Search Results - "Gerido, Lynette Hammond"
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Predictors and Interdependence of Quality of Life in a Random Sample of Long‐Term Young Breast Cancer Survivors and Their Biological Relatives
Published in Cancer medicine (Malden, MA) (01-10-2024)“…ABSTRACT Purpose Quality of life (QOL) among young breast cancer survivors (YBCS) is often worse than QOL of older breast cancer survivors or age‐matched peers…”
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The Public Performativity of Trust
Published in The Hastings Center report (01-09-2023)“…Building trust between academic medical centers and certain communities they depend on in the research process is hard, particularly when those communities…”
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Information Needs of Breast Cancer Patients: Theory-Generating Meta-Synthesis
Published in Journal of medical Internet research (28-07-2020)“…Breast cancer has become one of the most frequently diagnosed carcinomas and the leading cause of cancer deaths. The substantial growth in the number of breast…”
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Racial Disparities in Breast Cancer and Genomic Uncertainty: A QuantCrit Mini-Review
Published in OPEN INFORMATION SCIENCE (18-04-2020)“…Abstract African American women are 39-44% more likely to die from breast cancer than white women. This stable racial disparity in mortality rates has…”
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Building a framework to understand and address vulnerability to reading difficulties among children in schools in the United States
Published in New directions for child and adolescent development (01-07-2022)“…This paper presents a vulnerability framework as a means to contextualize inequities in reading achievement among children who are vulnerable to poor reading…”
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A Crisis of Erasure: Transgender and Gender-Nonconforming Populations Navigating Breast Cancer Health Information
Published in The International journal of information, diversity, & inclusion (21-12-2021)“…In this paper, we use the topic of breast cancer as an example of health crisis erasure in both informational and institutional contexts, particularly within…”
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Big advocacy, little recognition: the hidden work of Black patients in precision medicine
Published in Journal of community genetics (01-12-2023)“…As cost-effective next-generation genome sequencing rapidly develops, calls for greater inclusion of Black people in genomic research, policy, and practice are…”
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Motivational interviewing for genetic counseling: A unified framework for persuasive and equipoise conversations
Published in Journal of genetic counseling (01-10-2022)“…Genetic counselors (GCs) have traditionally been trained to adopt a position of equipoise or clinical neutrality. They provide information, answer questions,…”
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The Michigan Genetic Hereditary Testing (MiGHT) study's innovative approaches to promote uptake of clinical genetic testing among cancer patients: a study protocol for a 3-arm randomized controlled trial
Published in Current controlled trials in cardiovascular medicine (10-02-2023)“…Although most cancers are sporadic, germline genetic variants are implicated in 5-10% of cancer cases. Clinical genetic testing identifies pathogenic germline…”
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Effects of cancer type and sex on genetic testing for clinician recommendation and uptake
Published in Journal of men's health (Amsterdam) (01-12-2023)“…This study investigated reasons for lower-than-expected uptake of germline genetic testing compared to national guidelines amongst adult patients with cancer,…”
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Psychosocial factors impacting barriers and motivators to cancer genetic testing
Published in Cancer medicine (Malden, MA) (01-04-2023)“…Background Only a small proportion of patients who qualify for clinical genetic testing for cancer susceptibility get testing. Many patient‐level barriers…”
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Emergent trends in research to increase participation of underrepresented populations in cancer clinical trials: A qualitative analysis of the HSRProj database
Published in Proceedings of the Association for Information Science and Technology (2017)“…ABSTRACT Over the years studies have been conducted to identify barriers to participation in clinical trials. Many researchers strive to discover…”
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Reliance on Advocacy is the Symptom Not the Disease
Published in American journal of bioethics (03-07-2023)Get full text
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Hastings Center Special Report, Volume 53, Issue 2 Time to Rebuild: Essays on Trust in Health Care and Science
Published in The Hastings Center report (01-09-2023)Get full text
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Surviving colorectal cancer: A study of information needs and health-related quality of life
Published in Journal of clinical oncology (01-10-2022)“…223 Background: Colorectal cancer (CRC) is a life changing process, which impacts survivors’ health-related quality of life (HRQoL). CRC survivors face new…”
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Patient Engagement in Medical Research Among Older Adults: Analysis of the Health Information National Trends Survey
Published in Journal of medical Internet research (29-10-2019)“…By 2035, it is expected that older adults (aged 65 years and older) will outnumber children and will represent 78 million people in the US population. As the…”
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Impact of barriers and motivators on intention and confidence to undergo hereditary cancer genetic testing
Published in Journal of genetic counseling (27-05-2024)“…Genetic testing for hereditary cancer syndromes can provide lifesaving information allowing for individualized cancer screening, prevention, and treatment…”
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The Unequal Burden of Breast Cancer: An Exploration of Information Behaviors and Racial Disparities in Genomic Screening Decisions
Published 01-01-2021“…This dissertation research explores health disparities through the lens of information behavior, as defined by Dervin’s Sense-making theory, and evaluates…”
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Dissertation -
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A Crisis of Erasure
Published in The International journal of information, diversity, & inclusion (01-12-2021)“…In this paper, we use the topic of breast cancer as an example of health crisis erasure in both informational and institutional contexts, particularly within…”
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An Ethical Approach to Genomic Privacy Preserving Technology Development
Published in 2024 IEEE 12th International Conference on Healthcare Informatics (ICHI) (03-06-2024)“…Demand for genomic research data and genetic testing results from cancer patients has grown exponentially. When a patient is diagnosed with a hereditary cancer…”
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Conference Proceeding