Search Results - "Fuehrer, Monika"
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1
Bone marrow versus peripheral blood as the stem cell source for sibling transplants in acquired aplastic anemia: survival advantage for bone marrow in all age groups
Published in Haematologica (Roma) (01-08-2012)“…Bone marrow has been shown to be superior to peripheral blood, as a stem cell source, in young patients (<20 years of age) with acquired aplastic anemia…”
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2
Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study
Published in Palliative medicine (01-03-2020)“…Background: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting…”
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3
“Collateral beauty.” Experiences and needs of professionals caring for parents continuing pregnancy after a life-limiting prenatal diagnosis: A grounded theory study
Published in Palliative medicine (01-06-2024)“…Background: Caring for parents continuing pregnancy after learning about a severe life-limiting condition in their unborn is challenging. Most existing studies…”
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“Hope for the best, prepare for the worst”: A qualitative interview study on parents’ needs and fears in pediatric advance care planning
Published in Palliative medicine (01-09-2017)“…Background: Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are…”
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5
Visualizing social support in home pediatric palliative care using network maps
Published in Palliative medicine (01-03-2020)“…Background: Home care of children with life-limiting diseases is extremely challenging for parents/family caregivers and their social environment. In order to…”
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6
How to Open the Door: A Qualitative, Observational Study on Initiating Advance Care Discussions with Parents in Pediatric Palliative Care
Published in Journal of palliative medicine (01-04-2022)“…Advance care discussions (ACD) between health care professionals (HCPs) and parents of children with a life-limiting disease are a core element of successful…”
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7
Participatory Development of a Modular Advance Care Planning Program in Pediatric Palliative Care (MAPPS)
Published in Journal of pain and symptom management (01-02-2022)“…Decision-making in pediatric palliative care concerns mainly children without decision-making capacity. It has to balance the child's best interests, parental…”
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Effectiveness of a specialized outpatient palliative care service as experienced by patients and caregivers
Published in Journal of palliative medicine (01-08-2013)“…In Germany since 2007 patients with advanced life-limiting diseases are eligible for Specialized Outpatient Palliative Care (SOPC). To provide this service,…”
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9
“More life and more days”—patient and care characteristics in a specialized acute pediatric palliative care inpatient unit
Published in European journal of pediatrics (01-04-2023)“…Only a few acute hospital inpatient units dedicated to pediatric palliative care (PPC) patients exist today. Clinical data on the patients and care provided at…”
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10
Pediatric advance care planning from the perspective of health care professionals: A qualitative interview study
Published in Palliative medicine (01-03-2015)“…Background: Pediatric advance care planning differs from the adult setting in several aspects, including patients’ diagnoses, minor age, and questionable…”
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Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals
Published in Journal of palliative medicine (01-03-2012)“…Little data are available on palliative home care for children. The objective of this study was to evaluate the effectiveness of a specialized pediatric…”
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Pediatric advance care planning: a systematic review
Published in Pediatrics (Evanston) (01-03-2013)“…Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults,…”
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13
Specialized pediatric palliative home care: a prospective evaluation
Published in Journal of palliative medicine (01-12-2013)“…In Germany since 2007 children with advanced life-limiting diseases are eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly…”
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14
Variable Clinical Courses of Varicella Zoster Virus Infection-related or Vaccination-related Bone Marrow Failure
Published in Journal of pediatric hematology/oncology (01-07-2024)“…We report 5 children with bone marrow failure (BMF) after primary varicella zoster virus (VZV) infection or VZV vaccination, highlighting the highly variable…”
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15
Specialized home palliative care for adults and children: differences and similarities
Published in Journal of palliative medicine (01-07-2014)“…To compare the provision of specialized home palliative care (SHPC) by the adult and pediatric SHPC teams at the Munich University Hospital. All patients…”
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Medical indication regarding life-sustaining treatment for children: Focus groups with clinicians
Published in Palliative medicine (01-12-2016)“…Background: Decisions about medical indication are a relevant problem in pediatrics. Difficulties arise from the high prognostic uncertainty, the decisional…”
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17
Absence of donor-derived keratinocyte stem cells in skin tissues cultured from patients after mobilized peripheral blood hematopoietic stem cell transplantation
Published in Experimental hematology (01-08-2002)“…Recent studies suggest that primitive bone marrow-derived cells contribute to regeneration of many tissues, including muscle, endothelium, myocardium, neural…”
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18
Allogeneic hematopoietic cell transplantation in Farber disease
Published in Journal of inherited metabolic disease (01-03-2019)“…Background Farber disease (FD) is a rare, lysosomal storage disorder caused by deficient acid ceramidase activity. FD has long been considered a fatal disorder…”
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19
Morphological differentiation of severe aplastic anaemia from hypocellular refractory cytopenia of childhood: reproducibility of histopathological diagnostic criteria
Published in Histopathology (01-07-2012)“…Baumann I, Führer M, Behrendt S, Campr V, Csomor J, Furlan I, de Haas V, Kerndrup G, Leguit R J, De Paepe P, Noellke P, Niemeyer C & Schwarz S (2012)…”
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20
Listening to parents: The role of symptom perception in pediatric palliative home care
Published in Palliative & supportive care (01-02-2016)“…This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care…”
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