A Thematic Analysis: Disparities of Palliative Care Delivery to Native American and Rural Family Caregivers
1. Participants will be able to describe the necessity to adapt, implement, and evaluate a nurse-driven palliative care model appropriate for Native American and rural family caregivers. 2. Participants will be able to identify the role a nurse plays in advocating for a palliative care model for Nat...
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| Published in: | Journal of pain and symptom management Vol. 67; no. 5; p. e704 |
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| Main Authors: | , , |
| Format: | Journal Article |
| Language: | English |
| Published: |
Elsevier Inc
01-05-2024
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| Online Access: | Get full text |
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| Summary: | 1. Participants will be able to describe the necessity to adapt, implement, and evaluate a nurse-driven palliative care model appropriate for Native American and rural family caregivers.
2. Participants will be able to identify the role a nurse plays in advocating for a palliative care model for Native American and rural culture.
A thematic analysis of eighteen multidisciplinary healthcare professionals delivering cancer care in the Great Plains region revealed the fundamental role nurses have in successfully developing and integrating a culturally responsive wraparound palliative care model respecting Native American and rural culture for family caregivers of those impacted by cancer.
Native American and rural patients with cancer and their caregivers (FCGs) face many barriers to receiving culturally responsive palliative care (PC). Understanding their unique strengths and needs will be imperative to adapting and implementing a comprehensive PC model to overcome these barriers.
The study purpose was to compare a literature review on Native American and rural FCGs with the findings of a qualitative study among healthcare professionals who deliver cancer care to a Native American and rural population.
A literature review of articles retrieved from PubMed, CINAHL, and EBSCOhost was conducted with the following inclusion criteria: published after 2020, English, peer-reviewed, and includes the key terms Native American, cancer, caregiver, nursing, palliative care. A thematic analysis of eighteen multidisciplinary healthcare professionals delivering cancer care at a rural cancer institute in the Great Plains region was conducted.
Three themes and ten sub-themes were revealed through qualitative analysis and were compared to the thematic findings of the literature review. Priority themes described by the healthcare professionals and the literature included: access, support, and awareness. Consideration of these core themes, coupled with the individual cultural circumstance, is critical in addressing disparities faced by many Native American and rural FCGs.
The successful development and integration of a culturally responsive wraparound PC model respecting Native American and rural culture is critical to advancing health equity for those impacted by cancer. Assimilation of the needs and circumstances of FCGs is evident and should influence the desired outcomes of the model and to make a positive, meaningful impact in promoting human health and well-being of FCGs.
Diversity, Equity, Inclusion, Belonging, Justice / Models of Palliative Care Delivery |
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| ISSN: | 0885-3924 1873-6513 |
| DOI: | 10.1016/j.jpainsymman.2024.02.179 |