Search Results - "Di Pietro, Louisa"

Survey of healthcare experiences of Australian adults living with rare diseases by Molster, Caron, Urwin, Debra, Di Pietro, Louisa, Fookes, Megan, Petrie, Dianne, van der Laan, Sharon, Dawkins, Hugh

“…Few studies have examined whether the healthcare needs of people living with rare diseases are being met. This study explores the experiences of Australian…”
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Making community voices heard in a research-health service alliance, the evolving role of the Community Advisory Group: a case study from the members' perspective by Wale, Janet L, Di Pietro, Louisa, Renton, Heather, Sahhar, Margaret, Walker, Christine, Williams, Pamela, Meehan, Karen, Lynch, Elly, Martyn, Melissa, Bell, Jane, Winship, Ingrid, Gaff, Clara L

“…The Melbourne Genomics Health Alliance (the Alliance) is a collaboration of leading hospitals, research and academic organisations, supported by its member…”
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"I'm Healthy, It's Not Going To Be Me": Exploring experiences of carriers identified through a population reproductive genetic carrier screening panel in Australia by Beard, Catherine A., Amor, David J., Di Pietro, Louisa, Archibald, Alison D.

“…Advancing genetic testing technologies mean that population‐based carrier screening for multiple inherited conditions is now available. As the number of…”
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