Search Results - "Douglas, Conor"

Methodology for constructing scenarios for health policy research: The case of coverage decision-making for drugs for rare diseases in Canada by Douglas, Conor M.W., Panagiotoglou, Dimitra, Dragojlovic, Nick, Lynd, Larry

“…•Here specific scenario methodology are described to help inform health policy.•Methods are demonstrated in coverage decision-making for drugs for rare…”
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Lessons learned from the Canadian Fabry Disease Initiative for future risk-sharing and managed access agreements for pharmaceutical and advanced therapies in Canada by Douglas, Conor M.W., Grunebaum, Shir

“…•Risk sharing agreements can deal with evidentiary uncertainty and contain drug costs.•Canada has relatively little experience with these health policy…”
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Social pharmaceutical innovation and alternative forms of research, development and deployment for drugs for rare diseases by Douglas, Conor M. W, Aith, Fernando, Boon, Wouter, de Neiva Borba, Marina, Doganova, Liliana, Grunebaum, Shir, Hagendijk, Rob, Lynd, Larry, Mallard, Alexandre, Mohamed, Faisal Ali, Moors, Ellen, Oliveira, Claudio Cordovil, Paterson, Florence, Scanga, Vanessa, Soares, Julino, Raberharisoa, Vololona, Kleinhout-Vliek, Tineke

“…Abstract Rare diseases are associated with difficulties in addressing unmet medical needs, lack of access to treatment, high prices, evidentiary mismatch,…”
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Why orphan drug coverage reimbursement decision-making needs patient and public involvement by Douglas, Conor M.W, Wilcox, Elizabeth, Burgess, Michael, Lynd, Larry D

“…Highlights • Patients and publics can play a role in orphan drugs coverage decision-making. • This could be in priority setting, criteria development, and…”
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Rethinking biobanking and translational medicine in the Netherlands: how the research process stands to matter for patient care by Douglas, Conor M W, Scheltens, Philip

“…Biobanking has been identified as one of the key components of translational medicine, and while current models for translation tend to focus their attention…”
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Governing synthetic biology for global health through responsible research and innovation by Douglas, Conor M. W., Stemerding, Dirk

“…Synthetic biology (SynBio) is a global endeavour with research and development programs in many countries, and due (in part) to its multi-use characteristics…”
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Parental perspectives on retention and secondary use of neonatal dried bloodspots: a Dutch mixed methods study by Jansen, Marleen E, van den Bosch, Lion J M, Hendriks, Marjolein J, Scheffer, Mariska M J, Heijnen, Marie-Louise, Douglas, Conor M W, van El, Carla G

“…Neonatal bloodspot screening (NBS) identifies conditions to offer early intervention and minimize irreversible damage. NBS policies guide a comprehensive…”
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Challenges for the European governance of synthetic biology for human health by Douglas, Conor MW, Stemerding, Dirk

“…Synthetic biology is a series of scientific and technological practices involved in the application of engineering principles to the design and production of…”
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Governing the research-care divide in clinical biobanking: Dutch perspectives by Boeckhout, Martin, Douglas, Conor M.W.

“…Biobanking, the large-scale, systematic collection of data and tissue for open-ended research purposes, is on the rise, particularly in clinical research. The…”
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Governing biological material at the intersection of care and research: the use of dried blood spots for biobanking by Douglas, Conor M W, van El, Carla G, Faulkner, Alex, Cornel, Martina C

“…A series of governance issues currently surrounds the multiple uses and multiple users of dried blood spots (DBS) for research purposes. Internationally there…”
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Special issue editorial: synthetic biology, global health, and its global governance by Douglas, Conor M. W., Stemerding, Dirk

“…Issue Title: Special Issue: Synthetic Biology, Global Health,and its Global Governance…”
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International Experiences and Made-in-Canada "Social Pharmaceutical Innovations" as Responses to Challenges Facing Drugs for Rare Diseases by Douglas, Conor M W

“…Significant challenges are associated with the availability of and access to treatments for rare diseases. In this issue, Sirrs et al. (2023) frame challenges…”
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Mothers' Views on Longer Storage of Neonatal Dried Blood Spots for Specific Secondary Uses by van Teeffelen, Sarah R, Douglas, Conor M W, van El, Carla G, Weinreich, Stephanie S, Henneman, Lidewij, Radstake, Maud, Cornel, Martina C

“…Neonatal dried blood spots (DBS) present a wealth of data. Currently, many countries discuss DBS storage, management and use. We collected data in the…”
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The Roles of User/Producer Hybrids in the Production of Translational Science by Douglas, Conor M.W., Lander, Bryn, Fairley, Cory, Atkinson-Grosjean, Janet

“…This paper explores the interface between users and producers of translational science (TS) through three case studies. It argues that effective TS requires a…”
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The Role of Bioinformatics in Facilitating Translational Science and Medicine by Conor M.W. Douglas

“…Significant challenges exist around the translation of the enormous amounts of data generated from large-scale gene and genome sequencing that has been…”
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Davis, C. and Abraham, J.Unhealthy Pharmaceutical Regulation: Innovation, Politics and Promissory Science. Basingstoke: Palgrave Macmillan. 2013. 336pp £65.00 (hbk) ISBN: 978–0‐230–00866–3 by Douglas, Conor M. W.

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Evaluating Canadians’ Values for Drug Coverage Decision Making by Rizzardo, Shirin, Bansback, Nick, Dragojlovic, Nick, Douglas, Conor, Li, Kathy H., Mitton, Craig, Marra, Carlo, Blanis, Litsa, Lynd, Larry D.

“…Decision makers are facing growing challenges in prioritizing drugs for reimbursement because of soaring drug costs and increasing pressures on financial…”
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Editors introduction: biobanks as sites of bio-objectification by Stephens, Neil, Brown, Nik, Douglas, Conor

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Machine-learning strategies for the accurate and efficient analysis of x-ray spectroscopy by Penfold, Thomas, Watson, Luke, Middleton, Clelia, David, Tudur, Verma, Sneha, Pope, Thomas, Kaczmarek, Julia, Rankine, Conor

“…Abstract Computational spectroscopy has emerged as a critical tool for researchers looking to achieve both qualitative and quantitative interpretations of…”
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Editorial: Reflections on Dr. Olga Amsterdamska by Kwa, Chunglin, Douglas, Conor

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