Search Results - "Fuehrer, Monika"

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    Identifying key elements for paediatric advance care planning with parents, healthcare providers and stakeholders: A qualitative study by Hein, Kerstin, Knochel, Kathrin, Zaimovic, Vedrana, Reimann, Daniel, Monz, Anna, Heitkamp, Nari, Borasio, Gian Domenico, Führer, Monika

    Published in Palliative medicine (01-03-2020)
    “…Background: Although international guidelines recommend discussions about goals of care and treatment options for children with severe and life-limiting…”
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    Journal Article
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    “Collateral beauty.” Experiences and needs of professionals caring for parents continuing pregnancy after a life-limiting prenatal diagnosis: A grounded theory study by Wiesner, Konstanze, Hein, Kerstin, Borasio, Gian Domenico, Führer, Monika

    Published in Palliative medicine (01-06-2024)
    “…Background: Caring for parents continuing pregnancy after learning about a severe life-limiting condition in their unborn is challenging. Most existing studies…”
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    “Hope for the best, prepare for the worst”: A qualitative interview study on parents’ needs and fears in pediatric advance care planning by Lotz, Julia Desiree, Daxer, Marion, Jox, Ralf J, Borasio, Gian Domenico, Führer, Monika

    Published in Palliative medicine (01-09-2017)
    “…Background: Pediatric advance care planning is advocated by healthcare providers because it may increase the chance that patient and/or parent wishes are…”
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    Visualizing social support in home pediatric palliative care using network maps by Lindemann, Daniela, Borasio, Gian Domenico, Führer, Monika, Wasner, Maria

    Published in Palliative medicine (01-03-2020)
    “…Background: Home care of children with life-limiting diseases is extremely challenging for parents/family caregivers and their social environment. In order to…”
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    How to Open the Door: A Qualitative, Observational Study on Initiating Advance Care Discussions with Parents in Pediatric Palliative Care by Daxer, Marion, Monz, Anna, Hein, Kerstin, Heitkamp, Nari, Knochel, Kathrin, Borasio, Gian Domenico, Führer, Monika

    Published in Journal of palliative medicine (01-04-2022)
    “…Advance care discussions (ACD) between health care professionals (HCPs) and parents of children with a life-limiting disease are a core element of successful…”
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    Participatory Development of a Modular Advance Care Planning Program in Pediatric Palliative Care (MAPPS) by Knochel, Kathrin, Zaimovic, Vedrana, Gatzweiler, Birga, Hein, Kerstin K., Heitkamp, Nari, Monz, Anna, Reimann, Daniel, Borasio, Gian Domenico, Führer, Monika

    Published in Journal of pain and symptom management (01-02-2022)
    “…Decision-making in pediatric palliative care concerns mainly children without decision-making capacity. It has to balance the child's best interests, parental…”
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    Effectiveness of a specialized outpatient palliative care service as experienced by patients and caregivers by Groh, Gesa, Vyhnalek, Birgit, Feddersen, Berend, Führer, Monika, Borasio, Gian Domenico

    Published in Journal of palliative medicine (01-08-2013)
    “…In Germany since 2007 patients with advanced life-limiting diseases are eligible for Specialized Outpatient Palliative Care (SOPC). To provide this service,…”
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    “More life and more days”—patient and care characteristics in a specialized acute pediatric palliative care inpatient unit by Stoesslein, Sophie, Gramm, Julia D., Bender, Hans-Ulrich, Müller, Petra, Rabenhorst, Dorothee, Borasio, Gian Domenico, Führer, Monika

    Published in European journal of pediatrics (01-04-2023)
    “…Only a few acute hospital inpatient units dedicated to pediatric palliative care (PPC) patients exist today. Clinical data on the patients and care provided at…”
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    Pediatric advance care planning from the perspective of health care professionals: A qualitative interview study by Lotz, Julia D, Jox, Ralf J, Borasio, Gian Domenico, Führer, Monika

    Published in Palliative medicine (01-03-2015)
    “…Background: Pediatric advance care planning differs from the adult setting in several aspects, including patients’ diagnoses, minor age, and questionable…”
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    Effectiveness of a pediatric palliative home care team as experienced by parents and health care professionals by Vollenbroich, René, Duroux, Ayda, Grasser, Monika, Brandstätter, Monika, Borasio, Gian Domenico, Führer, Monika

    Published in Journal of palliative medicine (01-03-2012)
    “…Little data are available on palliative home care for children. The objective of this study was to evaluate the effectiveness of a specialized pediatric…”
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    Pediatric advance care planning: a systematic review by Lotz, Julia D, Jox, Ralf J, Borasio, Gian Domenico, Führer, Monika

    Published in Pediatrics (Evanston) (01-03-2013)
    “…Advance care planning (ACP) is increasingly regarded as the gold standard in the care of patients with life-limiting illnesses. Research has focused on adults,…”
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    Specialized pediatric palliative home care: a prospective evaluation by Groh, Gesa, Borasio, Gian Domenico, Nickolay, Carla, Bender, Hans-Ulrich, von Lüttichau, Irene, Führer, Monika

    Published in Journal of palliative medicine (01-12-2013)
    “…In Germany since 2007 children with advanced life-limiting diseases are eligible for Pediatric Palliative Home Care (PPHC), which is provided by newly…”
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    Specialized home palliative care for adults and children: differences and similarities by Groh, Gesa, Feddersen, Berend, Führer, Monika, Borasio, Gian Domenico

    Published in Journal of palliative medicine (01-07-2014)
    “…To compare the provision of specialized home palliative care (SHPC) by the adult and pediatric SHPC teams at the Munich University Hospital. All patients…”
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    Medical indication regarding life-sustaining treatment for children: Focus groups with clinicians by Lotz, Julia Desiree, Jox, Ralf J, Meurer, Christine, Borasio, Gian Domenico, Führer, Monika

    Published in Palliative medicine (01-12-2016)
    “…Background: Decisions about medical indication are a relevant problem in pediatrics. Difficulties arise from the high prognostic uncertainty, the decisional…”
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    Allogeneic hematopoietic cell transplantation in Farber disease by Ehlert, Karoline, Levade, Thierry, Di Rocco, Maja, Lanino, Edoardo, Albert, Michael H., Führer, Monika, Jarisch, Andrea, Güngör, Tayfun, Ayuk, Francis, Vormoor, Josef

    Published in Journal of inherited metabolic disease (01-03-2019)
    “…Background Farber disease (FD) is a rare, lysosomal storage disorder caused by deficient acid ceramidase activity. FD has long been considered a fatal disorder…”
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    Listening to parents: The role of symptom perception in pediatric palliative home care by Vollenbroich, René, Borasio, Gian Domenico, Duroux, Ayda, Grasser, Monika, Brandstätter, Monika, Führer, Monika

    Published in Palliative & supportive care (01-02-2016)
    “…This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care…”
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