Search Results - "Golden, Shannon L"
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Improving the Quality of Home Health Care for Children With Medical Complexity
Published in Academic pediatrics (01-08-2017)“…Abstract Objective The objectives of this study are to describe the quality of home health care services for children with medical complexity, identify…”
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Prognostic Awareness, Palliative Care Use, and Barriers to Palliative Care in Patients Undergoing Immunotherapy or Chemo-Immunotherapy for Metastatic Lung Cancer
Published in Journal of palliative medicine (01-06-2023)“…This study describes patients' prognostic awareness and palliative care use in the setting of immunotherapy for metastatic non-small cell lung cancer (mNSCLC)…”
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Developing pathways, a hope‐enhancing intervention for metastatic lung cancer patients receiving cancer treatment
Published in Psycho-oncology (Chichester, England) (01-06-2021)“…Objective Between 40% and 65% of lung cancer patients report concern about maintaining valued activities and roles, yet few interventions address this concern…”
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More than medications: a patient-centered assessment of Parkinson’s disease care needs during hospitalization
Published in Frontiers in aging neuroscience (28-09-2023)“…Background Parkinson’s disease (PD) increases the risk of hospitalization and complications while in the hospital. Patient-centered care emphasizes active…”
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Caregiver Perceptions about their Decision to Pursue Tracheostomy for Children with Medical Complexity
Published in The Journal of pediatrics (01-12-2018)“…To describe the perceptions of caregivers of children with medical complexity (CMC) about their decision to pursue tracheostomy for their children, in…”
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Telehealth for Children With Medical Complexity During the COVID Pandemic: A Qualitative Study Exploring Caregiver Experiences
Published in Clinical pediatrics (01-01-2024)“…Children with medical complexity (CMC) receive care from many clinicians. Our objective is to describe caregivers’ experiences about telehealth for CMC. This…”
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Inter-Agency Collaboration in the Care of Children with Complex Chronic Conditions
Published in Academic pediatrics (01-05-2012)“…Abstract Objectives The purpose of this article was to describe the network of collaboration among agencies that serve children with complex chronic conditions…”
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Tracheostomy decision-making for children with medical complexity: What supports and resources do caregivers need?
Published in Palliative & supportive care (01-08-2024)“…Caregivers of children with medical complexity (CMC) face decisions about life-sustaining interventions, such as tracheostomy. Our objective is to describe the…”
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Caregiver Voices: Coordinating Care for Children With Complex Chronic Conditions
Published in Clinical pediatrics (01-08-2012)“…Children with complex chronic conditions (CCC) receive care from multiple providers and agencies for a prolonged period of time. Coordination of care between…”
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Collaborative decision‐making: A framework for decision‐making about life‐sustaining treatments in children with medical complexity
Published in Pediatric pulmonology (01-12-2022)“…Objective Caregivers of children with medical complexity (CMC) face decisions about life‐sustaining treatments (LST) like tracheostomy. We sought to develop a…”
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Home Health Nursing Agencies’ Services for Children With Medical Complexity: Parent and Nurse Perspectives
Published in Academic pediatrics (01-04-2024)“…Many children with medical complexity (CMC) require the services of home health nurses (HHNs). Home health agencies (HHAs) hire, train, and manage nurses. For…”
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Decision-Making About Tracheostomy for Children With Medical Complexity: Caregiver and Health Care Provider Perspectives
Published in Academic pediatrics (01-11-2020)“…Caregivers of children with medical complexity (CMC) face decisions about tracheostomy. The objectives of this paper are to identify facilitators and barriers…”
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Feasibility of Systems Support Mapping to guide patient-driven health self-management in colorectal cancer survivors
Published in Psychology & health (04-05-2023)“…To evaluate feasibility of System Support Mapping (MAP), a systems thinking activity that involves creating a diagram of existing self-management activities…”
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Perceived Benefits of Peer Support Groups for Stroke Survivors and Caregivers in Rural North Carolina
Published in North Carolina medical journal (Durham, N.C.) (01-05-2019)“…Significant geographical disparities exist in stroke prevalence among southeastern states, including North Carolina. Additionally, stroke is more prevalent in…”
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Financial burden for caregivers of adolescents and young adults with cancer
Published in Psycho-oncology (Chichester, England) (01-08-2022)“…Objective Adolescent and young adult (AYA) cancer survivors are vulnerable to cancer‐related financial burden, which is likely shared by their caregivers. This…”
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Development and refinement of FoRtitude: An eHealth intervention to reduce fear of recurrence among breast cancer survivors
Published in Psycho-oncology (Chichester, England) (01-01-2020)Get full text
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The role of religion and spirituality in caregiver decision-making about tracheostomy for children with medical complexity
Published in Journal of health care chaplaincy (2022)“…Children with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion…”
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Factors Associated With Stability of Health Nursing Services for Children With Medical Complexity
Published in Home healthcare now (01-09-2017)“…The objectives of our study are to: (1) identify the factors associated with lack of stable home healthcare nursing services for children with medical…”
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Home Health Nurse Collaboration in the Medical Neighborhood of Children with Medical Complexity
Published in Home healthcare now (01-10-2016)“…The objectives of this study were to describe how home healthcare nurses collaborate with other clinicians caring for children with medical complexity, and…”
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Establishing Relationships and Navigating Boundaries When Caring for Children With Medical Complexity at Home
Published in Home healthcare now (01-03-2018)“…Children with medical complexity receive care from many healthcare providers including home healthcare nurses. The objective of our study, based on a…”
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