Partnering in Research: A National Research Trial Exemplifying Effective Collaboration With American Indian Nations and the Indian Health Service

Despite the fact that numerous major public health problems have plagued American Indian communities for generations, American Indian participation in health research traditionally has been sporadic in many parts of the United States. In 2002, the University of Oklahoma Health Sciences Center (Oklah...

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Bibliographic Details
Published in:	American journal of epidemiology Vol. 180; no. 12; pp. 1202 - 1207
Main Authors:	CHADWICK, Jennifer Q, COPELAND, Kenneth C, DANIEL, Mary R, ERB-ALVAREZ, Julie A, FELTON, Beverly A, KHAN, Sohail I, SAUNKEAH, Bobby R, WHARTON, David F, PAYAN, Marisa L
Format:	Journal Article
Language:	English
Published:	Cary, NC Oxford University Press 15-12-2014 Oxford Publishing Limited (England)
Subjects:	Adolescent Biological and medical sciences Child Clinical Trials as Topic - methods Community-Based Participatory Research - organization & administration Cooperative Behavior Cultural differences Diabetes Mellitus, Type 2 - diagnosis Diabetes Mellitus, Type 2 - therapy Epidemiology General aspects Health problems Health services Humans Indians, North American Interinstitutional Relations Medical ethics Medical research Medical sciences Miscellaneous Native North Americans Oklahoma Practice of Epidemiology Public health Public health. Hygiene Public health. Hygiene-occupational medicine Research ethics United States United States Indian Health Service - organization & administration Asia India United States Oklahoma United States > US Oklahoma City Oklahoma Amerindian collaborative research American Indian health Health service Epidemiology American Indians Partnership Cooperation Scientific research Clinical trial Indian Community Public health community-based research
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Summary:	Despite the fact that numerous major public health problems have plagued American Indian communities for generations, American Indian participation in health research traditionally has been sporadic in many parts of the United States. In 2002, the University of Oklahoma Health Sciences Center (Oklahoma City, Oklahoma) and 5 Oklahoma American Indian research review boards (Oklahoma City Area Indian Health Service, Absentee Shawnee Tribe, Cherokee Nation, Chickasaw Nation, and Choctaw Nation) agreed to participate collectively in a national research trial, the Treatment Options for Type 2 Diabetes in Adolescence and Youth (TODAY) Study. During that process, numerous lessons were learned and processes developed that strengthened the partnerships and facilitated the research. Formal Memoranda of Agreement addressed issues related to community collaboration, venue, tribal authority, preferential hiring of American Indians, and indemnification. The agreements aided in uniting sovereign nations, the Indian Health Service, academics, and public health officials to conduct responsible and ethical research. For more than 10 years, this unique partnership has functioned effectively in recruiting and retaining American Indian participants, respecting cultural differences, and maintaining tribal autonomy through prereview of all study publications and local institutional review board review of all processes. The lessons learned may be of value to investigators conducting future research with American Indian communities.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 Abbreviations: IRB, institutional review board; MOA, Memorandum of Agreement; OUHSC, University of Oklahoma Health Sciences Center; P&P, Presentations and Publications; TODAY, Treatment Options for Type 2 Diabetes in Adolescents and Youth.
ISSN:	0002-9262 1476-6256
DOI:	10.1093/aje/kwu246