How to talk about dying? The development of an evidence-based model for communication with patients in their last days of life and their family caregivers

To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family caregivers (FC) in nonemergency situations. We used a four-phase integrative appro...

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Bibliographic Details
Published in:	PEC innovation Vol. 5; p. 100309
Main Authors:	Felber, Sibylle J., Zambrano, Sofia C., Guffi, Tommaso, Schmitz, Felix M., Brem, Beate G., Schnabel, Kai P., Guttormsen, Sissel, Eychmüller, Steffen
Format:	Journal Article
Language:	English
Published:	Netherlands Elsevier B.V 15-12-2024 Elsevier
Subjects:	Communication Dying from Special issue on Palliative, hospice, and end-of-life care; Edited by Emily Mroz and Jordan Alpert Palliative care Patient centeredness Provider-patient communication Terminally ill Terminally ill Patient centeredness Palliative care Dying Provider-patient communication Communication
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Summary:	To help healthcare professionals (HCP) act with more confidence when communicating about approaching death, we sought to develop a communication model for HCP to facilitate conversations with dying patients and family caregivers (FC) in nonemergency situations. We used a four-phase integrative approach: (1) creation of a preliminary model based on a systematic literature review and expert knowledge, (2) review of the model draft by international palliative care experts, (3) review by key stakeholders, and (4) final appraisal by communication experts. After the clinical recognition of dying, the communication model provides a structure and practical communication aids for navigating the conversation based on three phases. It describes the content and relational level as core dimensions of effective conversations about approaching death and highlights the importance of HCP self-awareness and self-care when caring for the dying. Based on systematic involvement of key stakeholders, the model supports clinicians navigating challenging conversations about approaching death with dying patients and their FC successfully and with more confidence. This study expands the theoretical basis for communication about approaching death and offers a pragmatic model for educational interventions and clinical use. •A new model for talking about dying (TAD) was developed with key stakeholders.•The TAD model provides guidance for these often challenging conversations.•Beyond specific content, the relational dimension of communication is addressed.•Professionals' self-awareness and self-reflection are central to conversations about dying.•As an educational intervention, the model can be used from beginner to advanced levels.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23
ISSN:	2772-6282 2772-6282
DOI:	10.1016/j.pecinn.2024.100309