Acquisition, Analysis, and Sharing of Data in 2015 and Beyond: A Survey of the Landscape: A Conference Report From the American Heart Association Data Summit 2015

A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies...

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Published in:	Journal of the American Heart Association Vol. 4; no. 11
Main Authors:	Antman, Elliott M, Benjamin, Emelia J, Harrington, Robert A, Houser, Steven R, Peterson, Eric D, Bauman, Mary Ann, Brown, Nancy, Bufalino, Vincent, Califf, Robert M, Creager, Mark A, Daugherty, Alan, Demets, David L, Dennis, Bernard P, Ebadollahi, Shahram, Jessup, Mariell, Lauer, Michael S, Lo, Bernard, MacRae, Calum A, McConnell, Michael V, McCray, Alexa T, Mello, Michelle M, Mueller, Eric, Newburger, Jane W, Okun, Sally, Packer, Milton, Philippakis, Anthony, Ping, Peipei, Prasoon, Prad, Roger, Véronique L, Singer, Steve, Temple, Robert, Turner, Melanie B, Vigilante, Kevin, Warner, John, Wayte, Patrick
Format:	Journal Article Conference Proceeding
Language:	English
Published:	England John Wiley and Sons Inc 05-11-2015
Subjects:	Access to Information AHA Conference Proceedings American Heart Association Biomedical Research - organization & administration Biomedical Research - trends Cardiology - organization & administration Cardiology - trends Cardiovascular Diseases - diagnosis Cardiovascular Diseases - etiology Cardiovascular Diseases - therapy Consensus Cooperative Behavior Data Mining - trends Databases, Factual - trends Diffusion of Innovation Forecasting Humans Information Dissemination Interdisciplinary Communication Stroke - diagnosis Stroke - etiology Stroke - therapy United States epidemiology data mobile health preclinical clinical trials ethics AHA Scientific Statements
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Summary:	A 1.5-day interactive forum was convened to discuss critical issues in the acquisition, analysis, and sharing of data in the field of cardiovascular and stroke science. The discussion will serve as the foundation for the American Heart Association's (AHA's) near-term and future strategies in the Big Data area. The concepts evolving from this forum may also inform other fields of medicine and science. A total of 47 participants representing stakeholders from 7 domains (patients, basic scientists, clinical investigators, population researchers, clinicians and healthcare system administrators, industry, and regulatory authorities) participated in the conference. Presentation topics included updates on data as viewed from conventional medical and nonmedical sources, building and using Big Data repositories, articulation of the goals of data sharing, and principles of responsible data sharing. Facilitated breakout sessions were conducted to examine what each of the 7 stakeholder domains wants from Big Data under ideal circumstances and the possible roles that the AHA might play in meeting their needs. Important areas that are high priorities for further study regarding Big Data include a description of the methodology of how to acquire and analyze findings, validation of the veracity of discoveries from such research, and integration into investigative and clinical care aspects of future cardiovascular and stroke medicine. Potential roles that the AHA might consider include facilitating a standards discussion (eg, tools, methodology, and appropriate data use), providing education (eg, healthcare providers, patients, investigators), and helping build an interoperable digital ecosystem in cardiovascular and stroke science. There was a consensus across stakeholder domains that Big Data holds great promise for revolutionizing the way cardiovascular and stroke research is conducted and clinical care is delivered; however, there is a clear need for the creation of a vision of how to use it to achieve the desired goals. Potential roles for the AHA center around facilitating a discussion of standards, providing education, and helping establish a cardiovascular digital ecosystem. This ecosystem should be interoperable and needs to interface with the rapidly growing digital object environment of the modern-day healthcare system.
Bibliography:	ObjectType-Conference-1 SourceType-Conference Papers & Proceedings-1 content type line 25 The Data Supplement is available with this article at http://jaha.ahajournals.org/content/4/11/e002810/suppl/DC1.The American Heart Association requests that this document be cited as follows: Antman EM, Benjamin EJ, Harrington RA, Houser SR, Peterson ED, Bauman MA, Brown N, Bufalino V, Califf RM, Creager MA, Daugherty A, Demets DL, Dennis BP, Ebadollahi S, Jessup M, Lauer MS, Lo B, MacRae CA, McConnell MV, McCray AT, Mello MM, Mueller E, Newburger JW, Okun S, Packer M, Philippakis A, Ping P, Prasoon P, Roger VL, Singer S, Temple R, Turner MB, Vigilante K, Warner J, Wayte P; on behalf of the American Heart Association Data Sharing Summit Attendees. Acquisition, analysis, and sharing of data in 2015 and beyond: a survey of the landscape—a conference report from the American Heart Association Data Summit 2015. J Am Heart Assoc. 2015;4:e002810 doi: 10.1161/JAHA.115.002810. Expert peer review of AHA Scientific Statements is conducted by the AHA Office of Science Operations. For more on AHA statements and guidelines development, visit http://my.americanheart.org/statements and select the “Policies and Development” link. These Conference Proceedings were approved by the American Heart Association Science Advisory and Coordinating Committee on September 24, 2015. A copy of the document is available at http://my.americanheart.org/statements by selecting either the “By Topic” link or the “By Publication Date” link. The American Heart Association makes every effort to avoid any actual or potential conflicts of interest that may arise as a result of an outside relationship or a personal, professional, or business interest of a member of the writing panel. Specifically, all members of the writing group are required to complete and submit a Disclosure Questionnaire showing all such relationships that might be perceived as real or potential conflicts of interest.
ISSN:	2047-9980 2047-9980
DOI:	10.1161/JAHA.115.002810