Search Results - "Goossensen, Anne"
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Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities: A Thematic Analysis of Their Blogs
Published in Global qualitative nursing research (01-06-2021)“…The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the…”
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Caregiving for ageing parents: A literature review on the experience of adult children
Published in Nursing ethics (01-09-2021)“…Background: More and more adults in their fifties and sixties are confronted with the need to support their ageing parents. Although many aspects of filial…”
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“Purely for You”: Inmates’ Perceptions of Prison Visitation by Volunteers in the Netherlands
Published in International journal of offender therapy and comparative criminology (01-10-2018)“…Research suggests that prison visitation by volunteers may significantly reduce the risk of recidivism. Community volunteers offer sustained, prosocial support…”
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The social–political challenges behind the wish to die in older people who consider their lives to be completed and no longer worth living
Published in Journal of European social policy (01-10-2018)“…In the Netherlands, physician-assisted dying has been legalized since 2002. Currently, an increasing number of Dutch citizens are in favour of a more relaxed…”
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Dying in times of the coronavirus: An online survey among healthcare professionals about end-of-life care for patients dying with and without COVID-19 (the CO-LIVE study)
Published in Palliative medicine (01-05-2021)“…Background: During the COVID-19 outbreak restricting measures may have affected the provision of good end-of-life care for patients with and without COVID-19…”
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CONCEPTUAL DESCRIPTION AND PHILOSOPHICAL UNDERPINNING OF THE SOCIAL INTERVENTION ‘ALZHEIMER WHISPERING’
Published in Journal of social intervention (30-06-2022)“…People suffering from dementia are at risk of social exclusion and isolation. To improve andenrich social interactions with their family members and…”
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“It is important that we also remain a person ourselves”: A qualitative study about the role of healthcare and social welfare services by Dutch parents caring for a child with profound intellectual and multiple disabilities at home
Published in SSM. Qualitative research in health (01-12-2023)“…Parenting a child with profound intellectual and multiple disabilities has great implications. Parents generally rely heavily on healthcare and social welfare…”
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Understanding the role and deployment of volunteers within specialist palliative care services and organisations as they have adjusted to the COVID-19 pandemic: A multi-national EAPC volunteer taskforce survey
Published in Palliative medicine (01-02-2023)“…Background: Early indications were of a major decline in specialist palliative care volunteer numbers during COVID-19. It is important that ongoing deployment…”
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Dignity reflections based on experiences of end‐of‐life care during the first wave of the COVID‐19 pandemic: A qualitative inquiry among bereaved relatives in the Netherlands (the CO‐LIVE study)
Published in Scandinavian journal of caring sciences (01-09-2022)“…Background The COVID‐19 pandemic affects care practices for critically ill patients, with or without a COVID‐19 infection, and may have affected the experience…”
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Dying in times of COVID-19: Experiences in different care settings – An online questionnaire study among bereaved relatives (the CO-LIVE study)
Published in Palliative medicine (01-04-2022)“…Background: The COVID-19 pandemic and restricting measures have affected end-of-life care across different settings. Aim: To compare experiences of bereaved…”
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‘New worlds open up’: A qualitative study on Wonder Lab practices in Dutch paediatric palliative care with parents, healthcare professionals, and students
Published in SSM. Qualitative research in health (01-12-2024)“…Within paediatric palliative care, it is essential for families and providers to have open, equal, and trusting relationships. In practice, however, building…”
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Experiences and Motivations Underlying Wishes to Die in Older People Who Are Tired of Living: A Research Area in its Infancy
Published in Omega: Journal of Death and Dying (01-10-2014)“…The wish to die in older people who are tired of living and the possibilities to organize death are currently being discussed within the debate on…”
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A Captive, a Wreck, a Piece of Dirt: Aging Anxieties Embodied in Older People With a Death Wish
Published in Omega: Journal of Death and Dying (01-12-2019)“…The aims of this present study were to explore the use and meaning of metaphors and images about aging in older people with a death wish and to elucidate what…”
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Impact of COVID-19 on care at the end of life during the first months of the pandemic from the perspective of healthcare professionals from different settings: a qualitative interview study (the CO-LIVE study)
Published in BMJ open (06-03-2023)“…ObjectivesThe objective of this study is to better understand how the COVID-19 outbreak impacted the different domains of the palliative care approach to…”
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How end-of-life care was limited during the first 18 months of the COVID-19 pandemic: a longitudinal survey study among healthcare providers (the CO-LIVE study)
Published in BMC palliative care (26-07-2024)“…During the COVID-19 pandemic, the way in which end-of-life care was provided, underwent a lot of changes and therefor different domains of end-of-life care…”
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Distress among healthcare providers who provided end-of-life care during the COVID-19 pandemic: a longitudinal survey study (the CO-LIVE study)
Published in BMC palliative care (28-05-2024)“…The COVID-19 pandemic had a significant impact on care at the end-of-life due to restrictions and other circumstances such as high workload and uncertainty…”
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'Someone must do it': multiple views on family's role in end-of-life care - an international qualitative study
Published in Palliative care and social practice (01-01-2024)“…Family is a crucial social institution in end-of-life care. Family caregivers are encouraged to take on more responsibility at different times during the…”
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Physician–patient communication in single-bedded versus four-bedded hospital rooms
Published in Patient education and counseling (01-11-2008)“…Abstract Objective To examine whether physician–patient communication in multi-bedded rooms differs from communication in single rooms during ward rounds…”
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Caring for children with profound intellectual and multiple disabilities: images and metaphors expressed by Dutch parents
Published in Disability & society (08-08-2024)“…Parenting a child with profound intellectual and multiple disabilities has expanded practical and existential implications. This study contributes to…”
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Evolution of Wernicke-Korsakoff Syndrome in Self-Neglecting Alcoholics: Preliminary Results of Relation with Wernicke-Delirium and Diabetes Mellitus
Published in The American journal on addictions (01-03-2012)“…We present a descriptive, retrospective study of initial symptoms, comorbidity, and alcohol withdrawal in 73 alcoholic patients with subsequent Korsakoff…”
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