ICF Core Sets for the assessment of functioning of adults with cerebral palsy

ICF Core Sets for the assessment of functioning of adults with cerebral palsy

Aim To report on the results of the online international consensus process to develop the comprehensive and brief International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP). Method An online iterative decision‐making and consensus process i...

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Published in:Developmental medicine and child neurology Vol. 64; no. 5; pp. 569 - 577
Main Authors: Noten, Suzie, Selb, Melissa, Troenosemito, Lorenzo A A, Thorpe, Deborah E, Rodby‐Bousquet, Elisabet, Slot, Wilma M A, Roebroeck, Marij E, Ayllón, Carolina, Ballester‐Plané, Júlia, Berbrayer, David, Capan, Nalan, Chambers, Henry G, Fucs, Patricia M M B, Gallien, Philippe, Geboers, Susan, Hajjioui, Abderrazak, Heyn, Patricia C, Hilberink, Sander R, Joshi, Kirti, Langerak, Nelleke G, Marciniak, Christina M, Morgan, Prue E, Rosario, Eduardo, Schaardenburgh, Natascha, Schölderle, Theresa, Shanbhag, Deepthi N, Su, Ivan Y W, Trinh, Anne, Vogtle, Laura K, Gurtner, Beat
Format: Journal Article
Language:English
Published: England John Wiley and Sons Inc 01-05-2022
Subjects:
Activities of Daily Living
Adolescent
Adult
Annan hälsovetenskap
Cerebral Palsy - diagnosis
Child
Clinical Medicine
Consensus
Disability Evaluation
Disabled Persons
Health Sciences
Humans
Hälsovetenskap
Klinisk medicin
Medical and Health Sciences
Medicin och hälsovetenskap
Original
Other Health Sciences
Oto-rhino-laryngologi
Otorhinolaryngology
World Health Organization
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Summary:Aim To report on the results of the online international consensus process to develop the comprehensive and brief International Classification of Functioning, Disability and Health (ICF) Core Sets for adults with cerebral palsy (CP). Method An online iterative decision‐making and consensus process involved 25 experts, including clinicians and researchers working with adults with CP, an adult with CP, and the parents of adults with CP from all six regions of the World Health Organization. The most relevant categories were selected from a list of 154 unique second‐level candidate categories to develop the ICF Core Sets for adults with CP. This list resulted from evidence gathered during four preparatory studies, that is, a systematic literature review, a qualitative study, an expert survey, and an empirical study. Results The consensus process resulted in the comprehensive ICF Core Set containing 120 second‐level ICF categories: 33 body functions; eight body structures; 50 activities and participation; and 29 environmental factors, from which the most essential categories, 33 in total, were selected for the brief ICF Core Set. For body functions, most of the categories were mental functions and neuromusculoskeletal and movement‐related functions. Body structures were mostly related to movement. All the chapters of the activities and participation component were represented, with mobility and self‐care as the most frequently covered chapters. For environmental factors, most of the categories addressed products and technology and services, systems, and policies. Interpretation The comprehensive and brief ICF Core Sets for adults with CP were created using a new online version of an established ICF Core Set consensus process. These Core Sets complement the age‐specific ICF Core Sets for children and young people with CP and will promote standardized data collection worldwide. This original article is commented on by Pathak and Sharma on page 533 of this issue.
Bibliography:Members of the ICF Core Set for Adults with CP Consensus Group are listed in the Acknowledgements.
ISSN:0012-1622
1469-8749
1469-8749
DOI:10.1111/dmcn.15104