recent decades, genetic genealogy has become popular as a result of direct-to-consumer (DTC) genetic testing. Some DTC genetic testing companies offer…”
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