Search Results - "Fahner, Jurrianne C."
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When a child dies: a systematic review of well-defined parent-focused bereavement interventions and their alignment with grief- and loss theories
Published in BMC palliative care (12-03-2020)“…The availability of interventions for bereaved parents have increased. However, most are practice based. To enhance the implementation of bereavement care for…”
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Experiences with a national team-based learning program for advance care planning in pediatric palliative care
Published in BMC palliative care (03-08-2024)“…Advance Care Planning (ACP) enables patients and relatives to define and share values, goals and preferences for future medical treatment and care. The…”
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Interventions Guiding Advance Care Planning Conversations: A Systematic Review
Published in Journal of the American Medical Directors Association (01-03-2019)“…Advance care planning (ACP) is a communicative process of defining preferences for future medical care. Conversation guides support professionals to conduct…”
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Towards advance care planning in pediatrics: a qualitative study on envisioning the future as parents of a seriously ill child
Published in European journal of pediatrics (01-09-2020)“…Advance care planning enables parents to discuss goals and preferences for future care and treatment of their seriously ill child. Although clinicians report…”
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Survey of paediatricians caring for children with life‐limiting conditions found that they were involved in advance care planning
Published in Acta Paediatrica (01-05-2020)“…Aim Advance care planning (ACP) is a strategy to align future care and treatment with preferences of patients and families. This study assesses the experiences…”
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A grounded theory study on the dynamics of parental grief during the children's end of life
Published in Acta Paediatrica (01-05-2023)“…Aim Parents are increasingly confronted with loss during their child's end of life. Healthcare professionals struggle with parental responses to loss. This…”
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Anticipating the future of the child and family in pediatric palliative care: a qualitative study into the perspectives of parents and healthcare professionals
Published in European journal of pediatrics (01-03-2021)“…Preparing for future scenarios in pediatric palliative care is perceived as complex and challenging by both families and healthcare professionals. This…”
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Palliative care for children: methodology for the development of a national clinical practice guideline
Published in BMC palliative care (01-12-2023)“…Provision of paediatric palliative care for children with life-threatening or life-limiting conditions and their families is often complex. Guidelines can…”
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