Search Results - "Desmond, Hailey"

TRPC6 Inhibitor BI 764198 in Focal Segmental Glomerulosclerosis: Phase 2 Study Design by Trachtman, Howard, Kretzler, Matthias, Desmond, Hailey E., Choi, Wansuk, Manuel, Raymond C., Soleymanlou, Nima

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The Health Economic Impact of Nephrotic Syndrome in the United States by Simon, Christine A, Salmon, Eloise, Desmond, Hailey E, Massengill, Susan F, Gipson, Wilson P, Gipson, Debbie S

“…Nephrotic syndrome (NS) is a rare kidney syndrome with high morbidity. Although a common contributor to the burden of chronic kidney disease, the direct and…”
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FSGS Recurrence Collaboration: Report of a Symposium by Gipson, Debbie S., Wang, Chia-shi, Salmon, Eloise, Gbadegesin, Rasheed, Naik, Abhijit, Sanna-Cherchi, Simone, Fornoni, Alessia, Kretzler, Matthias, Merscher, Sandra, Hoover, Paul, Kidwell, Kelley, Saleem, Moin, Riella, Leonardo, Holzman, Lawrence, Jackson, Annette, Olabisi, Opeyemi, Cravedi, Paolo, Freedman, Benjamin Solomon, Himmelfarb, Jonathan, Vivarelli, Marina, Harder, Jennifer, Klein, Jon, Burke, George, Rheault, Michelle, Spino, Cathie, Desmond, Hailey E., Trachtman, Howard

“…Since it was first described more than 50 years ago, recurrence of FSGS in kidney allografts has frustrated the transplant community. This rare condition is…”
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Health-Related Quality of Life in Focal Segmental Glomerular Sclerosis and Minimal Change Disease: A Qualitative Study of Children and Adults to Inform Patient-Reported Outcomes by Carlozzi, Noelle E., Massengill, Susan F., Trachtman, Howard, Walsh, Liron, Singhal, Neena, LaVigne, Joseph M., Miner, Jennifer A., Desmond, Hailey E., Lynam, Christian, Gipson, Debbie S.

“…Assessment of how patients feel and function is needed for clinical care and research for focal segmental glomerulosclerosis (FSGS) and minimal change disease…”
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Developing an Edema Clinician-Reported Outcome Measure for Nephrotic Syndrome by Gipson, Debbie S., Pal, Maisha, Desmond, Hailey, Anderson, Charles, Walsh, Liron, Trachtman, Howard, Massengill, Susan F., Gipson, Patrick, Rao, Panduranga S., Thurman, Joshua, Kopp, Jeffrey, Kamil, Elaine, Lamothe, Jennifer, Mariani, Laura H., LaFleur, Paula, Vento, Suzanne, O’Shaughnessy, Michelle, Farag, Youssef M.K., Simon, Christine, Carlozzi, Noelle E.

“…Introduction: Edema is a common manifestation of proteinuric kidney diseases, but there is no consensus approach for reliably evaluating edema. The objective…”
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The Development and Use of an EHR-Linked Database for Glomerular Disease Research and Quality Initiatives by Eikstadt, Richard N., Desmond, Hailey E., Lindner, Clare, Chen, Liz Yao, Courtlandt, Cheryl D., Massengill, Susan F., Kamil, Elaine S., Lafayette, Richard, Pesenson, Anne, Elliott, Matthew, Gipson, Patrick E., Gipson, Debbie S.

“…Background and Objective: The use of electronic health record (EHR) data can facilitate efficient research and quality initiatives. The imprecision of ICD-10…”
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Steroid-Associated Side Effects in Patients With Primary Proteinuric Kidney Disease by Oh, Gia J., Waldo, Anne, Paez-Cruz, Francisco, Gipson, Patrick E., Pesenson, Anne, Selewski, David T., Kamil, Elaine S., Massengill, Susan F., Lafayette, Richard A., Modes, Meg, Adler, Sharon G., Desmond, Hailey, Eikstadt, Richard, Attalla, Samara, Modi, Zubin J., Troost, Jonathan P., Gipson, Debbie S.

“…The goal of this study was to assess the occurrence of steroid-associated adverse events (SAAE) in patients with primary proteinuric kidney disease. The Kidney…”
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Association between Psychiatric Disorders and Glomerular Disease by Desmond, Hailey E., Lindner, Clare, Troost, Jonathan P., Held, Zack, Callaway, Andrea, Oh, Gia J., Lafayette, Richard, O’Shaughnessy, Michelle, Elliott, Matthew, Adler, Sharon G., Kamil, Elaine S., Pesenson, Anne, Selewski, David T., Gipson, Patrick E., Carlozzi, Noelle E., Gipson, Debbie S., Massengill, Susan F.

“…Introduction: Patients with chronic health conditions, particularly chronic kidney disease, are at heightened risk for psychiatric disorders; yet, there are…”
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NephCure Accelerating Cures Institute: A Multidisciplinary Consortium to Improve Care for Nephrotic Syndrome by Gipson, Debbie S., Selewski, David T., Massengill, Susan F., Modes, Mary Margaret, Desmond, Hailey, Lee, Lauren, Kamil, Elaine, Elliott, Matthew R., Adler, Sharon G., Oh, Gia, Lafayette, Richard A., Gipson, Patrick E., Sinha, Aditi, Bagga, Arvind, Pesenson, Anne, Courtlandt, Cheryl, Spino, Cathie, Eikstadt, Richard, Pitter, Renée, Attalla, Samara, Waldo, Anne, Winneker, Richard, Carlozzi, Noelle E., Troost, Jonathan P., Smokler, Irving, Stone, Mark

“…NephCure Accelerating Cures Institute (NACI) is a collaborative organization sponsored by NephCure Kidney International and the University of Michigan. The…”
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FSGS Recurrence: Status Report on a New International Collaborative: PUB234 by Salmon, Eloise, Naik, Abhijit S., Fornoni, Alessia, Desmond, Hailey, Gbadegesin, Rasheed A., Kretzler, Matthias, Riella, Leonardo V., Trachtman, Howard, Gipson, Debbie

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Pediatric contributions and lessons learned from the NEPTUNE cohort study by Modi, Zubin J., Zhai, Yan, Yee, Jennifer, Desmond, Hailey, Hao, Wei, Sampson, Matthew G., Sethna, Christine B., Wang, Chia-shi, Gipson, Debbie S., Trachtman, Howard, Kretzler, Matthias

“…Primary glomerular diseases are rare entities. This has hampered efforts to better understand the underlying pathobiology and to develop novel safe and…”
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Precision Medicine Proof-of-Concept Study of a TNF Inhibitor in FSGS and Treatment-Resistant Minimal Change Disease by Trachtman, Howard, Modi, Zubin J., Ju, Wenjun, Lee, Edmond, Chinnakotla, Silpa, Massengill, Susan, Sedor, John, Mariani, Laura, Zhai, Yan, Hao, Wei, Desmond, Hailey, Eddy, Sean, Ramani, Karthik, Spino, Cathie, Kretzler, Matthias

“…Background: Focal segmental glomerulosclerosis (FSGS) and treatment-resistant minimal change disease (TR-MCD) are heterogeneous disorders with subgroups…”
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Validating a Computable Phenotype for Nephrotic Syndrome in Children and Adults Using PCORnet Data by Oliverio, Andrea L, Marchel, Dorota, Troost, Jonathan P, Ayoub, Isabelle, Almaani, Salem, Greco, Jessica, Tran, Cheryl L, Denburg, Michelle R, Matheny, Michael, Dorn, Chad, Massengill, Susan F, Desmond, Hailey, Gipson, Debbie S, Mariani, Laura H

“…Primary nephrotic syndromes are rare diseases which can impede adequate sample size for observational patient-oriented research and clinical trial enrollment…”
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Health-Related Quality of Life in Focal Segmental Glomerular Sclerosis and Minimal Change Disease: A Qualitative Study of Children and Adults to Inform Patient-Reported OutcomesPlain-Language Summary by Noelle E. Carlozzi, Susan F. Massengill, Howard Trachtman, Liron Walsh, Neena Singhal, Joseph M. LaVigne, Jennifer A. Miner, Hailey E. Desmond, Christian Lynam, Debbie S. Gipson

“…Rationale & Objective: Assessment of how patients feel and function is needed for clinical care and research for focal segmental glomerulosclerosis (FSGS) and…”
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