Why the Public Need a Say in How Patient Data are Used for Covid-19 Responses

The global coronavirus pandemic has clearly demonstrated the great urgency to collect and use patient data effectively to understand, track and manage the spread of Covid-19. The value of patient data in this pandemic is undeniable, however considerations around how - and by whom - such data should...

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Bibliographic Details
Published in:	International journal of population data science Vol. 5; no. 2; p. 1357
Main Authors:	Aitken, M, Cunningham-Burley, S, Darlington, A, Elstub, S, Escobar, O, Jones, K H, Sethi, N, Thompson, R
Format:	Journal Article
Language:	English
Published:	Wales Swansea University 23-06-2020
Subjects:	Covid-19 Patient Data Population Data Science Public Engagement Social Licence
Online Access:	Get full text
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Summary:	The global coronavirus pandemic has clearly demonstrated the great urgency to collect and use patient data effectively to understand, track and manage the spread of Covid-19. The value of patient data in this pandemic is undeniable, however considerations around how - and by whom - such data should be collected, accessed and used, and for what purposes, remain to be fully debated and resolved. Who decides, and how such decisions are made remain unclear. We argue that public engagement and deliberation are essential for good governance and are key to establish and maintain a legitimate social licence for data practices around Covid-19.
Bibliography:	ObjectType-Article-1 SourceType-Scholarly Journals-1 ObjectType-Feature-2 content type line 23 Statement of Competing Interests: None declared.
ISSN:	2399-4908 2399-4908
DOI:	10.23889/IJPDS.V5I2.1357