Search Results - "Ejem, Deborah"

Effect of an Early Palliative Care Telehealth Intervention vs Usual Care on Patients With Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial by Bakitas, Marie A, Dionne-Odom, J Nicholas, Ejem, Deborah B, Wells, Rachel, Azuero, Andres, Stockdill, Macy L, Keebler, Konda, Sockwell, Elizabeth, Tims, Sheri, Engler, Sally, Steinhauser, Karen, Kvale, Elizabeth, Durant, Raegan W, Tucker, Rodney O, Burgio, Kathryn L, Tallaj, Jose, Swetz, Keith M, Pamboukian, Salpy V

“…National guidelines recommend early palliative care for patients with advanced heart failure, which disproportionately affects rural and minority populations…”
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Palliative Care and Advance Care Planning Intervention Fidelity Monitoring by Verma Manisha, Grudzen Corita R, Izumi Seiko, Wenger, Neil, El-Jawahri Areej, Ejem Deborah, Aslakson, Rebecca A

“…Over the past decade, the Patient-Centered Outcomes Research Institute (PCORI) funded multiple large-scale, comparative effectiveness clinical trials…”
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How family caregivers of persons with advanced cancer assist with upstream healthcare decision-making: A qualitative study by Dionne-Odom, J Nicholas, Ejem, Deborah, Wells, Rachel, Barnato, Amber E, Taylor, Richard A, Rocque, Gabrielle B, Turkman, Yasemin E, Kenny, Matthew, Ivankova, Nataliya V, Bakitas, Marie A, Martin, Michelle Y

“…Numerous healthcare decisions are faced by persons with advanced cancer from diagnosis to end-of-life. The family caregiver role in these decisions has focused…”
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A lay navigator‐led, early palliative care intervention for African American and rural family caregivers of individuals with advanced cancer (Project Cornerstone): Results of a pilot randomized trial by Dionne‐Odom, J. Nicholas, Azuero, Andres, Taylor, Richard A., Dosse, Chinara, Bechthold, Avery C., Currie, Erin, Reed, Rhiannon D., Harrell, Erin R., Engler, Sally, Ejem, Deborah B., Ivankova, Nataliya V., Martin, Michelle Y., Rocque, Gabrielle B., Williams, Grant R., Bakitas, Marie A.

“…Background The objective of this study was to assess the feasibility, acceptability, and potential efficacy of ENABLE (Educate, Nurture, Advise, Before Life…”
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Resilience, preparedness, and distress among family caregivers of patients with advanced cancer by Dionne-Odom, J. Nicholas, Azuero, Andres, Taylor, Richard A., Wells, Rachel D., Hendricks, Bailey A., Bechthold, Avery C., Reed, Rhiannon D., Harrell, Erin R., Dosse, Chinara K., Engler, Sally, McKie, Peggy, Ejem, Deborah, Bakitas, Marie A., Rosenberg, Abby R.

“…Objective Resilience has been proposed as a primary factor in how many family caregivers of patients with advanced cancer are able to resist psychological…”
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A Review of Race and Ethnicity in Hospice and Palliative Medicine Research: Representation Matters by Rhodes, Ramona L., Barrett, Nadine J., Ejem, Deborah B., Sloan, Danetta H., Bullock, Karen, Bethea, Kenisha, Durant, Raegan W., Anderson, Gloria T., Hasan, Marisette, Travitz, Gracyn, Thompson, Anastatia, Johnson, Kimberly S.

“…Despite documented racial and ethnic disparities in care, there is significant variability in representation, reporting, and analysis of race and ethnic groups…”
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"When I do have some time, rather than spend it polishing silver, I want to spend it with my grandkids": a qualitative exploration of patient values following left ventricular assist device implantation by Bechthold, Avery C, McIlvennan, Colleen K, Matlock, Daniel D, Ejem, Deborah B, Wells, Rachel D, LeJeune, Jesse, Bakitas, Marie A, Odom, J Nicholas

“…Values are broadly understood to have implications for how individuals make decisions and cope with serious illness stressors, yet it remains uncertain how…”
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How Values Are Discussed, Reflected Upon, and Acted On by Patients and Family Caregivers in the Context of Heart Failure: A Scoping Review by Bechthold, Avery C., Knoepke, Christopher E., Ejem, Deborah B., McIlvennan, Colleen K., Wells, Rachel D., Matlock, Daniel D., Bakitas, Marie A., Dionne-Odom, J. Nicholas

“…Purpose Values are critical to how individuals make decisions and cope, yet the values of heart failure (HF) patients and their family caregivers (FCGs) remain…”
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“It's Not Just the Seizures”: Brain Tumor Caregivers’ Experiences and Educational Needs in Out-of-Hospital Seizure Management by Ejem, Deborah, Stockdill, Macy, Edwards, Rebecca, Dionne-Odom, J. Nicholas, Taylor, Richard, Baehr, Walter, Nabors, L. Burt, Bakitas, Marie, Warren, Paula

“…Objective: Family caregivers (FCGs) of persons with primary brain tumors (PBTs) report high levels of distress related to concerns about out-of-hospital…”
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The effects of caregiver emotional stress on the depressive symptomatology of the care recipient by Ejem, Deborah B., Drentea, Patricia, Clay, Olivio J.

“…Objectives: Depression is a leading mental health issue affecting elderly individuals worldwide. Previous research widely neglects caregiver emotional stress…”
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"Things That You Thought Mattered, None of That Matters": A Qualitative Exploration of Family Caregiver Values following Left Ventricular Assist Device Implantation by Bechthold, Avery C, McIlvennan, Colleen K, Matlock, Daniel D, Ejem, Deborah B, Wells, Rachel D, LeJeune, Jesse, Bakitas, Marie A, Odom, J Nicholas

“…Intentional exploration, or elicitation, of patient and family values-who/what matters most-is critical to the delivery of person-centered care, yet the values…”
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A Process Evaluation of Intervention Delivery for a Cancer Survivorship Rehabilitation Clinical Trial Conducted during the COVID-19 Pandemic by Stevens, Courtney J, Wechsler, Stephen, Ejem, Deborah B, Khalidi, Sarah, Coffee-Dunning, Jazmine, Morency, Jamme L, Thorp, Karen E, Codini, Megan E, Newman, Robin M, Echols, Jennifer, Cloyd, Danielle Z, Dos Anjos, Sarah, Muse, Colleen, Gallups, Sarah, Goedeken, Susan C, Flannery, Kaitlin, Bakitas, Marie A, Hegel, Mark T, Lyons, Kathleen Doyle

“…The purpose of the present study was to conduct a process evaluation of intervention delivery for a randomized controlled trial (RCT) conducted during the…”
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Effects of a Telehealth Early Palliative Care Intervention for Family Caregivers of Persons With Advanced Heart Failure: The ENABLE CHF-PC Randomized Clinical Trial by Dionne-Odom, J Nicholas, Ejem, Deborah B, Wells, Rachel, Azuero, Andres, Stockdill, Macy L, Keebler, Konda, Sockwell, Elizabeth, Tims, Sheri, Engler, Sally, Kvale, Elizabeth, Durant, Raegan W, Tucker, Rodney O, Burgio, Kathryn L, Tallaj, Jose, Pamboukian, Salpy V, Swetz, Keith M, Bakitas, Marie A

“…Family caregivers of persons with advanced heart failure perform numerous daily tasks to assist their relatives and are at high risk for distress and poor…”
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What Is Most Important to Family Caregivers When Helping Patients Make Treatment-Related Decisions: Findings from a National Survey by Bechthold, Avery C, Azuero, Andres, Puga, Frank, Ejem, Deborah B, Kent, Erin E, Ornstein, Katherine A, Ladores, Sigrid L, Wilson, Christina M, Knoepke, Christopher E, Miller-Sonet, Ellen, Odom, J Nicholas

“…Prioritizing patient values-who/what matters most-is central to palliative care and critical to treatment decision making. Yet which factors are most important…”
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African American Recruitment in Early Heart Failure Palliative Care Trials: Outcomes and Comparison With the ENABLE CHF-PC Randomized Trial by Stockdill, Macy L., Dionne-Odom, J. Nicholas, Wells, Rachel, Ejem, Deborah, Azuero, Andres, Keebler, Konda, Sockwell, Elizabeth, Tims, Sheri, Burgio, Kathryn L., Engler, Sally, Durant, Raegan, Pamboukian, Salpy V., Tallaj, Jose, Swetz, Keith M., Kvale, Elizabeth, Tucker, Rodney, Bakitas, Marie

“…Background: Palliative care trial recruitment of African Americans (AAs) is a formidable research challenge. Objectives: Examine AA clinical trial recruitment…”
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Caregiver Burden, Care Recipient Depressive Symptomology, and Social Exchange by Ejem Deborah, Bauldry Shawn, Bakitas Marie, Drentea, Patricia

“…Informal caregivers play a vital role in supporting seriously ill patients. However, informal caregiving is burdensome and can lead to negative health outcomes…”
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Engaging patients and families to create a feasible clinical trial integrating palliative and heart failure care: results of the ENABLE CHF-PC pilot clinical trial by Bakitas, Marie, Dionne-Odom, J Nicholas, Pamboukian, Salpy V, Tallaj, Jose, Kvale, Elizabeth, Swetz, Keith M, Frost, Jennifer, Wells, Rachel, Azuero, Andres, Keebler, Konda, Akyar, Imatullah, Ejem, Deborah, Steinhauser, Karen, Smith, Tasha, Durant, Raegan, Kono, Alan T

“…Early palliative care (EPC) is recommended but rarely integrated with advanced heart failure (HF) care. We engaged patients and family caregivers to study the…”
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Educate, Nurture, Advise, Before Life Ends Comprehensive Heartcare for Patients and Caregivers (ENABLE CHF-PC): study protocol for a randomized controlled trial by Wells, Rachel, Stockdill, Macy L, Dionne-Odom, J Nicholas, Ejem, Deborah, Burgio, Kathryn L, Durant, Raegan W, Engler, Sally, Azuero, Andres, Pamboukian, Salpy V, Tallaj, Jose, Swetz, Keith M, Kvale, Elizabeth, Tucker, Rodney O, Bakitas, Marie

“…Palliative care is specialized medical care for people with serious illness that is focused on providing relief from symptoms and stress and improving the…”
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Bias reported by family caregivers in support received when assisting patients with cancer‐related decision‐making by Dionne‐Odom, J. Nicholas, Ornstein, Katherine A., Azuero, Andres, Harrell, Erin R., Gazaway, Shena, Watts, Kristen Allen, Ejem, Deborah, Bechthold, Avery C., Lee, Kyungmi, Puga, Frank, Miller‐Sonet, Ellen, Williams, Grant R., Kent, Erin E.

“…Background Family caregivers play an increasing role in cancer treatment decision‐making. We examined bias reported by family caregivers in the support they…”
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Enhancing Efficiency and Reach Using Facebook to Recruit Breast Cancer Survivors for a Telephone-Based Supportive Care Randomized Trial During the COVID-19 Pandemic by Ejem, Deborah B, Wechsler, Stephen, Gallups, Sarah, Khalidi, Sarah, Coffee-Dunning, Jazmine, Montgomery, Aoyjay P, Stevens, Courtney J, Keene, Kimberly, Rocque, Gabrielle B, Chamberlin, Mary, Hegel, Mark T, Azuero, Andres, Pisu, Maria, Ellis, Daphne, Ingram, Stacey A, Lawhon, Valerie M, Gilbert, Tiffany, Morrissette, Kali, Morency, Jamme, Thorp, Karen, Codini, Megan, Newman, Robin, Echols, Jennifer, Cloyd, Danielle, Dos Anjos, Sarah, Muse, Colleen, Goedeken, Susan, Laws, Kristen Elizabeth, Herbert, Jennae, Bakitas, Marie, Lyons, Kathleen D

“…Evidence supporting social media-based recruitment of cancer survivors is limited. This paper describes how we used Facebook during the COVID-19 pandemic to…”
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